Quick note about my daughter and myse... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,432 members66,486 posts

Quick note about my daughter and myself x

carolyn2912 profile image
5 Replies

Quick note about my daughter and myself x

Hi everyone, I just joined, i was told i have restless legs when i was young, and 13yrs ago diagnosed fibromyalgia, primary biliary cirrhosis, raynaud's and lung disease...i get scared now going doctors lol, its just myself and my daughter who is 16 in Aug, its been hard on her, plus she had to cope with mind games from her so called father. People dont realize how it affects those close to you, and stops you making plans, sleeping, forgetting things which i find the hardest along with guilt. Cant get motivated, We are near Brighton hopefully in june so hopefully sea air etc with get me there, but its the winter that kills me, but start for both off us and my baby dogs who have helped but my daughter is a star, and shes been though hell and nearly back again shes starting to like herself again. i just have to now ... thanks carolyn xxx

Written by
carolyn2912 profile image
carolyn2912
To view profiles and participate in discussions please or .
5 Replies
TheAuthor profile image
TheAuthor

Hi carolyn2912

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I am so genuinely sorry to read of your suffering and struggling and I sincerely hope that you can find some resolution and relief to this. Your daughter sounds like a marvel, and I have pasted below a link to the Young Carers UK in case she may be interested?

carers.org/about-us/about-y...

I can relate to what you have said about winter, as I really struggle in the cold myself, as my arthritis is awful from about November through to March, and then my Fibro follows suit.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

angiesmith50 profile image
angiesmith50

Welcome carolyn2912 sorry you have fibromyalgia. Hope you find out group caring and supportive. Take care. Angie xx

carolyn2912 profile image
carolyn2912 in reply to angiesmith50

Thanks Angie xxx

bluebell99 profile image
bluebell99

Welcome to our friendly fibro forum where you can get help, support, advice and understanding, along with a giggle or two to lighten the day.

It sounds as though you have a wonderfully supportive daughter and a fresh start on the south coast will hopefully turn around all the hurt and trouble you have both been through.

Looking forward to seeing you around the forum

Kay

carolyn2912 profile image
carolyn2912 in reply to bluebell99

Thanks Kay

Yes we are both so excited, and all goes though xxx

carolyn

You may also like...

arghhhhhhhh my poor daughter

omg i just found out that my daughter bumped into the father who shunned her and he said dont ever...

A positive note about dla

son and I both get dla, different rates different reasons, so I told my friend to get her husband...

updates on daughter and myself

coping better , Firstly my daughter Ami is doing ok tired but coping she starts her chemo in mid...

my daughter has fibro help!!!!!

Hi all ,my daughter has fibro and is so down .She is 18 and has been admitted to hospital twice in 2

ON A LIGHTER NOTE, MY BARGAIN OF THE DAY

Hi everyone, just a wee note to tell everyone about my bargains today. I woke up exhausted and in a...