Not sure if this will help anyone but I'm going to post it anyway.
I've suffered with fibromyalgia since my teens, usual aches pains etc. One thing that has troubled me is walking for any length of time, my back becomes extremely painful. I usually have to stop after half an hour or so, stretch, lie down do whatever to ease the pain or try and fight through it.
The last couple of weeks I've been walking on the weekends with my dog, 3 or 4 hours, 10 kms per day. It didn't cross my mind until last week when my partner mentioned that I was walking without stopping, she was right, the usual pain is still there but not the debilitating pain I used to have.
Every morning for the last couple of weeks I have the same breakfast, whether it has helped or its just a coincidence I've no idea but here's a piccy and the ingredients in case anyone wants to give it a try, if it helps great if not its a tasty brekky anyway..
1/4 to 1/2 cup Almond milk
heaped tsp cocoa powder
heaped tsp peanut butter
1/2 tsp tumerric
tsp coconut butter
tsp vanilla essence
tblsp maple syrup
blend all the above
add required spoonfuls of granola to above after blending and pour into a bowl.
4 or 5 brazil nuts ground up
4 or 5 almond nuts ground up
sprinkle the nuts on top along with tsp of celery seeds and tsp of chia seeds.
finally sprinkle some dark chocolate over the top.
You can add fruit, bananas berries etc if you wish.
Change the quantities to suit.
Written by
NickP1
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This looks delicious, funnily enough I have just posted a picture of the Sodium Monosulphite FREE prawns from Sainsbury's that I know for sure as being safe to eat.
However, with reference to your comments on crippling back pain and fibromyalgia... I would have two valid comments.
Firstly Fibromyalgia:
It gets called a syndrome because Drs don't really understand it. It has been observed and named a syndrome because it is an observed collection of symptoms.
More enlightened recent thinking sees Fibromyalgia as being connected to Thyroid endocrine issues. I see it as another precursor facet to the complex issue that is thyroid.
It's a bit like one person viewing a landscape from an ariel view, as opposed to another person viewing it at ground level and another viewing a given focal point on the horizon through a telescope. All 3 viewpoints will be different. Fibromyalgia I think, having a diagnosis for it myself, is similarly viewed. To add to that we all have different genetics... So the possible components become even more magnified. Therefore, having read what I have with regard to the latest thinking on Fibromyalgia, I simply view as an ante chamber to the main event that is, in my case is auto immune Hashimotos Thyroid.
Secondly Back Pain:
No. 1.... I have a seriously compromised gut biome; I have become Coeliac. I have leaky gut; I am presuming you know what a leaky gut is; vitamin and nutritional absorption has for a long time been a real issue for me in the sense that I have not been benefiting from what I have eaten, food or vitamin supplements.
I have suffered from ever increasing and escalating back pain for probably last 10 years.
The pain varies, but at its worst it is focused just at kidney level and even curves around over my right hip around to my front.
I take adrenal support which helps.
Two and half years ago the pain became so bad, I could not get out of bed. I could hardly stand and if I could walk, I could not walk for more than 5 minutes! Increasing the adrenal support was not the answer.
I was supplementing with everything I should have been, but nothing really made much difference. In fact I had been supplementing for years but with no real improvement!!
Considerable sun exposure obviously generating vit D helped me briefly, but did not really did the trick. I still could not stand in a queue, I still could not sit in so many types of chairs, or walk much at all... But things have changed for the better.
Kefir.
*Big doses, of fresh, live Probiotic in the form of coconut water kefir are improving my impaired Gut Biome, which in turn is improving my Autoimmune system as 85% of our Immune System is housed in the gut...
*Apart from Kefir combating the vile creature that is Candida albicans...
*100% avoidance of gluten, wheat, cow dairy, soya above all, in order to cut out inflammatory aggressors...
The Kefir is clearly helping to repair my leaky gut... because I just have to take the smallest doses of Iron, Magnesium, Vit C, Vit B complex Vit D and my body responds almost instantly!
