Understanding how much pain we really do have

[Emm-13]

fibro would be easier if u could see it , this helped my family and friends realise how bad it is

[Michdau1]

So true!!!! X

[Treewade]

Its like so many other invisible diseases people don’t understand or accept it as real and you get tired of trying to explain this and the pic in previous post are great to show people to explain but some still don’t believe there’s owt wrong and call you names like mardy hypercondract etc I now avoid such people or ignore there comments it’s tiring trying to explain lol hugs n love xxxx

[Emm-13 in reply to Treewade]

Quite right , surround yourself with understanding people and the ones that don’t believe it’s not us that have a problem it’s them . X

[YASMINTINA FMA UK Volunteer]

Agreed , I still think sometimes abit more empathy and showing kindness towards people with fibro would make us all feel alittle better.

[Emm-13 in reply to YASMINTINA]

Yes it would, I do understand how hard it is to comprehend, but that doesn’t mean that we’re lying, just because they think if the pain was that bad I would be in bed crying, been there done that and found it just made me worse .

[Hidden]

Yes, we are bruised on the inside. I'm very lucky to have a great support network as well as all you lovely people on here. Love and hugs to you all Lynne y

[Emm-13 in reply to Hidden]

Ye me too my family, friends and docs have been amazing they have always believe me, but to actually see the pain helped a lot , it is hard to believe how bad it is but as I say I’m used to it , it’s all I’ve ever known I can’t remember a time with out pain , only one physio didn’t believe me , she made me feel like I was lying basically, but every one else said that was terrible behaviour x

[Hidden]

That's terrible from a so called professional!! Love and hugs Lynne xxxx

[Emm-13 in reply to Hidden]

It is shocking, my gp said she would help me complain about it , but the usual too tired to take it further too much hassle x

[Hidden in reply to Emm-13]

That's what they hope for, that we are too tired!! Love and hugs Lynne xxxx

[Emm-13 in reply to Hidden]

Hi

Yes definitely and benefits system doesn’t help one single bit either x

[Rai_Iwa]

Dear Emm,

Well presented, this is such a great discussion point. My partner and I are artists and way back when I was first diagnosed it was an art therapy course (I had severe depression at the time) that helped me understand how I could show my hidden pain to those around me.

To all of you out there just grab a piece of paper and a pencil and just let that pain out, you might find a way to show your family just how bad FM is.

Wishing you well,

Rai xxx

[Emm-13 in reply to Rai_Iwa]

Hi

What a good idea, showing the pain visually help people understand how bad it is , my family have always supported me and new I was in a lot of pain but wen I showed them this pic they’re reaction was wo new it was bad but omg not like that x

[SusieJo1948]

That's a good picture if only people could see what fibro looks like we would finally be believed. That's what it looks and feels like. If we looked like that than maybe. The world would believe us. Have a goodnight and sweet dreams Love susiejo1948