Difficulties with GP: Hi, sorry I have... - Fibromyalgia Acti...

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Difficulties with GP

Sunflower0
Sunflower0
45 Replies

Hi, sorry I have been inactive for a while I have been unfortunately suffering a bad flare up. I feel as though my symptoms are getting worse and worse. I have been suffering with extreme dizziness and an inability to walk, I feel as though I am walking on broken ankles. A GP phoned me back today as part of the triage system, and I was made to feel as though I have made the whole thing up. I am also so nauseated all the time. He booked me an appointment for 4 weeks with a doctor - even after I explained I can barely walk and am too weak to even lift my head off a pillow or shower etc. I feel to weak to even lift a spoon to my mouth sometimes. I just wondered at what point do they take us seriously - I honestly feel people without fibromyalgia would go toA&E if they felt this level of pain 24/7. Sorry for the rant I am just feeling really disheartened especially when it’s a GP making you feel like you are just phoning to get medication - do they not realise we don’t want to feel like this? I don’t know how much pain I truly have to be in for someone to take me seriously. I am currently on Duloxetine 30mg which do nothing to touch my pain and I am so fed up of being in this unbearable pain. Sorry to be such a moan and so negative on here just feeling low at the moment and needed a rant.

Hope you’re all as good as you can be.

Gentle hugs

B

Xxxx

45 Replies
oldestnewest
Hidden
Hidden

Gentle hugs back its good to have a rant, my poor husband told me today you need to see the GP about your anger issues :) but when you are in constant pain the slightest thing sends you on a rant, (poor hubby gets the ear bashing) so I know how you feel xxxxx

10 likes
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Sunflower0
Sunflower0
in reply to Hidden

Yes I agree it’s so easy to go on a rant. I’m 19 and feel like I am 90 it’s just frustrating I want to live a normal life and the doctors are making it 10 x more difficult to because they just don’t listen. Xx

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Hidden
Hidden
in reply to Sunflower0

Sadly GPS have the knack at fobbing you off. I 45 feeling like 145 at the moment. And sadly the younger you are they seem to think it's extragerated. But we who feel the pain really would need a warped fancy to extrate the pain my friend lyndsey was really bad with Arthritis at 17, and the doctors really know how to talk down to us.

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RayB

I think most around here can relate to the experiance !

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Oldham12
Oldham12
in reply to RayB

It seems to take a long time to find a good GP which I have now got but I've seen many who are writing script out c as I go in!! Take care Lynne

1 like
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RayB
RayB
in reply to Oldham12

Lynne, I think I will be happy when I find one with Fibro,,, it is only then they will really have an idea of what I am experiancing,,, and that will be worth more than whatever is on the precription.

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Sunflower0
Sunflower0
in reply to RayB

It’s a shame that we all find it difficult to get through to our GPS when they are supposed to be the ones listening to us

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RayB
RayB
in reply to Sunflower0

Their problem is more one of the mind than the ears.

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kookee

HI Sunflower0, I'm sorry to hear how awful you're feeling and how the GP isn't any help. I really hope you start to feel better soon and that you have some help during this time. Acceptance for me is really important, but now I'm in a flare of my own, it's so difficult to have that mindset. I keep trying to remind myself it won't last forever but it's hard. Sending you healing vibes and gentle hugsxx

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Sunflower0
Sunflower0
in reply to kookee

Thank you very much. Sending you love and gentle hugs :) I’m sorry to hear you are having a flare up.

X

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Badbessie

No need to stay sorry about the rant or having negative thoughts. Sadly for the vast majority of this forum from experience we know where you are coming from. An appointment in 4 weeks is not really helpful. In the short term I would ring 111. Explain your symptoms and ask for advice. Also explain your symptoms and say your extreme dizziness is making you unsafe. In the past they have booked me appointments to see a GP at a emergency centre. They may not be able to do a great deal but will be able to eliminate other causes. In the long term I would suggest to your GP that it would help your situation and his to be referred to a specialist pain management team. You have both physical and emotional problems and you could sell the referral to the GP as a means of trying to sort out the whole you rather than you returning to him one symptom at a time.

