Does anyone else get hot flashes when... - Fibromyalgia Acti...

Fibromyalgia Action UK
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Does anyone else get hot flashes when they've reached their limit?


Hi, I'm 19, and I've been ill since 8. When I was 14 I became severe, and since then the way my body seems to tell me that it's had enough and that I've reached my limit by giving me a really uncomfortable hot flash. I also find that the hot weather seems to speed up that process, so I then reach the overheating stage faster than I do in the colder months.

I just really want to know if any one else gets the hot flashes, for the same reason?

28 Replies

I always thought my hot flushes was due to my medication,, sorry I'm no help ,,but could that be the same for you,,suzey X

PugBex in reply to suzey26j

I haven't been given anything for my pain, so it can't be medication. Thank you for the comment though - I appreciate your input :)

Hi PugBex

I am so genuinely sorry to read this my friend and I truly hope that you can find the answers that you are looking for. I do not know if this is the same thing that you are on about, but I get very hot and sweaty when I desperately need a rest. I have pasted a link about Hyperhidrosis below for the NHS Choices cache below:

If these symptoms persist or get any worse it may be best of talk to your doctor just to get other medical conditions ruled out of the equation. I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you


PugBex in reply to TheAuthor

Hi Ken. Thanks for the comment, and for the link :) I don't tend to sweat a lot though - I do sweat, but the feeling is mostly just that I'm super hot and the heat is trapped inside me; I go red in the face, and anyone who touches me says that I'm on fire (this can happen even when I'm outside in the winter - i will strip down to a short sleeved t-shirt because I'm so hot, and everyone else will be shaking because they're freezing and in like 3 layers). This feeling gives me and instant increase in fatigue, and I usually just rest until it goes away, but I find it very difficult to cool down again.

TheAuthor in reply to PugBex

Hi my friend, it is a strange one but then again Fibro is strange? I genuinely hope that you can find the answers that you are looking for, and please take care.


Medication gives you hot flushes sometimes your only young but you have to fight this thing we all have good luck xx

PugBex in reply to Hidden

I haven't been given any medication for my pain, so it's just a symptom :/ Thanks for the comment though :) xx

Hidden in reply to PugBex

I hope you get sorted out and remember once you do get the medication it can be addictive so tread carefully won't you 😎

Yes , i also have these its like your body is so hot you have to leave imediatley , to get out of the situation . its happened to me for yrs even before i was on medication i just thought its my age lol (52) . but its not the same, as when this happens i also feel anxious and know i have get away and sit/ lie down quiet till it passes. I feel for you as your so young to have to deal with this. x

PugBex in reply to mand65

Yeah that sounds pretty similar :/ Thanks for the comment, and I'm sorry you're going through this too x

I do, I start sweating when I have, I've leant to listen to my body and stop as soon as I feel one starting

PugBex in reply to Sharlain

That sounds like it :/ Good to know that I'm not the only one. Thanks for the comment x

I get this too when my body has had enough and it seems to kick off the dizziness that I sometimes have. I have to leave where I am at the time and try to cool off.

PugBex in reply to SheilaA

That sounds like it :/ Good to know that I'm not the only one. Thanks for the comment x

I gather you have ME as you have posted this on the ME forums too.

I'm afraid inability to control your body temperature is just one of the many symptoms of ME.

Although as others say hot flushes can also happen with certain medications, if you also get inexplicably cold or some cold limbs and some hot then that is more than likely related to your ME.

Gentle hugs,

PugBex in reply to ukmsmi4

Well M.E is one of my diagnosises yeah.... That's the trouble when you have more than one condition - you don't always know where it comes from. I just wanted as many answers as possible really, so I posted it everywhere I could.

It's just that there's so much that hasn't been investigated (like most of me considering my symptoms are everywhere), and I find all these things stressful - hot flashes can also be a sign of a hormone inbalance, in which case, there is some treatment for that that could reduce what I'm getting, but the doctors aren't very coperative, so I don't really have access to answers, and therefore just wanted to know if I was the only one who got this.

Thank you for the comment Margaret. I really appreciate your support. Hugs to you too xx

ukmsmi4 in reply to PugBex

Oh I absolutely understand about the other conditions. That's why I saw all your posts, because I'm on about 8 or 9 different HU forums too. Amongst other things I have ME, Fibromyalgia, Restless Leg Syndrome and Functional Neurological Disorder. All pretty draining in their own way.

And sadly we are far from alone. Many people with these sorts of conditions seem to suffer more than one.xx


Haven't been able to pin point anything seems to be as you say that body reached its limit...even if that's at the beginning of a day!!

I get hot flashes periodically but have never connected it with a flare .... however now that you mention it!!

I experience hot flushes daily and (for me) it is down to anxiety and fatique. I went through an early menopause and for years I thought I should contact the Guinness Book of Records as I continued to experience them. Having suffered from extreme anxiety, fatique etc., I now realise they happen when I am very tired and or anxious as my body has 'conditioned' itself to have a hot flush at these times.

PugBex in reply to MollyStark

Hi Molly. Thanks for the comment :) How would you know if the hot flushes were a sign of the early menopause? I did wonder if it was to do with hormones, but the docs have never been very coperative with me, so I've never been able to get any tests done :( I'm sorry that you're still putting up with hot flushes :( Hugs to you xx

MollyStark in reply to PugBex

Thank you pugbex, they are one of the more uncomfortable symptoms. When they first appeared due to menopause they weren't accompanied by the feeling of anxiety, they were simply sudden and intense hot flushes (I believe they are referred to as hot flashes in the States, such a good description I think!) Periods were getting lighter and less frequent too. I went to my gp who did a blood test to check for levels of estrogen and fsh. Years after, I personally believe my mind thought, hey these flushes are a great symptom to manifest when anxious so they have stayed with me all these years later but are accompanied by an anxious feeling. I was in my 30s when I started going through the menopause and now in early 50s. Ask your doctor to do the test or see another gp in the practics if he won't. It would be beneficial to know for certain to rule menopause out or in.

MollyStark in reply to PugBex

I meant to add that I realise you're very young to be experiencing menopause but s friend's sister went through it at 22 - this is rare though. But hormone imbalance could be playing a part so it doesn't hurt to get it checked.

PugBex in reply to MollyStark

Well I am actually on the progestin only pill because every month causes major problems for my body - a get menstral migraines, and for some reason most of my symptoms get worse, and my "flow" was very heavy before, and now it's probably and average persons flow on the pill, which surely wouldn't be possible if I was menopausal?

But yeah - thank you so much for sharing your experience. I will try my best to get it looked into, just in case it is something like that :)

Thank you, hugs to you xxx

HiddenThis reply has been deleted
PugBex in reply to Hidden

Thanks for the comment Epictetus :) It was a different response to what I've already received so I appreciate the different angle!

What you said could be true - I have been told that I am low on Vitamin D, and I've been prescribed 800 UI supplements for it, but every time I take them I feel even more ill and I get really bad guts ache (I also have gut inflamation), and I've told the docs this, but they don't seem to register it, and won't lower the dose or suggest anything else :(

You said yourself that this isn't recognised by the UK's medical profession, so what would your advice be? :/

I was having that last night. I think it's a sign your body is working hard to increase your white blood cell count. Sorry you have to deal with this.

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