I'm so tired.... as it never seems to... - Fibromyalgia Acti...

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I'm so tired.... as it never seems to end.

Ndurance profile image
8 Replies

For the past couple months anxiety and pain has been taking over my body. I rarely sleep I would say about 2 to 5 hours daily sometimes not at all for 2 days straight. I've been having continuous pains from my neck right down to my toes and more so in my hips and knees. I thought maybe it was a flair up from the ongoing stress i have been having at work. I went to my gp and explained to him the pain I was feeling and he requested i go for an xray of my knees and bloods.

My results came back and I have air pockets in my knees. As well as vitamin d deficiency, anemia doctor said my iron is so low he does not understand how I'm still walking around and my folic acid is low. They wanted to send me to the hospital to have a blood transfusion for my iron I declined so he put me on high doses of iron, vitamin d tablets and folic acid.

I'm honestly so tired I'm 32 years old and I honestly feel like a 100 year old because I see 80 year olds in better condition than my self.

Every time i try to over come one thing another thing attacks me. It's like I have no purpose to live an ok life with no pain or no problems. 32 no kids with osteoarthritis of lower spine, fibromyalgia, trochanteric bursitis, gluteal tendonitis, anxiety and depression and now this. What's next? Like seriously I can not deal with any more and feel like I no longer know how to handle this.

I'm still waiting for talk therapy through the nhs, but I honestly dnt understand it's been 12 weeks maybe even 14 and still do not have an appointment as yet.

I drive a manual car but because of my hips and falling over and spraining my ankle a week ago I've had to use uber to and from work which costs me. Work does not offer sick pay so I'm scared to go sick and lose pay as SSP just isn't enough.

I'm just so drained as there never seems to be an easy / realistic option out.

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Ndurance
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8 Replies
cespinosa profile image
cespinosa

Oh dear I can relate to your pain and feel so bad for you.i don't sleep and if I do it's two hours here then an hour there never six to eight!!! Lol.have oa also plus other ailments.i am older than you and I am always sad to hear how young some are.i also like you were so low in vitD,iron,b12 and like you I declined a transfusion. I was so fatigued but couldn't sleep😲 but after awhile I got energy back feeling better still in pain but not unbearably weak. So stick with your vit tablets you should see a difference in a few weeks☺I had to stop driving a manual car just caused pain. Hope things get better for you. Take care. Chris xx

Ndurance profile image
Ndurance in reply to cespinosa

Reading your comment has given me little hope that I could start to feel ok again. And that's how I feel with the iron situation I'm so tired like I could sit here falling asleep off my chair and then from nowhere comes this energy and then I cnt sleep till like 4am and then up at 7am for work on a 13 hour shift.

I push my self so hard because I don't want to become helpless and feel sorry for my self but honestly some days I just feel to quit everything.

TheAuthor profile image
TheAuthor

Hi Ndurance

I am so truly sorry to read this my friend and my heart genuinely goes out to you. Please do not be offended as I have done this out of concern form one fellow sufferer to another, but I have pasted the phone number for the Samaritans below:

The Samaritans UK - Telephone: 116 123 (UK)

if you ever feel the need to talk to somebody I would urge you to ring them my friend and tell them exactly how you are feeling. It may help until you get your appointment come through?

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

Ndurance profile image
Ndurance in reply to TheAuthor

Thank you Ken I will call them today. Maybe talking to some one will help my mindset.

Thanks

TheAuthor profile image
TheAuthor in reply to Ndurance

Good luck my friend and all my hopes and dreams for you. Ken

This is so unfair when you're young. Bad enough for me, never known so much continuous pain, but at least I'm retired.

Please rethink the blood transfusion. I had one years ago after my second child. Should have had one after the first ( tendency to Haemorrhage) didn't and felt unwell for months. Transfusion after the 2nd made me feel so much better, no depression and the fog lifted. Tablets will take a while to work.

I've been trying b-Ribose for fatigue but suspect I'm getting one of the side effects ( I get the side effects of everything )

Only things I find help pain are Salonpas patches, Perskindol gel and magnesium spray daily.

Wishing you well.

Ndurance profile image
Ndurance in reply to

Thanks never heard of then but will Google an alternative. I'm willing to try anything for pain. Just not to feel pain for like 1 day would be great.

Thank you

itgirl87 profile image
itgirl87 in reply to Ndurance

Dear,

I suggest you get your thyroid tested. Your symptoms and vitamin levels suggest there might be a problem there.

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