Fatigue, fatigue, fatigue!

[mcglada0]

Should we try to live a near normal life for a few days and then crash horribly for a week or two or have no life at all so that we don’t feel quite so ill and in so much pain ?

[YASMINTINA FMA UK Volunteer]

Hi there, yes I know what you mean, I differently try and make the most of the good days but take lots of mini breaks when I can, we had friends round last night electric heaters on in the courtyard they didn’t go till 12.15 time I got to bed it was 1oclock my body will not go today but I expected that and achy body /pain, so differently lots of rest a couple of good films , then see what tomorrow brings , my motto like many of us is take each day as it comes and yes different had periods of long flares before when you feel proper poorly , plenty of rest /fluids my friend I’m wishing you for a better period to come real soonx

[mcglada0 in reply to YASMINTINA]

Thank you so much for your reply.

I had a good three weeks in June/July but since then been in a constant flare. Whenever I have a better couple of days the severe symptoms come back to bite me. I’m

Glad to hear that you had a good evening with your friends. Sometimes it’s worth the pain and fatigue just to feel “normal” and enjoy the company of good friends. Hope you recover quickly and have many more food days. Xx

[mcglada0 in reply to mcglada0]

Good days !

[YASMINTINA FMA UK Volunteer in reply to mcglada0]

Thankyou I can relate with you I had a really bad period from feb lasted 3months after a bout of flu, and I know it does get you down, I still keep getting the odd flare day but at times I can forget about everything, looking forward to my Epsom salts bath later and a good film , a cheat dinner today t..... finest chicken in sauce and sliced potatoes just do the veg and the wash up need to bounce back tomorrow hopefully as hubbie picks little Grandboy 20mths tomorrow for 830 , he is white blond at the moment beautiful blue eyes and a little tinker, hubbie helps for the day then we pick up the 4 year old at 310 from school just started only 4yrs 3 mths. Then I fall into bed straight after tea but I love them so much , they are what makes it all worthwhile for me. Xx

[mcglada0 in reply to YASMINTINA]

Your life sounds very similar to mine. I look after my almost year old grandson once or twice a week, my 8 year old I pick up from school 3 days and I also have a beautiful 4 year old granddaughter. I know that they tire me out and probably cause my flares but I love them so much and my life would be empty without them. I just wish I could be a more active, lively granny. I try to be and then of course, I pay the price. I really appreciate your support . You make me feel better that it’s ok to be exhausted after a day with the grandkids. Keep

Enjoying yours. Xx

[YASMINTINA FMA UK Volunteer in reply to mcglada0]

Think it’s good in away we know we have the lovely support from people that are in the same boat as us, got loads of recorded dramas from the tv I keep so I can bath and relax at night , especially when the cold gets here as I want to hibernate more lol , you too always have for a chat when you need it xx

[mcglada0 in reply to YASMINTINA]

Thank you. Struggling today. Pain really bad and can’t stop yawning! Done nothing for 3 days and fatigue just not lifting. I get so impatient and always need my OH to reassure me that the worst will pass. Yes I agree that the support that we get in this site really helps when our spirits are low. Xx

[glo100]

Hello there duc I feel the same we can hv a few good days then we start to feel poorly again and there's nothing we can do about it I cd cry some times with the pains but we hv to carry on hey duc I try to rest if I can cs I can't do anythg I feel lifeless live one day at a time hey love glor xx

[mcglada0 in reply to glo100]

Sorry that you are going through the same as me. It really does suck but I suppose we’ve got to hang on to the better days and know that they will come again. That’s what keeps me going but I must admit that I’m feeling a bit sorry for myself today. Life could be so good if it wasn’t for FIBRO! Take care and I hope that you have many good days to come . Xx

[Pjik]

Hi I just wanted to say that I forget what a close to normal life is hope u doing good today

[seastreak]

Live hopefully upwards and onwards!

[Al10]

Just been given a list of helpful dos n donts.

Regarding doing and overdoing they say

don't do more on a good day than you would do on a bad one.

So that means what? we do sod all? Ever?

Stopped reading after that. Didn't want to be over doing hey?

Ugh these so called professional folks spout such rot.

[mcglada0 in reply to Al10]

Lol! They say it’s all about pacing but it’s so hard. Mentally, it does me good to meet a friend for coffee or clean the bathroom but then crash! Doing nothing makes me feel so inadequate and miserable. Don’t know what the answer is!!

[Al10 in reply to mcglada0]

Totally agree. What is life if we do nothing? where is any satisfaction? And who does the cleaning etc if we don't.? There is no cleaning fairy in my house!! Also if we do little, we lose what fitness we have and so become more poorly. I know much of my fatigue is not a lack of fitness it is lack of energy. You dont get unfit in a few days. yet that is how my fatigue happened. One day I could do loads the next, I couldn't. I was very fit.

[mcglada0 in reply to Al10]

I’m exactly the same! I was such an active, busy person. Now it’s such an effort to get anything done. As you say, the hose doesn’t clean itself and lying about us just making our muscles weak. It’s such a struggle. Sorry you’re in the same position as myself but good to chat.

[Al10 in reply to mcglada0]

Yes it is good to chat n share. And put the lie to fatigue being to do with being unfit. Or lazy.

I hated sitting around, wanted to be doing stuff. I still hate it but am a bit stuck with it. The days I can do stuff are precious. I cant waste them resting.

[mcglada0 in reply to Al10]

You have just said exactly how I feel. Good days are the healthy person’s bad days but at least we can function. I am much more resigned to the bad days now. Stressing about it doesn’t help but it is difficult to accept. I keep thinking “ I must be able to get out if this ! “ Maybe one day!