Next B12 injection.: Good morning... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,347 members66,394 posts

Next B12 injection.

Golfer15 profile image
14 Replies

Good morning everyone hope you are all ok. I've just been to the doctors this morning to have my next B12 injection. No change yet, I was expecting to come skipping out of docs but I have got to give it a few days. I've made an appointment with my GP for a couple of weeks time. The nurse does the injection and she suggested I see the GP to discuss whether he wants me to carry on with these injections. I think it would be good to carry on with this. What do other people do. Do these carry on for life. I wanted to discuss with the GP if there is any other reason why I'm so tired, with no energy all the time. I know that fatigue is a symptom of fibro and there is a link with CFS but what do others think about the fatigue.

I walked to the docs and back so I'm tired now and just sat having a coffee with my feet up.

Take care.

David

Written by
Golfer15 profile image
Golfer15
To view profiles and participate in discussions please or .
Read more about...
14 Replies
DanielleGemma profile image
DanielleGemma

Hey David,

You make sure that you keep relaxing :)

I am not sure regarding the above; as I am currently trying to get blood tests done to test for deficiencies that might explain my tiredness! If you feel like these injections benefit you than make sure you tell your doctor just that 💖💕

Hi David hope fully you'll feel some benefit soon I suppose it depends how low your be12 was/is.I used to have iron injections and if my iron was very low it could take a while to raise it.hope you feel some benefit soon x

Hi David, in a few days you will be skipping. As for the fatigue, all you can do is pace and relax, you need to find a happy medium, that suits you. Once everything else has been ruled out. Take care. Enjoy your day. X

Hi Golfer15 - I have b12 6 monthly it takes about 48 hours to kick in, you should feel a surge of energy by wed.thursd if the nurse will keep giving you this then by all means accept it, I find it lifts the fatigue and as long as you dont over do it, it should last about 3-4 months

Golfer15 profile image
Golfer15 in reply to

Thanks, so I cant wait for this 'surge' of energy on Wednesday or Thursday. Better not tell my wife otherwise she will expect all the housework done. LOL

That sounds good I want some :0)

Abbabug profile image
Abbabug

Hello David, my first reply☺️

My name is Cheryl. I get B12 injections for life ( honest that's what the prescription said) I have to tell you they take a while. I was glad to be getting them at home though husband gives them to me. I have 1 every 2 weeks. Because I had no b12, yes zero and my cells were size of quarters that was when the doctor realized I was no longer able to absorb it. I had to go to a oncology hematologist where I was also diagnosed with pernicious anemia.

I was on injection for 7 days. Then 1 every 3 days then 2 x a week. To say I was fatigued is an understatement

The B12 does take a while especially if your counts were low. Once they build up you will notice a difference. Fibromyalgia was diagnosed 15 years ago . 10 years ago pancreatic cancer. April 21 - 2016 I lost my job and applied for fmla. My job required me to be there every day and I was on intermittent fmla due to my vicious migraines. I'm on my last treatment for Botox this round. It's 36 injections in a pattern across the forehead under hairline around to my neck up the other side back to middle forehead. I get a series of 3 treatments 12 weeks apart. I have had 3 sets of 3 and have gone from 3 migraines a week to 1 sometimes 2 but they last 24-36 hours. My pain level is a 5 most days but I push to walk swim every am then work in my gardens

Today I'm taking a nap. I have insomnia that precedes my migraines so I've not been to bed yet just took some breakthrough abortive med muscle relaxer now dark room ready to pray to get some much needed sleep.

Stay with the B12, magnesium helps and D3. Also take an Epsom salt bath daily it removes the toxins in your muscles. I can't tolerate any pain medication unless it's IV so I take 800 ibprofrin. However that stopping as my esophagus is now really bad due to the Whipple procedure I had for cancer. It's the most invasive surgery one can have . No gallbladder, pylorus, 65 % of pancreas, 1/3 stomach , part of small intestines 16 weeks in intensive care rehab to walk muscles have continued to atrophy and nerves are on fire. But I am blessed 10 years cancer free! Most live longest 5 years after treatment ( the surgery and treatment ) in 10 years. The only thing that really bothers me with the fibro and CFS is the pain and fatigue. But a positive attitude is # 1 to feeling better. I go to Mayo Clinic because I had too many physicians that were not easy to work with lots of mess call me in 2 weeks kind of thing I have a great team some of the best neurologists in the country. My lead dr. Is the key that unlocked much of my non quality of life that is turning around with the help of my team of 6 physicians

Look up Mayo Clinic pain management it's a 3 week program no mess! Good bless you keep up with your b12.

Have a sunshiny kind of day. Keep busy with things you enjoy always. Build your pain tolerance through walking even in the rain 1 mile to n from 2 miles total took me a year and 3 months but I'm finding endurance is about to let me go another 1/4 mile here soon

Abbabug profile image
Abbabug

April 21 , 2016. Approved for disability July but you have to be unable to work for 6 months before first check ( no attorney) A LOT IF Work! But I would work on it slowly daily until everything was answered.

I am gonna ask my doc to check my vit b

Golfer15 profile image
Golfer15 in reply to

Good idea to get it checked. When I last saw my gp I had to ask if I could have a blood test. He should have suggested it, but we should insist if we want something.

Good luck

in reply to Golfer15

Yes we should, it costs money an I notice there not so quick too offer blood tests nowadays. Its bad

Iv been meaning too and I get bad anemia,so I think its worth checking

Golfer15 profile image
Golfer15

If you are like me I forget to ask things when I see the gp. Someone suggested writing things down but that looks a bit sad to get a piece of paper out. I get on well with the gp so we usually have a general chat about fibro and how it is affecting me. I try to see the gp every three or four months. I have so many questions about this fibro. Im going to ask if I can have an anti depressant to help me get through the winter or maybe increase the amitriptyline Im on as I only take 20mg a day and thats not enough to help with the depression but numbs any aches I get.

Take care

David

grandmama16 profile image
grandmama16

I am in your shoes too and a couple of years ago she included in my blood test, Epstein Barr. I had no idea what it is. Suggest that to your Dr. Many people have the antibodies, others' E.B. is dormant. Mine is active and shows no signs of going dormant. It's related to mono but I don't remember having it. Treatment....rest and less stress. I take a multi vit, calcium and magnesium, B12, also 40,000 units of Vit. D once a week by pres. I could go in for B12 shots but just don't want to bother. It's enough to get a few errands done after I've taking Nuvigil, generic, or Provigil. It helps but not alot since I started when I would only take 1/4 a tablet. I take 1/2 twice a day now with pain med and others. I'm 73 but my mom was alot more active at this age. M.A.

You may also like...

Fibro and B12 injections

sleeping. Has anyone had B12 injections to help with the fatigue? I work full-time but am really...

Gosh what next: My B12 problem:

something not right.... I have been taking B12 injections now, for 16 weeks, and I still have...

Are there different strength b12 injections?

Although I've been having b12 injections for two yrs, my symtoms are getting worse, i have terrible...

Is B12 deficiency a symptom of fibomyalgia

Saturday as I am sat watching TV with my family. My question is about B12 being a symptom of fibro....

Injections for osteoarthritis. What timescale?

conditions including fibro and osteo. My rheumi sorted out some steroidal injections to my...