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Sunflower0

Thank you for your advice I will definitely try this. I am sick of not going to the doctors when I’m feeling bad just because I can’t stand to be called a liar when I’m in this much pain.

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Aaaaa-
Aaaaa-
in reply to Sunflower0

Ditto !

1 like
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Broadfield

A&E was my best call. Borrowed a wheel chair and rocked up with an ice pack to my fore head. Had symptoms like yours. Had a head scan and one on my spin, kept in over night and went home with a strong letter to my GP. Now I am treated with respect. Try it, it's the best move I ever made.😊

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Sunflower0

I have phoned 111 and asked for advice - waiting for the nurse to call me back. Fingers crossed

5 likes
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Jamsiet
Jamsiet
in reply to Broadfield

Good for you!! Shouldn't have to do this but sometimes there is a point where it's the only action to get the help you deserve. take care hun

1 like
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Sunflower0
Sunflower0
in reply to Jamsiet

Exactly it’s mad that my own GP does not believe me.

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Fibro786

Good Morning

The younger you are, the more you are dismissed/ignored. The best advice I can give is, don’t give up keep going to your GP.

It felt at times like I was harassing them, but they need to help you or refer you to specialist who can help.

Make a diary/notes for yourself of all the meds they put you and if they don’t work, or make other symptoms worse write it down. My memory is terrible, so I make notes on my phone before my appointment, as I forget what I want to discuss.

The wonders of fibromyalgia, keep fighting xx

1 like
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Sunflower0
Sunflower0
in reply to Fibro786

Thanks for your advice, I’m made to feel crazy when the only crazy thing is that we have got to harass our doctors before they will help us. Xx

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Fibro786
Fibro786
in reply to Sunflower0

Lol, yes indeed. Sad times xx

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Queenielot

Im so sorry your feeling so ill and hope you start to feel better soon it seems to me that no matter what you go to the doctor with the first thing that comes out of there mouths (even before you have finished telling them how awful you feel)is it's related to fybro ijust beggers belive sometimes and i wonder if they think that we are stupid enough to think all our aches pains flare ups ect are made up do take care hugs x

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Sunflower0

Yes definitely, I think they assume we all want to feel like this and it’s all made up :) I hate feeling so ooorly all the time don’t they realise x

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rainbow58

hello SunflowerO,

Its OK to rant .

I think many can relate to your experience,I can for one.My experience of GP's(where i am at now) dont care or show any empathy,Dont take anything seriously and current GP fobs me off too easily with "I cant see or feel anything".They write things in my notes that did not happen or were not discussed in consultation,.I have been battling for 8 years to get a diagnosis and still none,I dont like the triage system and would rather see a GP face to face.I hope you feel better soon and get the support/help you need

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Sunflower0

I’m sorry to hear you are going through the same thing :( my doctors was quick with diagnosis after tests were done but refuse to do anything to actually help me.

X

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rainbow58

thats more than i have had.in 2011 my then GP thought i had "something more than /as well as Fibromyalgia.He referred me to a rheumatologist whose only concern was my weight and diet but did not accept weight gain was not diet related and who did nothing to suggest what my symptoms were.GP did not support me.other than the suggestion of Pagets Disease by a GP in 2015-and more recently Sarcoidosis,Crohns or something called infilmatrosis granulatomosis(not sure of title)by endocrinologist-which gp did not follow up on,-had no diagnosis.

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Sunflower0

I’m so sorry to hear that. Sending you love and hugs xx

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Maddy1974

I totally understand as I'm going through EXACTLY the same thing with my GP.

After approximately 15 years of being told I have fibromylagia and every single problem I've had since the diagnosis has been assigned to fibromylagia... I asked my GP to put something in writing... Now suddenly I've been told I've never had fibromylagia and they can't put anything in writing!

I have a very good friend who runs one of the NHS hospitals hear London and he's advised me to report my GP to the medical ombudsman. They've also stopped ALL my medication. It's a joke.

