change in the weather and pain

[Mandypandy1969]

it's been a good few degrees lower here today and I have felt cold. I have had so much tenderness/sunburn feeling all over my back, forehead and eyelids. A lot of aching and so fatigued, it's unreal. feel like a rag doll. no life in me. wish I knew what this tender/sunburn feeling was in my back. my eyes are so heavy. struggled to keep myself awake all day but know I have to if I can.

[rosewine]

Unfortunately, the burning pain in your back is probably down to your fibro I have had it on and off since my fibro developed. It does happen in other areas of my body but always seems more extensive and severe on my back. Yesterday it was really terrible. I have found that Lidocaine patches prescribed by my GP do seem to help and so does freeze gel. Conversely others find that applying warmth to the burning areas also helps. You have my sympathy.x

[Mandypandy1969 in reply to rosewine]

Thankyou. I am on 500mg 3x per day of gabapentin and currently on 2 months prednisolone due to inconclusive biopsy results for sjogrens and high. immflamation rate. on other meds too for bipolar/depression/unstable personality disorder. what a life. not. xx

[rosewine in reply to Mandypandy1969]

Yes it is so difficult. The more different meds we take the more side effects we have to contend with which I am sure doesn't help our condition. So sorry that you have mental health problems as well it must be doubly difficult for you to cope with the constant pain.x

[Mandypandy1969 in reply to rosewine]

It makes my depression worse and mood swings are getting worse. D.w.p. Not helping either. Got my first pip assessment next Wednesday and e.s.a. Tribunal 6th September, can't handle stress at all and these 2 things will flare me up even more with fibro and everything else. Why don't we get a break. These people should step into our shoes for a couple of months and see how they like it. Xx

[rosewine in reply to Mandypandy1969]

Good luck with the assessment and tribunal so hope you have successful outcomes at both.x

[Mandypandy1969 in reply to rosewine]

Thankyou. xx

[Mandypandy1969 in reply to rosewine]

Mental health is getting worse due to the stress of upcoming pip assessment and tribunal for e.sa. xx

[Mandypandy1969 in reply to rosewine]

My back is the worst but get it on my eyelids, face. forehead. xx

[rosewine in reply to Mandypandy1969]

Mine is the front of my my thighs today as there has been a change in temperature such strange bodies we have.x

[Mandypandy1969 in reply to rosewine]

I will ask g.p. about these patches as it keeps flaring up, mainly if I do something in the bungalow or garden. xx

[Peace2014]

Sending you hugs. I dread changes in weather. Although I still have had my other usual symptoms with the good weather i have been virtually pain free. The drop in temperature temperature has resulted in all the pain flooding back. I feel as if I am in a pressurized suit walking on the moon like you today I am lifeless. I find a warm bath helps to get the muscles to relax.

[Mandypandy1969 in reply to Peace2014]

I haven't got a bath lol. I feel lifeless and just want to sleep. xx

[Mackembabe]

Yes I do think we are affected by the weather and when the season changes we are like a barometer always no by our pain levels that is it changing.

Hope you feel better soon Love & Hugs Xx

[Mandypandy1969 in reply to Mackembabe]

Thankyou. xx

[YASMINTINA FMA UK Volunteer]

Hi there sorry you are struggling I think we the extreme temperature s a lot of us have struggled, I thought I would feel better but it made me feel worse , we have rain here today in Suffolk we sure need it. Try and rest. I know sometimes we just want to get on and do things but just sets us back really, is there anything you like to do ? ie music if uve an iPad /cd player you can listen too relaxation things, when. I was down loved listening to waterfalls , dolphins. I’ve started to play scrabble with my family on my iPad too. Night time I snuggle up with my favourite tv programmes in my comfy bed . Thinking of you I know what it’s like to have depression /anxiety really not a nice feeling my duloxtene has helped me . Have you a good friend to chat too ?? Xxx

[Mandypandy1969]

I have been playing scrabble funnily enough with my mum outside. only thing that's kept me awake. if I write my fibro diary, my hand and wrist soon ache and I get drowsy which happens when I try and read too. I did a lot of adult colouring last year but haven't done any this year, I get addicted to things but then I just stop. colouring makes my arm and wrist hurt if I do it too long. watching t.v. makes me nod off too. Haven't even got the energy to go out most of the time. so depressing and you feel useless. xx

[Mandypandy1969]

my best friend is good to talk to but she has her problems to and I feel I am always moaning. I have my mum too. it's hard for anyone to understand, a lot of the time I feel drunk/off balance which has stopped me driving most of the time. xx

[Al10]

It's the weather change hey? I've been feeling more rubbish too. 😱Can't keep eyes open, can't sleep hardly either, I know it's a flare coz I feel fluey.🤒 Too tired to figure what doesn't hurt. It'll pass, eventually.😬 Need a more stable climate I think🤔

[Mandypandy1969 in reply to Al10]

yes we do. feeling so depressed at the moment. xx

[Mandypandy1969 in reply to Al10]

no chance of mire stable climate lol. I think waking up to warmth and sunny days just stopping has sent me unto depression. hard to explain how I am feeling. Glad to not be excessively sweating though lol. should be 6 stone by now. xx

[Al10]

Yet again I'm faced with the fact drs don't know how to help us, even the nice ones. How do we move forward when those who help us are baffled? Im trying not to feel hopeless but it's hard when you feel rubbish n dealing with DWP n how they make you feel worthless or worse, is the icing on the cake. Don't have the energy to fight em but I'm not a quitter either. Tribunals are horrid n it seems to be a thing, they won't give their verdict on the day, win or lose. How many times will they force us through the awful appeals process before they decide we are deserving? It seems perpetual. I keep wishing there was another way but right now money is essential to have any life at all. What helps is hearing all the brave people who also won't give up. I reckon DWP have to account for all the money they spend denying benefits so us not taking no for an answer costs them. Surely one day the money bags tax payer is gonna say enough is enough n insist folks are treated decently? So much dosh spent hurting folks instead of helping, it is beyond belief. This system damages people, maybe beyond repair and still folks are oblivious. Sorry for the rant but feeling low today too. Better tomorrow hey?

[Mandypandy1969 in reply to Al10]

I totally agree with everything you have said. sending you hugs as I am down too. pip assessment this coming Wednesday and I will be stressed to the limit. my moods are getting worse, just hope I don't lose my temper when they are grilling me with questions, I will be sweating like heck aswell. xx

[Al10 in reply to Mandypandy1969]

Hope pip goes well x

[Mandypandy1969]

it was awful. feel exhausted and a bad headache. fatigue is phenomenal along with aching and soreness. felt totally on trial. got to wait 4-6 weeks to hear. not hopeful. I was fatigued and struggled/got annoyed answering questions. my friend intervened a couple or 3 times as just couldn't think. xx