Partner Support - Coming Off Of Pregablin

[Jimbooooo]

Hi all,

I have been reading some of the comments on here about all of your struggles and its heartbreaking hearing about all of your suffering. One thing in common most of the posts have is their appreciation for other people taking the time give suggestions to try and help each other cope with this b*****d (Edited by Admin) Fibro which not much seems to be known about.

The reason I am posting is that my fiance has Fibro and has been on a multitude of drugs building up to her being prescribed Pregablin. She and her pain doc have decided to take her off of it because thankfuly she is doing fantastically 😊 which is amazing as she has been suffering for about 5/6 years with head/face/hands and feet Fibro pain, (bad) tingling and burning sensations. She has started to decrease her dosage from this Monday just gone, I couldnt tell you by how much but its a very small amount and she is absolutely miserable! she is hot, then cold, then hot, then cold again, she is having real trouble functioning, Im likely to start driving her to where she needs to go until this (HOPEFULY) passes because I worry about her being on the road now. I have never seen her like it and it seems like theres nothing I can do to help apart from cook, rub her feet and try and do all the mundane boring house***t that needs to be done just so she doesnt have to do it. Who knows, mayde doing all the mundane life stuff is what she needs to keeo her mind off of what she is going through?

I was wondering whether there is anybody on here who might be able to suggest what I can do to help as a partner of someome who is going through what seems like hell whilst coming off of this Pregablin drug?

Thank you in advance.

I truly hope all of you suffering with Fibro are able to live a pain free life once again and very very soon x x

[Sillysausage234]

Hi Jim I’m on pregablin 600mg a day the max daily dose in the uk and all’s I can say is I don’t feel it does much but if I don’t take it I’m in serious trouble not so much pain wise but anxiety/depression.

[Hidden]

Sounds as though you are doing all the right things and can't add anything else other than to keep hydrated and encourage her to drink plenty of water..

Excellent you are both being sensible and reducing dosage slowly something I didn't do ...

Very best wishes.

Carol.

[Bananas5]

Always so good to hear of supportive partner prepared to help so much.

Coming off pregabaalin has to be done slower than slow.

Check with her how much she has reduced...it is likely to be too much.

The tiniest amount over a week or 2 and if that's OK then another tiny amount.

See if you can find out then we can see if it is withdrawal.

x

[hen-house]

Hi I've just been given the same drug by the pain clinic and I must say I haven't yet started taking it as I had read so much about it ! I do want to say by the sounds of it you are a very caring partner and your support in any shape or form is exactly what she needs - and if only my husband was in any way as caring! Your emotional support and knowing your on the journey with her is an amazing start! Have you tried the magnesium bath salts at all? Hats off to you for being so caring and supportive! Take care

[Hazel_Angelstar Administrator FMA UK Staff]

hi Jimboooo

Welcome to the FMAUK Community ! Which I hope you will find is a helpful and supportive place to be ! There's lots of posts to read and many lovely m embers to talk to about Fibro.

If you have not already done so, please take a look at the FMA UK website fmauk.org where you will find much more information, plus the opportunity to request a patient information pack or health professionals pack.

As a newbie, please can I mention that members prefer to answer posts that are locked to this community only. If you wish to do this, here's a link that explains how to do it;

healthunlocked.com/fibromya...

regarding pregabalin withdrawal - i recently reduced my dose ... and the withdrawal symptoms can make you feel really awful, as your poor fiancee has found out. thankfully - they will settle down again once the drug is out her system. Its good that she is doing so well, and hopefully this will contiinue - however, something to bear in mind is that maybe she was doing so well because the pregabalin was working for her ..... so she may find that she still requires a lower maintenance dose (this is what happened with me, which is why i'm mentioning it).

I hope you enjoy being part of our community

Hazel

on behalf of FMA UK Admin xxx

[Mandypandy1969]

Why is your partner coming off the medication if it was helping her so much? xx

[Hidden]

Hi hun- it sounds like she might have gone to fast on her reducing, no law against upping the dose a little if she has,, her gp should have given her guidance on a suitable decrease , maybe ask to see the practice nurse and talk it over with you OH and nurse. What dosage was she originally on? I get cross about people not getting help to stop withdrawal, when I was a nurse we had patients evry night with alcohol abuse or just blind drunk who were given Librium via a drip whilst they "dettoxed" Same should apply to people who havnt abused their body really.