Coping with fibromyalgia : Hi my name... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Coping with fibromyalgia

Fitzy81 profile image
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Hi my name is Lisa I am 38 I have had fibromyalgia for a couple of years now but these last few weeks have been really bad I have been in bed most of the time how do u cope with the pain

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Fitzy81 profile image
Fitzy81
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10 Replies
YASMINTINA profile image
YASMINTINAFMA UK Volunteer

healthunlocked.com/fibromya..., morning, there are times I read and for me personally there are days in bed and patches where a flare has kept me in bed longer, it is very hard, I tend to ride it out with bed rest until it passes, medication from doctor, soak in Epsom salts to relax muscles, some people have tried a tens machine for pain ?? I use a rub in pain relief gel on my worst areas which is normally back shoulders neck. I try not too think too far ahead until I feel I can get up and tackle the house etc, my iPad is helpful ,for company, a good film or drama on the tv, and we get to support each other here and a helpful chat is always good xx ps I posted a link should you want to lock your posts for more privacy as only our community can see.

Fitzy1981 profile image
Fitzy1981 in reply to YASMINTINA

That's just like me it's horrible but thanks for replying u have really helped

Hi hun,,over the years of suffering has anyone explained "pacing yourself"? That can seem impossible for some but its essential to store energy when its good and not use it up,,I've done it many times and lost days and weeks recovering.

Fitzy1981 profile image
Fitzy1981 in reply to

Thanks for replying no one has explained anything really

in reply to Fitzy1981

You will get the best help from Fibromyalgia u,k web sight and lots if tips on here.

Fitzy1981 profile image
Fitzy1981 in reply to

Thank you

Midori profile image
Midori

I find that forcing myself to get out of bed and gently moving helps. For me, staying too long in one position makes me stiff until I almost set like concrete!

Also, staying in bed will cause your muscles to lose tone, and make you less able to regain fitness when you are able to move.

It may be the easy option, but you are likely storing up problems for the future. You are still fairly young, and gentle exercise helps.

Fibro is a thief, it steals ability if you let it.

I have decided to treat it as my enemy and fight it all the way; I'm determined not to lose any more of my abilities, and I have lost a lot over the years, rockclimbing, horseriding, fencing, ballroom dancing. It is not taking any more from me without a fight!

cheers, Midori

Fitzy1981 profile image
Fitzy1981 in reply to Midori

Good on u it makes it worse for me cause I have other health problems and my mobility isn't good I walk with a frame but thank u for your advice

Midori profile image
Midori in reply to Fitzy1981

I too walk with a rollator, or sometimes I use a wheelchair. I'm a week away from 72, (UGH!), and I've had enough of Fibro kicking my backside. I also have multiple conditions, but I only have one life, and I going to live it as best I can, and for what time is left to me.

Cheers, midori

Fitzy1981 profile image
Fitzy1981 in reply to Midori

Do u know u are right I can't let this beat me thanks

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