Will this pain and fatigue ever end? - Fibromyalgia Acti...

Fibromyalgia Action UK

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Will this pain and fatigue ever end?

mcglada0 profile image
23 Replies

I feel really down today. The fatigue episodes seem to be arriving so regularly- after just a few days and I'm wiped out! I have just had the joy of a new baby grandson and yet here I am, lying in bed, feeling ill and racked with pain.

Sorry, I'm just feeling sorry for myself. Any tips on how to avoid these fatigue episodes would be greatly welcome.

I hope everyone is having a reasonable day. X

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mcglada0 profile image
mcglada0
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23 Replies
Maya23 profile image
Maya23

I'm sorry you're having a down day :( Living with Fibromyalgia is difficult and some days just suck. Is there a way you can be kind to yourself today? I mean watching a favourite movie in bed, or a soak in the bath with salts? Take good care of yourself x

mcglada0 profile image
mcglada0 in reply to Maya23

Thanks for your advice. I've dragged myself downstairs and put telly on. Head very sore! X

Mcrlady profile image
Mcrlady

This condition is truly awful.. Reading so many posts and so many people in the same boat.. On a lighter note congratulations on your grandson x

mcglada0 profile image
mcglada0 in reply to Mcrlady

Thank you. He is beautiful and just 👌 perfect. X

Mcrlady profile image
Mcrlady

The temporarily fix I have works but it's illegal in the uk.. 🙄😥

mcglada0 profile image
mcglada0 in reply to Mcrlady

So how do you get it? I'm getting desperate! Is it CDB oil? X

Mcrlady profile image
Mcrlady in reply to mcglada0

I smoke Edited by Admin.. I suffer all day as I won't smoke when child awake. Soon as they in bed I have one/alot.. It relaxes my muscles very well, I'm able to sleep. I no personally a few people on the oil and virtually feel normal 4/7 days a week.. I no smoking is not right but it's a herb and it helps me tremendously. X

mcglada0 profile image
mcglada0 in reply to Mcrlady

I would say - anything that makes us be able to function is worth trying. I just don't know how to access the oil. Hope you are not suffering too much today. X

Mcrlady profile image
Mcrlady in reply to mcglada0

There's some strong cbd oil 1000mg 10% 10ml bottle.. Legal here in EU but $75

mcglada0 profile image
mcglada0 in reply to Mcrlady

Do you know where I would get it from?

Mcrlady profile image
Mcrlady in reply to mcglada0

Can u private message.. I'm getting into trouble now lol

Misspsych profile image
Misspsych in reply to mcglada0

I use oil and use a reputable company. message me for details

mcglada0 profile image
mcglada0 in reply to Misspsych

Thanks. Not sure how I message you privately. X

Misspsych profile image
Misspsych in reply to mcglada0

CLick on my name and then there should be a message button. Are you on a phone or computer? x

mcglada0 profile image
mcglada0 in reply to Misspsych

I'm on a phone. X

Cape_Cod_Sharon profile image
Cape_Cod_Sharon in reply to Mcrlady

Same answer here, lucky for me I am state-side in Massachusetts where it is now legal. Some days it is the only relief I get. Helps with the liver spasms I've been having for the past week. [re: liver disease]

~Sha

mcglada0 profile image
mcglada0

Thank you. It is just so good to have such lively people on this site who understand and care. X

Don't ever apologise for feeling sorry your yourself, we all have days where our pain & fatigue just gets to the point where we fell we have had enough.

I think there is not definitive answer with fibromyalgia except pacing and accepting that perhaps we over exert for one day and will have to sacrifice some of the next day's energy into recovering. Frustrating I know. Congratulations on your baby grandson btw

mcglada0 profile image
mcglada0 in reply to

Thank you. X

I,m wondering if you still work mcglada0 ? I went to my gp a few months ago because I couldnt shake off fatigue, he has started me on SSR,S , maybe tell your gp or see another one if yours isnt very sympathetic-I am always told to learn to pace myself, not to do too much housework the roof wont blow off just becuase there is dust about!

mcglada0 profile image
mcglada0 in reply to

Last time I saw my pain doctor she said that the fatigue was my problem rather than fibro. My legs and buttocks are continually painful! However, tibia the fatigue that's debilitating me. She said that ive to keep appointment with pain management who will refer me to some fatigue place. All this takes months and I really haven't a clue what's happening! Oh well! Thanks for your text and advice. Hope you're having a good day. X

jan1022 profile image
jan1022

unfortunately there seems to be no end to the pain and health only gets worse. I have had this from2005 til now. the older I get the more disabled I get. they just don't seem to know what to do for all this pain. sorry you have this. I am cut off from pretty much everything except doctors. my boyfriend [ living together for 13 years ] has no understanding what i'm going thru and just keeps saying exercise and wants me to be like I used to sure wish I could. I weighed 135 when this started now after years of sterooids i'm 240 hate it and even though I eat healthy I can't lose this fat!!!!!!!!!!!!!!! never been over weight and i'm so depressed I just want the world to stop and let me off. doctors nohelp. if there is anyone out there that can help me please, i'm begging i'm sinking more and more and ready to stop this or................... i'm going to be 65 the 22nd and not sure if I care to see 66. sorry for the downer but I have tried to excerse but i'm limited on what I can do.i eat fresh veggies and fruit. i'm just tired of feeling the pain and knowing that I will continue to get worse. please if you can offer some help please let me know. I was always young for myage and very healthy now I look in the mirror and don't know who it is looking back at me. the depression is getting worse and no one seems to care.. sorry again for the rant but my family are all gone and friends disappeared. so I only have boyfriend and he has no sympathy at all. hope and prayers go out to the rest of you

mcglada0 profile image
mcglada0 in reply to jan1022

I am so so sorry that you are feeling so down. It is difficult to be optimistic in our circumstances but we must never give up hope of feeling a bit better. I have just ordered a small bottle of cbd oil to try out. I'll let you know how it goes! I think you need to print out a good explanation of fibro and insist that your boyfriend reads it. You need support. If he can't give you this, is there a support group in your area? Remember - you have friends here and you can give vent whenever you need to. People here don't judge, they support. I do hope that you feel a little better soon. Xx

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