Advise.: Hi All, what are your thoughts... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Advise.

45 Replies

Hi All, what are your thoughts/experiences with CBD oil?

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45 Replies

Hi

They were talking about it on this morning, saying it's very good. Holland and Barrett £12.99

Please take care

Lynne xx

in reply to

Thank you Lynne I didn't see that as was at work. Coincidence that I asked lol. Hope you are well? 😉

Nel1961 profile image
Nel1961

I watch the programme and thought it was interesting. I am going to talk about it to my doctor on Tuesday. I think I did read on her that someone was trying it.

Nel

in reply to Nel1961

Hi Nel I'm seeing my GP later this afternoon. I'm asking too. Thank you for replying. Take care 😉

Nel1961 profile image
Nel1961 in reply to

Good afternoon, hope you are having a good day.

I am interested in how you got on at the doctors, I have an OP visiting on Monday morning. Not sure what they can do.... but I feel I have been listened to forthe first time in ages.

Nel x

in reply to Nel1961

Hi Nel

I had to cancel my appointment as my granddaughter has had to come to.our local A & E. Now going on sunday morning but its with a locam. Have a good week end

Nel1961 profile image
Nel1961 in reply to

Oh dear hope all getting sorted with your granddaughter. Good luck with your appointment. Look after yourself.

Nel

25rosclare profile image
25rosclare

I have been using it as a vaporiser, Medipen. With me It has helped ease the pen and has helped me relax. When I told my doctor I had been using it he was fine and said 'if it helps & it is legal then try anything that you think may help you' Good luck xx

in reply to 25rosclare

Hi Clare thank you for replying. Interesting that it works for you. Take care 😉

Not heard of that brand. I had two samples from CBD Brothers and they worked really well. Bought 2 bottles from Simply CBD and they do absolutely nothing. Supposed to be same strength. It's always worth a try but not cheap.

in reply to

Hi Holly

That's an odd thing to happen if same strength. Ive its not cheap but desperate for something to take the edge off as finding work hard and even harder getting out of bed in the morning. Take care 😉

Survivor-girl profile image
Survivor-girl in reply to

Cbd Brothers Have Indica oil white Red and Black and they are the vest for fibromyalgia and suffers and a top quality flower oil

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

I use it as an oil, vape and cream. Trial and error to find a brand /strength that works best for me.... Lot of poor quality being sold for high prices, so do your homework before buying.

CBD bros and cheds are 2 of my favourite suppliers.

Doesn't take pain away completely but does help to take the edge off xxx

Hi Hazel

Thank you for reply I shall look at them later. I only want something to take the edge off it. if it does then thats great Take care 😉

I can only say Beware of The Famous High Street shop brands, they have a Prime Location on our High Streets they are not struggling for business because people like us trust their products,, I wouldnt give them any of my money, read the contents carefully on whatever you buy from them, most is additives that can cause allergies and side effects which take quite a while to recover from. None of their stuff is dangerous but its a big rip off.

in reply to

Thank you x

OOOG31 profile image
OOOG31

Hi, Daffodil64. I've been using CBD Oil in various forms for over 2 years now, and it's helped me quite a bit. I find that Simply CBD works for me.

Nel1961 profile image
Nel1961 in reply to OOOG31

Hi I think SimplyCBD was on Good Morning. Please can I ask who you use the oils. And do you use anything else?

Nel

OOOG31 profile image
OOOG31 in reply to Nel1961

Hi, I use the oil sublingually but you can make your own capsules if you don't like the taste, although you will absorb less CBD this way. I've used CBD paste from Holistic Hemp Scotland, and that's good too. You can get CBD balms which have helped some people (not me) and edibles as well. I drink hemp tea from Zennon Hemp Farm which is also high in CBD, CBDa and CBG. It's all trial and error as to what works for you personally, but Simply CBD have a Facebook group which gives great advice, so take a look at that. I hope this helps a bit. X

in reply to OOOG31

Thank y

in reply to

Thank you x

in reply to OOOG31

Thank you x

in reply to OOOG31

Hi thank you x

bobbybobb profile image
bobbybobb

I'm on blood thinners and have been told not to use these products as they can enhance the effects. So always check with your pharmacist or doctor if you are taking other medication that it is safe.

ruthmel1 profile image
ruthmel1

Brilliant stuff! I get quite evangelical about CBD oil as I've been on it 11 months and its been amazing for my pain.I'm not pain free by any means and I get flare ups when nothing works like today-but on the whole my overall pain management is good. I'd encourage anyone to try it. If folks poopoo the H&B brand ingore them.Its a perfectly legit brand with Third party lab reports. There are rules for starting CBD oil, building up and working around meds. I put some info up on another post a fe weeks back so have a searhc or I'll post them again if you wish

Rheadster72 profile image
Rheadster72

I'm undiagnosed but suffer with fatigue and a fair bit of pain along with peripheral neuropathy. I tried CBD a while back but found it didn't really help. I did read that you need to titrate up the number of drops but I got to a stage where I was a bit drowsy, although it might have been down to amitriptyline so not the best conditions to genuinely gauge it's effects. I think I was up to about 12 drops twice a day. It also costs a fair bit too.

