Vitamin D

[MADMUMOFSIX]

Hello again can anyone tell me if everyone with fibromyalgia has a low vitamin D level I know it's caused through lack of sunlight but I just wondered if everyone with Fibromyalgia has it?

[bantam12]

Most people in the uk will be low on vitd, fibro or not.

[Sway]

It's very common to find those who suffer with fibromyalgia have vitimin deficiency and vit D deficiency is one of those that seems to be mention most frequently. I have both and also have low folate levels so take folic acid. I find using both a supplement and a light box works most effectively. Hope that's helpful, I use a Philips golite blu as it's potable and programmable, I picked it up on eBay.

[desquinn Partner Volunteer FMAUK Trustee]

no correlation between vitamin d and fibro. Prevalence of fibro in spain, nigeria, and australia for example are just as high as the uk.

[MADMUMOFSIX in reply to desquinn]

I meant more along the lines of fibromyalgia stopping the body absorbing vitamin D

[desquinn Partner Volunteer FMAUK Trustee in reply to MADMUMOFSIX]

no correlation that I am aware of. It would have turned up in vitamin d levels in the countries above.

[Cherylvit]

I was diagnosed with fibromyalgia and CFS in 94 and never had vit.D deficiency until after I had thyroid cancer in 05 and had a total thyroidectomy. I was in my early 30’s when I was diagnosed so it may be but I was under the understanding that it had more to do with the thyroidectomy.

[TeeDee63]

Sorry for butting in on this conversation, but I’m wondering why Ajay575 says we need to avoid anaemia? Only reason I ask Ajay is because I’ve had iron deficiency problems going back to my childhood and was on infusion drip many times as my body couldn’t absorb the tablets. I was diagnosed fibromyalgia last year at the age of 53, is there a link?

Many thanks Tee x

[Kazhc in reply to TeeDee63]

Interestingly enough I’ve had anaemia most of my life too. Diagnosed with fibro 3 years ago.

[bantam12]

My vitd level was 12 which is severe deficiency but I didn't have any symptoms, i can't tolerate supplements so my level in the summer hovers around 30 which is still deficient.

[bantam12]

Vitd deficiency doesn't cause anemia.

[bantam12]

Are you confusing iron with calcium ? Vitd and calcium are connected but vitd and iron are not.

[bantam12]

Vitd doesn't cause anemia but it can be a consequence although not scientifically proved. Vitd does control calcium so anyone taking supplements must have calcium level tested as high calcium can be serious.

[Hazel_Angelstar Administrator FMA UK Staff in reply to bantam12]

and if you are on Vit D & calcium combined medication .... you can end up with high calcium levels as a result (happened to me). so be careful too if you take a combined vit d/calcium supplement; especailly if over the counter and not prescribed x

[bantam12 in reply to Hazel_Angelstar]

I knòw that but it seems most people taking vitd, especially mega doses are unaware of the potential problems.

I also had hypercalcemia but due to a parathyroid tumour.

[clifetta]

10 years ago my gp decided to test my vitamin d levels.I laughed my head off as I am out in my garden at least 10 hours a day every day in the Summer so knew I was getting plenty of sunshine. I was shocked to discover my d levels were very low and have been on a supplement ever since. My doctor said that a lot of people with fibromyalgia just dont process vitamin d properly so yes there is a connection.

[Hidden]

Yep I have it and now take Vitamin d capsules

[seren1970]

I have low vitamin d the doc has given me tablets x