For the first time ever I am responding to vitamin supplements.
Vitamin B12 & the B Complex in total with Iron supplémentation together with my adrenal support and the Kefir is doing wonders for my back.
Repaired gut lining = improved vitamin and nutritional uptake = improved Thyroid performance/replacement Thyroid meds performance.
Apologies for the lengthy reply, but this is my experience, so I thought I'd try to explain the different stages I have been through as step by step.
Hi, thank you for taking the time to write such a detailed reply.
I can remember the first time I visited the docs in my teens with pain and being told it was all in my head. But then again he was also the guy who told my mum she had asthma, and wouldn't believe her when she told him she had two false teeth lodged in her left lung which she had swallowed years before. Hospital found them 25 years later whilst doing an endoscopy. She died a couple of years after age 58 when the medical profession messed up her medication.
Seems I've had fibromyalgia for the last 30 odd years, including
"The pain varies, but at its worst it is focused just at kidney level and even curves around over my right hip around to my front."
Exactly the same, right side. Used to drive the car with my elbow jammed as hard as i could in my side to ease the pain. Its not as acute as it was but its always there..
I've stopped taking pain killers as they don't really do that much, just take the edge off it. Tramadol was the last, but that stuff is evil.
I used to drink Kafir when living in Cyprus and Serbia. At the time you couldn't get it in the UK. I have some in the fridge bought from the local Polish shop...
Ive tried to use pain to my advantage, its given me tenacity. I've had a pretty interesting life so far, I don't think I would have without that tenacity without the will to push through something no matter what.
Argghhh, I am so sorry to hear about you Mother's tragic experience. So typical of the way people in medical circles don't listen to their patients. They think we have no valued input because we are regarded as a mere specimen under observation. The extreme arrogance of these ignorant self satisfied people is quite astounding! As Shakespeare said 'their name is Legion's, in other words there are so many of them, they give the good guys a bad name!
However,
Please have faith in the Kefir.
I have only been on it since the 23 Nov. My improvements are quite astounding and some very subtle.
In a way, the sum of the total amount of improvements demonstrates to me just how ill I have become over such a long protracted space of time. I am pretty amazed. Last November I had become so very ill I could no longer eat! I was reacting to everything. Even a glass of water was giving me a reaction! Had I not started to make my own Kefir I seriously don't know where I would be if at all!
Like you, it feels like a lifetime.
I was diagnosed with IBS - that "plug it all", at 17...when really it was already the beginning of wheat and Gluten intolerance. Now I have graduated to being a Coeliac.
We could discuss for hours, suffice to say, I would please ask you to make your own Kefir!
You mention your dogged tenacity; I too recognise that trait, maybe you are a Cancerian like me!
Use that to focus on Kefir.
I will happily send you some of my grains so that you can both make it.
They are coconut water based Kefir, so that they are easy to deal with as possible.
I insist!
Three years ago this last November a very dear friend died in difficult circumstances. She was the mother of my godson. Sadly the coroner's report revealed pretty much all I had suspected but prior nobody would believe... If I had known and experienced then, what I now know about the seriously beneficial not to say life saving qualities of Kefir, I know she would be alive today.
So for her sake and in her memory I feel compelled to share this with everybody who will listen as a day does not go by that I do not think of her as she too was failed by her Drs.
It's a daily regime, but it pays off.
Private message me if you would like my instructions, with all photos to demonstrate. Brewing your own will always be better than anything you can buy.
Kefir has allowed me to begin to absorb vitamins once more in probably over decades of impaired gut function.
Thank you writing such a detailed post I came across your post by chance this morning. I have suffered from gut related problems for over 4 years now and I am so exhausted with it. I have recently been experiencing pains in my lower back and aching pains in my legs and arms which has been really bad the last two days. I am going back to the doctors today to see if I can get some answers I was putting it down to a trapped nerve in my back but I'm not to sure. I believe if I can heaĺ my gut problems naturally it will improve my life. I would be really interested in your
coconut water kefir as I've come across kefir but don't know much about it. If you could give me some info on it I would be really grateful thanks x
I totally understand your misery. It's terrible to be reduced to such a state.
