Help/advice

Hi

I need some advice/help. I was recently referred to a rhumatologist at our local hospital. I had blood tests and various other examinations. I was told I didnt have rheumatism and fro. What I'd told the doctor and with the results from my blood tests the doctor said it's probably fibromylagia. Her reason for this was mainly due to me being treated for a vitamin d deficiency, I had a reading of 9 and should be 40 I think. She said it usually resulted in fibromyligia. Then discharged me, didn't give me any advice on anything . I am in constant pain and have days of sever weakness where I can't get out of bed. Sometimes if it's warm I feel better and able to get about. Other times when it's warm I feel no better.

So is it worth me going to see a specialist? I am happy to go private. Or do I just battle on with the pain and weakness that debilitated me and can mean I can't get out of bed.

I live in West Yorkshire and I started bei g ill just after the sudden deaths of my parents. Until then I worked full time as a prison officer and was very fit and healthy. I have now had to stop working due to my illness.

4 Replies

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  • Hello and Welcome to our lovely forum there are lots of friendly lovely supportive people on the forum and we are here to support you and help you with your posts.

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  • Hi and welcome, it sounds like fybro the feeling good one day and terrible the next, I would ask to be referred to a rheumatologist so you can be sure exactly what is wrong, and get the help you need, didnt your Dr offer any medication to help with the pain? Hope you get some answers soon, good luck

  • Hi Kazza1960

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

    .

    The *Vitamin D Council says:

    *Several studies report that people with fibromyalgia have lower vitamin D levels:

    In the United Kingdom, 43% of females with fibromyalgia had very low vitamin D levels compared to 19% without fibromyalgia.

    In Belfast, Northern Ireland, people with fibromyalgia frequently had low vitamin D levels. The study also linked anxiety and depression to low vitamin D levels.

    However, other studies have different observations:

    In Israel and Brazil, vitamin D levels did not vary in people with or without fibromyalgia. In the same Brazilian study, there was no connection between vitamin D levels and pain intensity.

    In Turkey, neither vitamin D levels nor bone mineral density varied in people with or without fibromyalgia.

    In all of the above studies, vitamin D levels could be the result of disease condition rather than the cause of the disease. Thus, the evidence that vitamin D plays a role in fibromyalgia is weak at best.

    .

    So there is no medical evidence to connect Fibro with Vitamin D deficiency, although the symptoms are pretty similar. I personally went to see a Private Consultant and that is how I got my diagnosis.

    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken

  • Life is too short to lie around feeling awful if your doctor won't help and you can afford to see a rheumatologist privately to get the diagnosis you need, then I would 'bite the bullet' and do it.

    Here's hoping you get the help you need soon, all the best. X

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