Raynaud's Syndrome?: Two or three weeks... - Fibromyalgia Acti...

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Raynaud's Syndrome?

FoggyMoggy profile image
13 Replies

Two or three weeks ago I met an old lady in the local gardens and I was talking to her about how cold I was all the time, she saw me in my hat and armlets and thick socks in September and then she looked at my nails and said 'I think you've got Raynaud's because your fingernails are very pale'. I have looked up about Raynaud's before because I get such cold feet but dismissed it because the pictures I've seen don't match mine. I don't think my nails are that pale and I didn't know this was one of the symptoms. She seemed quite adamant though and she did seem knowledgeable as she had got it too and she said how they measure it. My hands don't get as cold as my feet. My feet are always cold but hands feel just normal although I need to wear armlets most of the year to keep my wrists warm. Any advice welcome. Thanks :)

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FoggyMoggy
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13 Replies
DanielleGemma profile image
DanielleGemma

I would definitely book at appointment with your GP to go over it - it is always worth getting anything that you aren't sure about checked out! Better to be safe than sorry and it might also make your life a little easier :) xx

FoggyMoggy profile image
FoggyMoggy in reply to DanielleGemma

Thanks Danielle - I am due to see GP in a couple of weeks anyway so could mention it then along with everything else! xx

Dinkie profile image
Dinkie

Yes, like SweetNSour I got the Raynaulds diagnosis along with the fibro to run alongside the early onset osteoarthritis too - in other words I'm a wreck! As DG says worth checking with the GP.

FoggyMoggy profile image
FoggyMoggy in reply to Dinkie

Thanks Dinkie - I am due to see GP in a couple of weeks anyway so could mention it then!

Dinkie profile image
Dinkie

Particularly if you knock your hands or feet!

Dinkie profile image
Dinkie

And whoopee we have the winter to look forward to :( Must sort out my furry gloves and boots so that I am prepared).

Bobby16 profile image
Bobby16

I have Raynaud's. My fingers go white then blue they go into vasospasm that's when the blood supply slows down or stops. I was only diagnosed 18 months ago when I ended up in hospital on an infusion of iloprost, not nice.mine is triggered all year round by temperature changes and air conditioning in shops. You should go to see your GP if your having problems.people with Raynaud's experience different degrees of vasospasm. Mild to severe.its the micro circulation in play and it can be secondary to other disease process's going on. Some people don't need intervention.

FoggyMoggy profile image
FoggyMoggy in reply to Bobby16

Thanks Bobby, It;s my feet that are affected more but they don't go blue. Probably because I put such thick socks on and always have a water bottle at my feet except in very hot weather. My fingers are mainly covered in winter but I try and go outdoors as little as possible at that time of year. But changes in air temperature really affect me and actually when it goes colder sweat more which is why I'm seeing the doctor. I've no idea how I just turned on italics, lol

Bobby16 profile image
Bobby16 in reply to FoggyMoggy

Well good luck at the Docs

FoggyMoggy profile image
FoggyMoggy in reply to Bobby16

Thanks Bobby!

FoggyMoggy profile image
FoggyMoggy

Thanks Sweet n Sour. Yes they do say the two go together

bluebell99 profile image
bluebell99

Hi

I have had Raynauds for many years, but this year has been the worst so far.

There is medication which opens up the blood vessels and helps, worth seeing the GP and asking.

My rheumatologist said that as long as you don't get skin breaking at the fingertips, ulcers or chilblains then Raynauds will not be causing any long time damage.

When I get it, I sometimes have a cold chin, ear and nose tips too, even when I have been no where near the freezer or in other cold temperatures.

Most odd is having a hot flush with a red face and neck and bloodless fingers! Mad isn't it?

X

FoggyMoggy profile image
FoggyMoggy in reply to bluebell99

Thanks Bluebell. I was never asked or checked for Raynaud's when I was diagnosed with FM 7 years ago. Well, maybe he looked at my fingers and toes and thought I didn't. Can you tell by looking? I sed to get chilblains but I'm not out much now in the cold and constantly need my feet to be warm. Yes, I totally understand about the flushed face! Sometimes my legs are sweating in bed and my feet freezing (although the sweating also has nothing to do with being warm either!) x

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