Recently diagnosed...So much to learn

[Givemestrength65]

Hi...firstly I must apologise if my previous username offended anyone...that was not my intention...Anyhow... I am back...like I have said previously, I was diagnosed with fibromyalgia,hypermobility joints and osteoarthritis recently...it’s a pain...most days pass me by and I have achieved very little...I work full time in a job that is stressful, with a challengingly client group...I love the job but it’s putting a strain on my health...how do others cope.?...the dizziness, IBS, painful joints and muscles at the end of the day I am so worn out, I could weep...I take co codamol during the day and gabapentin at nighy... I was given amyltriptaline a couple of days ago which has helped me to sleep better, but have caused grogginess in the morning.... I haven’t really discussed this recent diagnosis with my colleagues or manager as I just want to get on with my job... I am so glad that I discovered this forum as now I don’t feel like I’m on my own...many thanks

[Hazel_Angelstar Administrator FMA UK Staff]

Hi, welcome to your new name 😁

With amitriptyline can I ask roughly what time you take it. Some people find taking it earlier in the evening helps to reduce the morning grogginess. I think it's suggested something like take it 12 hours before you get up in the morning a guide.

I would also suggest having a talk with your employers. There may be some reasonable adjustments that can be made to make your working day a bit easier for you xxx

[Givemestrength65 in reply to Hazel_Angelstar]

Thank you...I take it around 10:00 pm .... I will take it earlier tonight. At the moment I manage my own diary so I work from home at leat one dat a week....I try and space out my visits / meetings but I’m kind if working it out on my own.... I tend not to be in the office that much as the lighting affects my balance...some days I just feel like a hot mess,😩...but finding this forum has really given me some reassurance.

[Joy2018 in reply to Hazel_Angelstar]

amitriptyline should be taken at bed time as it helps a better sleep

[Hazel_Angelstar Administrator FMA UK Staff in reply to Joy2018]

Yes, but sometimes taking it earlier can help with the grogginess the following morning, but it still helps with sleep x

[Joy2018 in reply to Hazel_Angelstar]

It makes me too drowsy if I take it in the morning does it help the pain ?

[Hazel_Angelstar Administrator FMA UK Staff in reply to Joy2018]

I don't take it personally, so can't talk from personal experience but I do know of people who have taken it and found it helped with their pain as well as sleep x

[SusieFibro in reply to Hazel_Angelstar]

I've been taking this for over a decade and I initially had the same problem, feeling like a zombie for most of the day. My GP said this is not uncommon and suggested I take it at 7pm instead of at bedtime. Hey presto - no more zombie-mode ;D Everyone's different of course but even when I've had to drastically increase my dosage, it's still better if I take it at 7pm. I think the earlier suggestion of taking it 12 hours before you get up in the morning is a very good guideline. My only exception is if I'm out in the evening, in which case I take it when I'm 60-90 minutes away from home, but trial and error is the best route for everyone. Good luck

[Dizzytwo Moderator]

Hi there, nice to meet you and welcome to our group. And I do like your new name 😋 I'm glad you found us too.

May I just give you the heads up on locking your posts. You may wish to do this to keep what you write private to this community only. Also it often helps generate more replies. Leaving a post unlocked can be be picked up by the big search engines like Google, FB etc. It's up to you if you wish to lock your posts but if you do this link will show you how.

healthunlocked.com/fibromya...

If you need help with this or anything else please just ask any of the admin team 😊

You may find our main website of interest. It has a wealth of information you may find helpful.

fmauk.org.

I hope you enjoy the rest of your day.

Momo

[Givemestrength65]

I think I will have to talk to my manager... I can’t really afford to not work so I have to really look at what my options would be....Iv been in the job for just over 15 years and I really enjoy it.however I know that it is taking all of my strength to get through the day...Iv booked tomorrow and Monday off as leave so I can recharge my batteries 😒

[Bacaloca]

Hi, I take gabapentin 300mg 3x aday, I take 150mg of Amitriptyline at about 10 pm at night I go to bed about 11.30 pm, I do not feel the drowsy feeling in the morning. Both tablets seem to help with the pain. I am on such a a high dose of Amitriptyline as it is to help with my anxiety.

I am also on Tramadol,nobody seems to know why I am not like a zombie the amount of pills I take. I hope you soon find out what suits you. Gentle hugs.

[Givemestrength65]

I'm on 10mg amitriptyline which is helpful for a decent night's sleep and I use an electronic blanket which is good for my joint pain...I take co codamol during the day.. I'm still trying to find what works... my rheumatologist recommended I buy Turmeric capsules as that's meant to be good for pain also... have any of you tried it?

[Chase888]

Hello. You reminded me of people who say that when their patience is tested.

How are you now?