'They think disability is almost worse than being dead'

[desquinn]

BBC featuring article from Tilly Moses about being disabled and how people perceive it. Her fibromyalgia does not define her or stop her from having a life.

bbc.co.uk/news/uk-england-s...

[Dizzytwo Moderator]

Wonderful uplifting post Des, I have neighbours who do not believe just how badly I suffer or why I need a wheel chair. This is based on the fact I look well and on most day when up to it I put on a bit of lippy and brush my hair.

What they don't see is me on the days when I can't move for days. Seems we get penalised if we try and penalised if we don't.

I just shared to my FB page. The young lady is an inspiration very similar to our own Manu2015 me thinks

We just need to try and blank the disbelievers IMO some think I couldn't possibly be in so much pain because I can't take pain meds. Yet here I am still alive and breathing after 35 years of dealing with such an horrible illness.

Well done that young lady for been so strong and positive

[Hidden]

very inspirational, i don't think having fibromyalgia should stop us living the life we want to live. why should it?

[bobbybobb]

What a great story. She picks up on some very good points about how the public think disabled people should behave. They do make you feel that you shouldn't dress nice or have a laugh. Very positive young lady.

[AllthatGlitters]

I’m glad that people come out in the media and tell their story about fibromyalgia. I also like the fact that Lady Gaga openly says she suffers too. As she is a celebrity maybe people will take note.

I still think in this day and age that us with disabilities are treated differently, especially in the workplace. We are hounded out - the law needs to change and fast! More and more people are being diagnosed with fibromyalgia and other disabilities, it needs to be seen as the norm instead of poking fun at us or being so ignorant because they don’t understand the illness/how it feels/ how it effects our lives.

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