Hello: Hi there! My rheumatologist... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hello

tinyblonde profile image
12 Replies

Hi there! My rheumatologist suggested having a look online for info/support groups/etc. in regards to fibromyalgia (I have about 50 other problems but fibro just has a way of being that obnoxious 'me me me!' condition) so I thought I would come and say hey :)

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tinyblonde profile image
tinyblonde
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12 Replies
Jenny57 profile image
Jenny57

Hello and welcome tinyblonde... I'm sure other folks will be along sometime soon. Personally, have just returned from my youngest daughters who was born on St. Patricks Day in 1992, so I'm full of Guiness and good cheer at present!

cespinosa profile image
cespinosa

Hi tinyblonde,welcome to the forum.it can be quite on the weekends here but this is a great forum for information and a bit of fun too. the administration staff is great have a question just ask! Take care. Nite nite🌜. Chris x

Bobby3 profile image
Bobby3

Welcome and yes Fibromyalgia has a way of pushing to the front. I’m new here to but I think most people on here have a lot more than just Fibromyalgia I know I do.

dannyxox profile image
dannyxox

Hi and welcome tiny xx

skit profile image
skit

Welcome to the friendly and informative Fibro forum. Agree with other posts people ask questions and moderators or others give answers/links. Regarding support groups.....

fmauk.org is our parent site.On there you can find a support group you wish to attend and make connections. Personally going to a group saved me from becoming a recluse.

Also on the main site are items of merchandise that you can buy to raise awareness. Fmauk has available booklets on Fibro which are great for family/friends to read to help them understand this condition. Please post how you progress

tinyblonde profile image
tinyblonde in reply to skit

thank you! i think i'll definitely look into a support group!

skit profile image
skit

oh nearly forgot(not suprising with Fibro fog)

2 ways to go with Fibro ..it can rule you or you rule it. Everyday you decide.

Hi tinyblonde

Welcome. ind my asking you when your fibro started, what meds u take or have taken. Just asking out of interest as other people are finding certain links with certain drugs causing fibro and according to my contacts in the neuro/medical profession fibro is being reviewed. Jeremy Hunt is concerned about the type of drugs being prescribed for fibro et al.

tinyblonde profile image
tinyblonde in reply to applesandoranges21

hi, i've had fibro for a few years but its gotten worse the past year. most of my meds aren't for fibro but for problems in my spine etc. so i have a mix of opioids, nortriptyline, gabapentin for the main part and CBD oil to use during working hours/travel days as i can't drive or work as efficiently on opioids. this year all ym doctors are finally trying to use each others notes so they can find an appropriate treatment plan!

GMTE profile image
GMTE

Hi tinyblonde

can i ask if you feel the cbd oil is helpful? i've heard mixd things

jebus3rd profile image
jebus3rd in reply to GMTE

Also curious about this, have some in the cupboard but not tried at length

tinyblonde profile image
tinyblonde in reply to GMTE

For me, it really isn't the miracle some people claim it to be. It helps a bit to dull the pain enough until I can get home, relax and take my usual meds. I do know someone who finds it really helpful in getting through the working day, so I really think it depends on each individual and is worth a try!

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