New

[Rita1404]

Hi Im new to this forum.

Have fibromyalgia and would be great to hear others journeys with this condition

Rita

[twinks123]

Hi Rita

I am also new. Just diagnosed a few months ago. X

[Rita1404 in reply to twinks123]

Hi twinks???? How are you feeling about your diagnosis

I've had this for a number of years and it's made me more appreciative of life xx

[twinks123 in reply to Rita1404]

Hi Rita

I have come to terms with it now and trying to enjoy the good days and not think about the flare ups too much

Thank you x

[Rita1404 in reply to twinks123]

Good good maybe once you get your meds under control things might get easier

Enjoy your day x

[skit]

Welcome to the friendly forum. There are lots of people with loads of experience in the condition.My journey to all too familliar , went to Gp's for years with this pain or that symptom.I had moved house quite a bit to be fair. However one chap sent me to a neurologist. They referred me to a surgeon who was thinking of a neck surgery. Then I moved again. New GP was sympathetic so sent me to another surgeon who used the word Fibromyalgia and said that i needed a Rheumatolgist . The rest they say is history. My present consultant is great I see her every 6 months (I have other conditions). Various medications have been tried,at present using Pregabelin ,paracetamol, and recently Blutrans patches.

How do I deal with it? Everyday its an option of does Fibro rule me or I rule it? Then there is the need to not to over do it. Pacing is the name of the game for sure. Suggest you find a support group near you check out fmauk.org/groups.

[Rita1404 in reply to skit]

Thanks for this yes I will look for support group

I m fortunate i m still at work but really struggling with it

[skit in reply to Rita1404]

Your employer needs to know about your Fibromyalgia . It is classed as disability so some adjustments may need to be made.

[Rita1404 in reply to skit]

They are aware, but as I have relocated and have a new micro manager who blocked my Access to Work application staying we need to go via "in house" I have an appointment with occupational therapy on the 9th

Hope your wel!

[skit in reply to Rita1404]

If you can contact Job centre disability adviser and clarify if an employer can 'block' Access to Work. Your company has a vested interest to use their 'in house' system. If you are in a union have a quiet word.

[Rita1404 in reply to skit]

I never knew about job centre so I'll enquire. I have spoken with union as I don't think it's right but as long as my needs get met in not fussed

[Dizzytwo Moderator]

Hi there, here's wishing you a very warm welcome to the group Take your time and read the many wonderful post past and present from members. I am sure there is a great deal of information you may find helpful I do hope so.

For privacy reasons you may like to think about locking your posts. This stops what you write been picked up by the big search engines like Google, FB etc. If you wish to lock it this link will show you how.

healthunlocked.com/fibromya...

Most members tend to reply more to locked posts. I hope you have a lovely day xx

Momo

[Rita1404 in reply to Dizzytwo]

In still struggling to see how to put posts to community even though I've looked at the link

[Dizzytwo Moderator in reply to Rita1404]

Hi Rita, I will send you a PM 😊

[Rita1404 in reply to Dizzytwo]

Im going to reheat you have suggested mo mo but no in my reply box there's no option

outside the box there are 2 options cancel it reply to the right hand side

on the left there is privacy goodbye again just advice no options

what am I doing wrong 😡😊😡😊

[Dizzytwo Moderator]

Hi Rita, I think your misunderstanding. This has nothing to do with your reply box. To lock a post it must be done before you hit the post button.

You write a new post /question. Don't hit the post button yet. Scroll down a little now click O Only community members first then click on Post. You only do it once when you first post not to every reply. I did send you a PM

[Rita1404]

An right I'll try it give me 5 😀😀