Need a bit of advice : Hi everyone I... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Need a bit of advice

Bierlein profile image
Bierlein
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Hi everyone I found Friday that I have fibromyalgia is it usual to be so confused 😕over been told I thinking I may have heard him wrong or is that wishful thinking also do I tell work how do I explain it and to my teenage children. I worry I try will take because my husband has crps and they mum has this . Work no I have back problems and a bit of arthritis but that's all know sorry for rambling 😔

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Bierlein profile image
Bierlein
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Bierlein profile image
Bierlein

Also I found out my cousin has fibromyalgia too 😞

DanielleGemma profile image
DanielleGemma

Good Morning Bierlein

I am so sorry to hear about your diagnosis. It can be an extremely confusing time and also provide a little bit of relief that you have an actual recognised diagnosis! For me I struggled to explain it to people but then someone on this portal provided the Spoon Theory link below - it's a brilliant way to help people understand, I advise reading it yourself and then actually acting it out:

butyoudontlooksick.com/arti...

xxx

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

hi,

getting your diagnosis can be a time of very mixed emotions - you are glad to have finally got a diagnosis but also have so many questions.

I would recommend ordering a copy of the FMA UK patient booklet from fmauk.org/resources (you can request a 2nd copy for your cousin also)

If there is a support group in your area, you may find it helpful to go along and talk to others

hazel x

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