Modern living is actually is what is most injurious to our health; between antibiotic usage that is never followed up with proper Probiotic 'repair' (eating a mere little yoghurt is like throwing a cup of tea on a raging fire, it's hardly going to put it out now is it!); Low level Heavy metal pollution in the soil our food is grown in; our organophosphate poisoned water table; the horrendous pesticides used on our foods, down to the unnecessary antibacterial hand soaps encouraged in our homes are just a handful of the subtle and not so subtle culprits responsible for our general decline in health.
Most certainly, anything you can do to repair your gut biome will be a Godsend for you. I can swear to that.
Kefir would be an excellent beginning.
At my worst last October I had become so very ill, I was even reacting to just drinking a glass of water!! My abdomen would swell up as though I was under a gluten attack. I knew then that I had to take back control. Visiting the Dr did not help me at that point so I just focused my own efforts on doing something proactive.
Kefir is the right path to beginning to take back control.
I have just heard from a dear friend I sent some of my own Kefir grains. She has been drinking her own Kefir since Christmas and has not only lost 2 kilos without doing anything, but has been surviving being ill with a nasty virus in record time, without enduring a subsequent flare up and NOT needing to increase her steroids which has been unheard of for her in the last two years!! She is over the moon as I am for her!
For being British Cow Dairy intolerant (strangely enough I suffer no adverse effects from semi skimmed, French, Spanish or Italian milk!!) I chose to make coconut water kefir.
Although I ordered my grains over the internet, they were quite 'stressed' when I got them which, though I was warned about meant I was delayed from making a palatable drink by about two weeks until they settled down. Then the instructions that came with them were very unclear. I did my research on the internet to try and make sense of it all as clearly I wanted to do the right thing! So I produced my own crystal clear instructions for myself and anybody else who wanted to share my grains to make like easier.
If you want a fast-track route to producing delicious tasting kefir that resembles Perry, then PM me with your email and I shall attach all the photos I took and the instruction document I wrote to accompany it, as I would be delighted to help and pass on what I have learned as much as the benefits I am experiencing from this wonderful Probiotic Kefir.
Thank you for this facinating recipe, I think I've got all but 2 of the ingredients in stock. Recently bought the Tumeric powder but never got around to sprinkling it on anything.
You are so lucky to be able to walk the distances you state. I am unable to walk to the corner of my street, 4 houses away, a great deal of the time. Your breakfast looks yummy tho.
would love to try it not sure my pallet could cope with it though lol xxx
That looks like something on my bird table- I bet it tastes good though- Ive reverted to porridges that have fruit, there are some ingredients in your brecky that would give me terrible reflux. Yes you are right about the daily stroll it does strengthen your legs, I do hydro once a week and feeel good the next day, I do have to try floor excercise to keep me going- its just there,s too much tennis on Sky and I have a habit of following it**** ANY EXCUSE..
Hi Nick, you say you have suffered from fibromyalgia since your teens. I may be incorrect but I was under the impression that it's linked to low thyroid. I'm on the thyroid forum & have recently recovered significantly after 36 years of misdiagnosis by NHS..... ie I was told it was hypothyroid but following a private blood test in January 2017 I discovered it's Hashimoto's Thyroiditis. Once I knew it was Hashimoto's I took action to do the AIP (auto immune paleo) Diet, making bone broth, going right back to basics; not eating anything my great grandmother wouldn't recognise. I mentioned in a previous reply to you that I discovered my gut/bowel hates all grains. Took me decades to discover that.
Many chronic illnesses are in fact endocrine based - ME, fibro, PTSD etc. Plus I increased my dose of T3 (I only take T3) and watch the state of my adrenal glands closely - emotional/mental stress knocks them out significantly. Good luck
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Saw consultant this morning. Changed my diagnosis from RA to fibromyalgia said it's in my head!
Insomnia inspired me to write my first poem
