Fibromyalgia Action UK
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Bad GP

Told by my GP this week i dont have FM as it only exists when peoplebwant to claim sick benifit may be the hospital got it wrong

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The ignorance of some GP's never fails to astound me. My old GP who diagnosed my fibro confirmed by several other medical people was the one who actually told me it was best to give up my job! I don't think the Pain specialist would have agreed with your GP either. So many of us on the forum had good jobs before fibro struck and no one in their right mind would want to give up that to go in benefits

There seems to still be far more ignorance about fibro in this country than abroad. I do hope it is possible for you to find a more understanding GP.x

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Hi Rose--They are pretty ignorant here in U.S too-Thats where Im at--Some are,some aren't--That's what makes it hard--you get mixed messages--You feel heard and understood and then you don't--I have to say the ones who believe in it are really spot on identifying it etc--and it is such a relief when you get your initial dx from one like that--"Im not crazy afterall" It is getting a little easier with getting financial help ie disability for it here--But you have to itemize each symptom and how it has impacted your health and life and run your ass off seeing Drs ,getting documentation etc--It helps to have s doctor who will back you up--We are almost always turned down first and even second application--so you must see an attorney--of course than they can cash in too because they take a fourth of your back pay and plus by then you have done all the nasty footwork and you just hand your paperwork over--I remember thinking well that's ok and when I actually had to hand over thousands of dollars it sucked-BUT he went to court for me etc --and then you usually win--so its kind of a money game here--and stressful for the sick applicant..Took me almost 2 years so I handed that attorney a nice chunk of change--Just a little rant about how it works here as far as Drs and ---DO NOT GIVE UP--they try you by fire but if you want it and need it--buck up and stay on it-- You are sick you deserve it!! Fight for your life people--Have a nice weeknd my friends--Mmet

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Unbelievable!

Firstly, I'd write a complaint to the practice manager! How dare they. Secondly, if you go on the FMA UK website, you can request them to send you GP an information pack.

It sounds like they need some training.

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Ive had FM for 4 years now still working i was'nt asking to be signed off sick only to be reffered to musculoskeletal to get help with my condition but was refused

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Is there a different doctor you could see in the practice? If not, could you move to another practice? You clearly need to find a doctor who will take you seriously. You have every right to be referred to a specialist for help so please find a GP who will help you with this.

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Definitely try and see another Dr, have you been diagnosed with fibro by a Dr or did you suggest it, you have a right to be referred to a rheumatologist, who usually diagnoses fibro, By the way dont know if you can get disability money for fibro anyway. As , Jurph says get a fibro pack. Sent to your Dr it sounds as if he has a lot to learn, and it's anonymous , don't give up, take care

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Good evening Andy03 may I wish you a warm welcome to our group.

You may like to lock your post to keep what you post private to this community only. If you do this link will show you how to lock it.

healthunlocked.com/fibromya...

I am so sorry you had such a negative experience with your GP it maybe a good idea if you could speak to a different doctor at your surgery.

You may find taking a look at our sister website helpful it is full of great information.

fmauk.org

Please try not to be too upset over this doctors ignorance there are some really understanding GP's out there xx

Momo

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OMG! That is so out of order you poor thing,that must have made you feel awful,i hope you stood up to the dr,yes they may have certain authorities but dont have any right to talk to you like that. Change dr! Im so cross that he said that to you 👺. What is wrong with everyone. Ignorance as Rosewine says.x

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My Neurologist is convinced it is a disorder of the central nervous system xx

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I think he may be right!

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You may like to visit the FMAUK website and ask them to kindly send a medical pack to the practice and you GP. Link below;

fmauk.org/information-packs...

Hope this helps

Emma :)

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That is shocking 😡

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I have fibromyalgia and I don’t claim any benefits for it so that’s not true at all!

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My GP said Fibro was a label applied when drs were too lazy to carry on looking for what's actually wrong. Before that opinion, he said it was all in the mind and was unwilling to get involved in the delusion. Disbelief is an outdated stance. Researchers have proved Fibro is real. We are the heartsink patients. Our GP's groan (hopefully in private) when they realise it's us. They can't fix us. We are resistant. If they find something that helps, it is always short lived before we are back, complaining once more. Drs don't understand the cause, so it is all about masking symptoms. The trouble is, it is through symptoms that our bodies communicate with us. Something is driving our condition. Until we address this, I fear we will keep getting more symptoms. And until Drs understand the cause, they will find Fibro patients unrewarding and a challenge.

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Hi Al10, I have not heard any groans, but this week noticed a five minute appointment was reduced to 3 mins. The receptionist even said that it was short and sweet. 😃

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Agree with all this. I've given up going to my GPs as I see their faces drop when I mention fibromyalgia (although I'm yet to have a formal diagnosis - it's only been a possible from a rheumy). One actually said 'we can't do anything for you but give you painkillers'.

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That's what I was told too 👎

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I am disgusted by your Drs remarks. It shows he doesn't keep up with the medical authorities. It was declared the end of 2017 that Fibromyalgia has been recognised as a long standing form of rheumatism and has been stated to not be able to be cured. It is recognised by the benefits people as a lifelong medical problem so why does your GP want to contradict them. Loads of research is going on about it. Do an internet search and you will be surprised what you learn about it. In your mind my eye. What a Wally to call himself a Doctor. You find another GP who is up with all the latest research and Social Security rules. All the best.

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Who declared it as a form of rheumatism, do you have a link?

I didn't know but am glad as it makes sense.

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Some years back it was called fibrositis, many,many people had this condition,who worked because really there was no other option then and got on with it with the help of codiene bought from the chemists. Hence some in medical profession still think this could be how many of today fibromyalgia patients could manage. There is also within that circle a thinking that it's the many different drugs given to these patients that in fact makes their conditions worse than it needs to be and if their mindset was different they also could carry on normal life, working,social life,family life etc. Unfortunately it is one condition that can and is faked and used as an excuse by many,which is so detrimental to those truly chronically unwell with it. The other is the bad back syndrome which again penalises those who suffer badly with real spinal issues.

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Interested to read your comments, in USA news articles reported Fibromyalgia to be ' now considered as a lifelong central nervous system disorder' back in 2015.

I've not read any research in the UK to say it is a form of rheumatism........?

Please provide links to support this or send via private message

Many Thanks

Emma 🙂

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I totally understand trying this get treatment or understanding, it's shocking! I have had numerous incidences that have left me in tears 😭 It was only last week I was telling my GP that my son had tried to kill himself and was suffering psychosis with delusions, he said the same it's the benefits system that's the cause for these youngsters today it's too easy to get benefits you see, I should've known better than to confide in him. PS don't give up asking for treatment if your GP isn't willing to treat you change doctors it can't be any worse.

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If this doesn’t exist it does a very good job of pretending it does

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You go to the doctor about a medical condition and he's passing judgement on you about benefits. Since when has he been moonlighting for the DWP?

The bigger picture here is how the government and media have managed to convince people that claiming a benefit equals being a cheat. It's further empowered them to say it out loud, so it's not just a privately held 'belief'.

If your doctor is so sure of himself, why doesn't he report all the doctors who diagnose and treat this condition, just because want unwarranted salaries???

Or ask him why he takes his huge salary, only to spout tosh???

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