I think I have fibromyalgia - Fibromyalgia Acti...

Fibromyalgia Action UK

59,419 members66,472 posts

I think I have fibromyalgia

Linnie1960 profile image
9 Replies

Hi everyone,

So interesting to see all your posts. I have been to the doctors , they tested me for rheumatoid arthritis which thankfully I don't have. However I know I have something, a flare up day today and I'm floored, even the simplest tasks are so difficult. I'm on medication for arthritis and waiting for knee replacements. This pain in my body is terrible , I keep crying and that's not me.

So could you tell me how I get diagnosed. Thank you for listening and all the very best to you all😀x

Written by
Linnie1960 profile image
Linnie1960
To view profiles and participate in discussions please or .
Read more about...
9 Replies
suzey26j profile image
suzey26j

Your doctor should be givan you directions now,,go back and see your doctor ask ihim what do you do now he should be managing you and getting more refurrals for you good luck Suzey X

BlueMermaid3 profile image
BlueMermaid3

Hi Linnie1960

Welcome to our lovely forum :)

If you would like to find out more information about Fibro have a look at our mother site fmauk.org

Unfortunately getting a definitive diagnosis of Fibromyalgia can take many years.

There are lots of other conditions that have the same symptoms, such as Lyme Disease, Lupus & MS. All of these conditions need to be ruled out before you can go any further.

You then need to ask your GP to refer you to see a Rheumatologist. They are the specialists in Fibro.

Good luck. I hope that you are able to get some answers.

Lu x

Administrator

spider555 profile image
spider555

The rheumatologist will use tests and then everything else is excluded. Although the other rheumatologist thought I'd got sjogrens. Who knows?!

Good luck.

Creativeness1 profile image
Creativeness1

Hi Linnie1960 I agree with BlueMermaid3 this can take time I do hope you get the support you need in the mean time.

Good luck my friend

Linnie1960 profile image
Linnie1960

Thank you all so much. I will go back to the doctor, it's been the worst day. Struggled to get dress ed and couldn't hardly bear the clothes on me. Just awful. Hopefully better day tomorrow. I will let you know how I get on at the doctors😘x

Swanky profile image
Swanky

Hi Linnie, My name is Simon if it helps i have RA and have since gained fibro on top my advice for you is to get a second opinion on that as you may have something called palindromic RA which is random and not pain all the time. I have arm in brace because of RA having nerve problems and all sorts keep pushing if you get pain go to docs straight away and keep telling them your symptoms it took me over a year of pain till i did it i wish i did it sooner finally got a diagnoses of ra just waiting to confirm the Fibro

Linnie1960 profile image
Linnie1960

Thank you Simon, these are things I've never heard of. I wont give up now, I've suffered in silence long enough. All the very best to you.

TheAuthor profile image
TheAuthor in reply to Linnie1960

Hi Linnie1960

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

It may help to ask your GP for a referral to Rheumatology as they diagnose most cases of Fibro.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

Swanky profile image
Swanky in reply to Linnie1960

Your welcome x just keep pushing ok as it takes far to long anyway. Anything you can do do to speed up the process is a must ok. Best of luck to you another comfort is knowing your not alone in this try not to think its all in your head ! It is not it is real that was my mistake for many years x hope this helps you some what. X

You may also like...

Think I may have Fibromyalgia

clarification from the medical experts but does these symptoms ring a bell with anyone, thanks in...

Think I might have Fibromyalgia

confirms if this is what you have? Have read about checking pressure pints on body for pain, but is...

Have I got fibromyalgia?

has continued to spread into all limbs. Please can anyone help? Thanks Carol

Could I have Fibromyalgia

of the heel and painful heels. Waiting to see a rheumotologist..have had low back pain which was...

Do I have Fibromyalgia or Osteoarthritis?

pain constantly. Blood tests ruled out Rheumatoid arthritis. One doctor said osteoarthritis and...