Confusion relating pain to fibro or o... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Confusion relating pain to fibro or other disorders

Jambuddy profile image
8 Replies

Hi I'm new to this and don't really know what to expect. Was diagnosed with fibromyalgia 7 years ago. I'm only beginning to get support from gp and others because of other ailments. Have any members been suffering with Tinnitus, MSK problems, Pineal gland cyst, Kidney or bladder or lung disease. I get confused at times with pain in different areas. It's a minefield x

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Jambuddy profile image
Jambuddy
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8 Replies
Dizzytwo profile image
DizzytwoModerator

Hi there, Jambuddy it's nice to meet you and wish you a warm welcome to the group. Your right it is a minefield at times with the symptoms of Fibro.

It's good to know you are getting help from your doctor. So many sadly don't have an understanding gp so that's a good start.

I see you have left your post unlocked. You may like to think about keeping your posts locked so it is only visible only to this community and keeps what you post private.

You may find some helpful information on our other forum fmauk.org it may be worth taking a look.

This link will show you how to lock your post if you wish to do this.

healthunlocked.com/fibromya...

If you need further help please ask any of the admin team. We are always happy to help if we can. Please have a pleasant day xx

Momo

Hhhhuiuikki profile image
Hhhhuiuikki

I think you should ask for a pain clinic referral

Hhhhuiuikki profile image
Hhhhuiuikki in reply to Hhhhuiuikki

And a lidocaine infusion - it will help your symptoms

Jambuddy profile image
Jambuddy in reply to Hhhhuiuikki

Hi What is lidocaine?

Jambuddy profile image
Jambuddy in reply to Hhhhuiuikki

Hi. I have an appointment in March 18. Already on a large prescription and seeing a neurologist who is understanding of this condition and has also diagnosed Functional Tremor Its just hard making sense of it all

DanielleGemma profile image
DanielleGemma

Hey lovely ☺️

I don’t have any of the above apart from fibro but just wanted to say I hope you feel better soon 😘😘

Hhhhuiuikki profile image
Hhhhuiuikki

It is a drug infusion treatment but can be difficult to get because of expense I’m afraid. I had to fight a fair bit to get it but it really helps me.

Jambuddy profile image
Jambuddy in reply to Hhhhuiuikki

Thanks for letting me know. I can relate to having to fight to get what you need. I'll speak to my gp and find out more 😀

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