I'd like my GP to live as I do for 1 day.... Then see what he thinks!!!

X

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Midori
Midori
in reply to Maddy1974

Agreed.

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Sunflower0

That’s awful. I’m sorry to hear you were treated so badly. Hope you get the help you need. Xxxx

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Midori

Unfortunately, doctors seem to come in two varieties, those who are sympathetic to Fibro, and those who either don't believe in it or think we are hypochondriacs.

I wish sometimes we could take the second group and swap bodies with them for a week or two; that would sort them out!

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catherine19611

I have said the same thing, its a pity that the training to be GP's doesn't include having to experience this, as you say just for a week.

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Sunflower0

I wish. X

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Sunflower0
Sunflower0
in reply to Midori

I find that even a GP I see mostly who is sympathetic just parr’s me off when I go to see her - because I’m so young they don’t want to give me much medication which I can see the point of but how can I be expected to suffer just because I’m 19 - surely that’s more of a concern. C

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fabpup01

Hi Sunflower0, It can be good to have a rant every now and then. I had an issue with my GP a year or so ago when I tried to get my amitryptiline increased and was told that there is nothing she could do as there was nothing around us to help. It does make you feel very alone.

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Sunflower0
Sunflower0
in reply to fabpup01

Yes I was told to stay on 30mg even though I have been on them for months and nothing. I feel your pain. Sending love xx

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fabpup01
fabpup01
in reply to Sunflower0

Hi again. I'm currently on 75mg of the Amitryptiline and I am now not sleeping as I was a few months ago. I would be really concerned to try anything too strong as I am also a type 1 diabetic which again comes with it's own set of problems. Big gentle hugs to you

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Sunflower0
Sunflower0
in reply to fabpup01

I am awful for not sleeping - and if I can get to sleep it’s always broken and I’m awake every few hours at best!

Xxx

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catherine19611

Have a look on the leaflet that came with the Duloxatine, nausea and dizziness could be one of the reactions to that. I was given Duloxatine and after only a month it was stopped due to seeing a black spot in my peripheral vision, everytime I moved my head to see if there was something there it moved as well.

As for GP's, some are just a total waste of space, I went to see one a few years ago, I had to wait for 2 weeks for an appointment with any GP, and as soon as I said to him that I had Fibromyalgia and Chronic fatigue, he said, "let me stop you there, there are those GP's who don't believe that Fibromyalgia is a real thing, and I am one of them, go and see Dr S, goodbye", and he buzzed for the next patient. I had to wait a further 3 weeks for an appointment with the GP he told me to go and see. Babe, feel free to have a rant whenever you need to, there are some really nice people on here.

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Sunflower0

I managed to get an appointment with a doctor for tomorrow so I’m going to mention the dizziness and nausea because it could well be caused by duloxetine!

I agree with you there. Wow that is so rude I can’t believe that! It makes you wonder why anyone would bother to become a gp if they don’t want to help anyone.

:) xxxx

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rainbow58

If Fibro is not a "real thing" why do rheumatologists diagnose it-based on symptoms-18 trigger points -mine was diagnosed by 18 trigger points and "crawling skin"-and Amitryptiline is prescribed for Fibromyalgia-formerly called MS if i remember correctly.???

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Sunflower0

If it isn’t a real thing how come so many of us have it too :)

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rainbow58

exactly

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Bananas5
Bananas5
in reply to rainbow58

Ditto

x

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Ticketyboo555

I just wanted to send you a great big hug.

No one understands, I've accepted that now.

We all care on here though.

I tend to get ideas/advice from here and don't even bother with the gp now.

Take care.

Hugs.

Sue xx

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Sunflower0

Thank you, sending you a big hug back :)

Yes I am coming to learn that GPs either don’t understand or care and while it’s important to still go I have to find things that work for me without the help of a GP. A friend of mine went to a man who specialises in natural medicine where I live and she said she feels much better - but sessions like that are so costly.

Hugs

Bronwen

X

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