Body jumping and twitching: Hi. I have... - Fibromyalgia Acti...

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Body jumping and twitching

Kcnbobs1 profile image
31 Replies

Hi. I have restless legs and its really severe. When i do manage to stop for couple of minuites my whole body starts jumping and twitching and the pain is horrendous. I suffer with agraphobia so this doesnt help my anxiety. My gp has just told me to stretch more how this will help i dont know. Anyone any idea what i need to do next. Was thinking of talking to a different gp. Thankyou for your time.

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Kcnbobs1 profile image
Kcnbobs1
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31 Replies
Kcnbobs1 profile image
Kcnbobs1

I am also allergic to morphine

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

You may find it useful to speak to your gp about medication for restless legs if it is so severe.

Xxx

Kcnbobs1 profile image
Kcnbobs1 in reply to Hazel_Angelstar

Im on rapinarol for legs and it doesnt work at all.

Kcnbobs1 profile image
Kcnbobs1 in reply to Kcnbobs1

Xxx

ruthmel1 profile image
ruthmel1 in reply to Kcnbobs1

I take Pramipaxole and it works well. ask your G.P

Mumbev60 profile image
Mumbev60 in reply to Hazel_Angelstar

Yes I get these in droves everyday. Makes you feel stupid in front of people.

Kcnbobs1 profile image
Kcnbobs1 in reply to Mumbev60

Yeah thats how i feel. Im just waiting for a gp home visit ive had enough of them messing me about over phone need to speak to them face to face. Im agraphobic so dont go out but this is one of the reasons why i dont go out i feel stupid when im throwing food or a brew all over myself. Or dropping things for no reason. X

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

If it doesn't help ... there are other similar ones that your gp could try.

Kcnbobs1 profile image
Kcnbobs1

Im going to ring gp tommorrow. I just hope its the gp i normally see because it was a different gp that told me to stretch more. Its the pain of the jumping and twitching that hurts so much which makes me move my legs more just to stop the jumping its driving me mad. Thankyou for your help.xx

redmaple-5 profile image
redmaple-5 in reply to Kcnbobs1

Hi, Have you cut out caffeine in the evening? I found it helpful. Also ask your GP to check vitamin levels. 😊

RCooper profile image
RCooper in reply to Kcnbobs1

I have cut caffeine out too (I have 1 cup of caffeinated tea in the morning after this I have decafe) & found it really helps. I also found Epsom salts in my bath followed by Tramadol & guided meditation also helped a lot. Xxx

Kcnbobs1 profile image
Kcnbobs1

My vitamin d is really low because i dont go out i also have my curtains closed all the time. I am on vitamin supplement. And i only drink water. Thankyou.xx

Kcnbobs1 profile image
Kcnbobs1

I dont sleep much anyway so i know how you feel. Im on lots of painkillers and they dont help me at all. Thankyou.xx

madametobacco49 profile image
madametobacco49

Oh I have that--It drives me nuts--I take .5 clonzapam prn for it--MmeT

Ctw63 profile image
Ctw63

My mum in law suffered with this but found iron helped a lot. She took it in liquid form with pure orange juice. It's worth a try

Kcnbobs1 profile image
Kcnbobs1

Thankyou all for your help. Spoke to gp this morning and shes prescribed a muscle relaxant and said to try for a couple of weeks see if this helps. So fingers crossed.x

pudofmylife profile image
pudofmylife in reply to Kcnbobs1

Good luck, hope that helps. I take a muscle relaxant every day and that doesn't help my restless legs. As mentioned above, I take an over the counter pill. You need to let your doctor know of any meds you take over the counter as well as prescribed in case would have an affect.

Jenonnet profile image
Jenonnet

So pleased to hear you've got a different medication from your doc.

I on Pregabalin for my fibromyalgia and have found that since I've been on it my RLS has been a lot less.

Please let us know how you get on with the muscle relaxant. Gentle hugs. ((💕))

Shirleymac66 profile image
Shirleymac66

I was put on pramipexole works great for my restless legs been on it 3 years

ruthmel1 profile image
ruthmel1 in reply to Shirleymac66

me too

Alyson66 profile image
Alyson66 in reply to ruthmel1

Be careful of the augmentation,it's hell

Kcnbobs1 profile image
Kcnbobs1 in reply to Alyson66

I think thats what happened. I never want to go through that again i thought i was dying. I wish i had read this before i took the pills. Yeah they stopped my legs moving but hightened the jumping 100% more. Im ringing gp yet again today and hopefully can get something different that doesnt make me feel like s**t.x

itsjustme123 profile image
itsjustme123

Magnesium really helps. The link below has loads of info on which type to get. Good luck and I hope you're feeling better soon.

healthunlocked.com/rlsuk/po......

pudofmylife profile image
pudofmylife

I get them also. If my feet touch each other, it will start the restless legs going. I use an over the counter pill and it helps a lot.

walmart.com/ip/2-Pack-Hylan...

ruthmel1 profile image
ruthmel1

It is common in Fibro. Restless leg syndrome. I have restless back and arms too. My G.P gave me Pramipaxole for it and it really helps. See another G.P and tell them how common it is in Fibro and see if you can get the drug if you wish.

Lulububs profile image
Lulububs

I suffered with this for years , restless leg and arm syndrome and ur gp is right if i do some light exercise and stretching in the day and before i go to bed it does help.

Sometimes it coz ur not using ur muscle enough and it will twitch and restrict.. if u dont use these enough they will waste away and ur have muscle wastage.

So mayb some light stretching may help u.

I started walking to build mine, it also help me sleep. I started just round block now i do about 5-6 mile a day.

I also take glucosamine, msm and coq10 for muscle and cartliage building and inflammation in joints

Kcnbobs1 profile image
Kcnbobs1

Thankyou everyone. Its good to know im not alone. X

BeezyB profile image
BeezyB

I quit using artificial sweetners with aspertane & mine almost completely subsided. Check what your eating!

Mistee71 profile image
Mistee71

I know exactly how you feel. I get that bad I can't feed myself or even have a sip of a drink. I am on clonazepam . Apart from the odd jerk it works great.

Kcnbobs1 profile image
Kcnbobs1

Ive just had total melt down cant stop crying just thrown my tea all over and broke a pot.

Kcnbobs1 profile image
Kcnbobs1

I just had a total melt down and jumping so bad i couldnt stand but its wore off now its just when i stop my legs. Do you think what doc gave me today has had a reaction with my other pills? Im agraphobic and so i cant see my gp he wont do house call. So im stuck just want a doctor to realise how bad it is and help me. Sorry for moaning.x

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