Tweets - you don't look sick - Fibromyalgia Acti...

Fibromyalgia Action UK

59,346 members66,394 posts

Tweets - you don't look sick

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee
5 Replies

Another post made me realise that some things that are posted on FMA UKs social media may not always make it here so here is one that resonated quite well.

Also there was a post about a group meeting in Bromley. Its not registered with FMA UK but may be helpful to people in the area.

"Do you have #Fibromyalgia? Interested in meeting others living with the condition?We run a support group in Bromley, BR1 1RH on the last Friday of every month (tomorrow!) It's free but pls book > ow.ly/Ja4x30nLpsx @OxleasNHS @NHSBromley_CCG @fmauk @LBofBromley"

Written by
desquinn profile image
desquinn
Partner
To view profiles and participate in discussions please or .
5 Replies
desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

sorry forgot to add that its worthwhile keeping an eye on twitter and facebook for content we retweet

twitter.com/fmauk

facebook.com/ukfibro

Mrsbeevintage profile image
Mrsbeevintage

Thats really positive thanks for sharing , still hoping to find a group closer to home

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee in reply to Mrsbeevintage

where abouts are you and I can check?

Horsesgalore profile image
Horsesgalore

It's so true, I often hear 'but you look fine'

Simbistaffy profile image
Simbistaffy

We are not diagnosed with fybro but classified.its a tick box exercise.

You may also like...

\"Well you don't look unwell!!!\"

a lady who I've known for several years has fibromyalgia and has had it for many years. I was...

ANNOUNCEMENT: FibroAction is merging with FMA UK as of 1st July 2015

more at;......

“But You Don’t Look ill”

me in my dressing gown A LOT!!! I have CFS, fibromyalgia I’m bi polar and an epileptic and yes I...

Sick of cold weather :(

Okay so I no I'm moaning here, but the pains are getting worse. I could have cried myself to sleep...

PIP - Don't you just hate it!