It doesn't taste too nice so I always had it with food to try and hide the flavour.

Good luck with it

Bemoresquirrel profile image
Bemoresquirrel in reply to Rheadster72

Hi Rheadster, I’ve produced a sheet of hints and tips on how to get the best from CBD, which is regularly updated. How and when you take it can make quite a difference.

Let me know if you would like a copy and I’ll send it to you via Health Unlocked.

Rheadster72 profile image
Rheadster72 in reply to Bemoresquirrel

Yes please, send it over. Any little bit of relief is most welcomed.

Bemoresquirrel profile image
Bemoresquirrel in reply to Rheadster72

I’m just updating it at the moment, I’ll send you a copy hopefully, tomorrow. Rosey x

Pam2017 profile image
Pam2017 in reply to Bemoresquirrel

Can u personal message me with details thanks 🙏🏼

Edited by admin

Pam K

in reply to Rheadster72

Thank you x

Nel1961 profile image
Nel1961

Looks like a very interesting time head.... with CBD been highlighted more and more.

Pleased it works for you,

Please would you put the infro up again, I am very interested.

Thanks in advance Nel.

Bemoresquirrel profile image
Bemoresquirrel in reply to Nel1961

Hi, I’m get mine from Simply CBD. I have a sheet of hints and tips to get the best from your CBD, if you’re looking for more information.

Buzzybee23 profile image
Buzzybee23

Can you use CBD if you are already on antibepressants

Bemoresquirrel profile image
Bemoresquirrel in reply to Buzzybee23

CBD can enhance the way the way the body metabolizes prescription meditation, which in turn increases the risk of side effects. It’s important to talk to your pharmacist or doctor first about this, as I’m not a Healthcare professional, so I can’t advise you.

If they say it’s ok, start with one drop of CBD and slowly increasing to two drops. Stop immediately, if you notice any side effects.

Research on mice showed CBD had antidepressant effect similar to Imipramine. ncbi.nlm.nih.gov/pubmed/200...

Buzzybee23 profile image
Buzzybee23 in reply to Bemoresquirrel

Thanks for the advice I will look into it

Bee xx

Bemoresquirrel profile image
Bemoresquirrel

Hi Daffodil64, I’ve been using CBD for several years, after I had to come off my fibro meds. I’m currently using Aqua Full Entourage from Simply CBD and had no problems with it.

I’ve produced a sheet of hints and tips to get the best from CBD, which is regularly updated. Let me know if you would like a copy and I’ll send it to you via Health Unlocked.

in reply to Bemoresquirrel

Hi Rosey yes please I would love a copy thank you x

Bemoresquirrel profile image
Bemoresquirrel in reply to

Hi Daffodil64, I’m just updating it at the moment, I’ll send you a copy hopefully, tomorrow. Roses x

Nel1961 profile image
Nel1961

Hi Roseyinthegarden

I am very interested in trying CBD, feeling nervous about it, not knowing where best to purchase it and how to use it.... please would you share your info with me?

Regards Nel

Bemoresquirrel profile image
Bemoresquirrel in reply to Nel1961

Of course Nel1961, just working on an update and then I’ll send it to you. Best wishes, Rosey 🙂

Nel1961 profile image
Nel1961 in reply to Bemoresquirrel

Thank you Rosey

Nel

jools56 profile image
jools56

Hi daffodil64. Yes along with Hazel_angelstar I have found that CDB does take the edge off the pain on a daily basis (less of that constant "it is always THERE!" aches, and most importantly, I've not had a seriously painful flare up since last March when I first started taking it (ie not lying in a wimpering heap like someone is sticking knitting needles in all my muscles.) It isn't a cure...still need pacing, adequate rest, amitriptyline at night, and paracetamol if things go wrong. But as you say it takes the edge off, which is more than welcome. I buy mine from Healthspan on line, Superstrength capsules (no nasty taste) are £5 off at the mo, £27.95 for 30, £54.95 for 60. Last time I compared prices Holland and Barratt were about the same. With money off vouchers online and ones which Healthspan send every few weeks I rarely pay full price.

in reply to jools56

Thank you x

Andrea_Mc profile image
Andrea_Mc

Hello Daffodil64,

I have been recommend this, so contacted Alternative choices on Facebook. They have CBD oil at a strength of 35%, was sent a sample which arrived this morning.

Normally when I have done a long shift at work I can barely walk let alone leave the house, but I put 4 x drops under my tongue and a few hours later was able to go for a mooch around my local town. So I would say worth a try, only time will tell for me. Maybe a coincidence but it's been a long time that I've been able to do that. So hopefully not.

Andrea

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