Pip assesment a joke: Got my pip letter... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Pip assesment a joke

Amy65 profile image
18 Replies

Got my pip letter decesion today what a joke 9 points for care even though i was on full care on dla assesor told lots of lies said i didnt need any help with meds even though i cant open them or see them o points mixing with others o when i cant go out alone due to vision loss and mobility budgeting o even though my hubby has to do it reading and complex issues o even though i am reg visualy impaired she had me in tears wouldnt take any of my evidence said she didnt need it what a joke have to ask for mandorety decesion any one else get treated like this from pip

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Amy65 profile image
Amy65
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18 Replies
DanielleGemma profile image
DanielleGemma

Really sorry to hear this hun, I have no experience on PIP but just wanted to say I'm on your side and here if you need me xxx

Amy65 profile image
Amy65 in reply to DanielleGemma

Thankyou just have to wait c what they say just frustrated

DanielleGemma profile image
DanielleGemma in reply to Amy65

Please keep us in the loop xxx

Hartleyhare2 profile image
Hartleyhare2

Sorry to hear this, have no personal experience as dreading swapping from DLA to PiP. I have heard so many stories of people being unfairly marked down. Stay positive and strong you can put Mandatory Consideration in, emphasising evidence. There is over a 50% success rate then at Tribunal stage if necessary another minimum 50% rate. They do this on purpose to grind people down and make them give up. Hang on in there and get what is rightfully yours.

Love n wishes

Patrick x

Mdaisy profile image
Mdaisy

Hi Amy65

So sorry you are going through this, I completely understand how stressful it is claiming benefits.

I wanted to provide you with this link to a helpful post that not only has a number for Fibromyalgia a Action UK's Benefit Adviser but helpful internet links.

healthunlocked.com/fibromya...

As everyone has said we are here to listen and try to help as much as we can... so do keep posting. 🙂

During mandatory reconsideration sometimes for an income they say to apply for JSA, however people worry about then looking like you are fit for work .... The 3D's campaign had a form to claim your disability at the job centre, please see link below.

healthunlocked.com/fibromya...

Do consider speaking with Janet (FMAUK Benefit Adviser) as I am sure she will give you some really good advice 🙂

All the best

Emma 🙂

rosewine profile image
rosewine

So sorry to read your post I am incredulous that you haven't scored at least a few points in those particular areas. I did get what I had hoped for when I changed from DLA to PIP as I was one of the lucky ones but in the areas about medications etc I had expected to score as my husband has to help me with my Tens machine and pain patches as I can't put them on myself in the required back area and other problems and I scored 0. Yet in another area where I didn't expect to get any points she gave me some.

Often when you appeal you are better off getting O points in a section than a few as it then looks as though the assessor hasn't been paying attention or has ignored your evidence. Do appeal and get Janet's or another expert persons help. Good luck let us know how you get in we are rooting for you.x

Amy65 profile image
Amy65

Thank you everyone for ur help and advice I have sent of for a mandatory secession so here's hoping keep yours postedx

cheerichick profile image
cheerichick

The exact same thing happened to a friend of mine. I was there and seen and heard everything but what the sent back was a pack of lies. I couldn't believe what I was reading 0 points at all. It is currently under appeal. I hope you appeal and get citizens advice involved and they will get you a lawyer. Good luck. Fingers crossed. X

Fallabella profile image
Fallabella

Oh no lovie, what a mess up. I sometimes wonder what on earth goes through their minds when they do this to people who clearly need help.

I have been to my PIP f2f a while ago and was treated pretty fairly. Some small things were wrong but I didn't quarrel as it wouldn't have made much difference.

I'm so sorry this has happened to you. Please keep us informed about the mandatory decision lovie.

Sending good luck and hugs xxx

Amy65 profile image
Amy65 in reply to Fallabella

Thankyou

Dizzytwo profile image
DizzytwoModerator

I am so sorry your having to go through all this it can be soul destroying {{hugs}}

I can't add anything to the already great advice you have been given. There is some great advice to check out that our lovely Mdaisy posted I am sure you will find it very helpful xx

Mo

mysmugcat profile image
mysmugcat

So sorry this happened and you have been upset; I would be too. To not be believed etc. Heard another bad experience about PIP at work. Someone's carer was not allowed to assist/ speak for the applicant.

Amy65 profile image
Amy65

Yea I had my hubby with me she kept saying to him I can see when pointed out my hands swollen due to rheaumtoid arthritis and anklossing spondlittis he started to snap back when she reduced me to tears every question was why can't u do it wouldn't wish this on anyone given I was in fulltime work care field till I couldn't work any more was medically retired 2 years ago at 50 it's been hard hugs eberyone

JacquiRo profile image
JacquiRo

Big massive healing hugs to you... hard as it is.. fight back.. I think they just hope we all say okay and go away!

Blessings x

Amy65 profile image
Amy65

Thank you jacqiro appreciate it

twinks profile image
twinks

Phone and ask for copy of medical assessment report, you can then then see exactly what the assessor wrote and then, if you have a appeal, explain how your condition warrants the extra points.

You need to send more medical info copies for mandatory Reconsideration or they'll just be the same points.

Have you looked at the benefits & work site? very helpful

All the best

twinks profile image
twinks

Amy55 you can lock your post if you only want this community to read it

Annmurry profile image
Annmurry

The system gets me very upset. I have zero tolerance for them. The fact is that fibromyalgia can come in different stages. One minute I could be bed bound the next I could be dealing with my pain that day. What right do they have to tell me that I can do something. Fight, fight every step of the way. We don't deserve to be treated like something off their shoe. We are sick. Do you think we'd be fighting if we weren't. So cross :(

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