App: Hi all Yay just downloaded and... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Aelin profile image
9 Replies

Hi all

Yay just downloaded and am writing this post on the new iPhone app

Happy woman. Even if I am know officially no longer working

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Aelin profile image
Aelin
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9 Replies
rosewine profile image
rosewine

Glad you are App appy😁 Sorry couldn't resist that it is going to be a boon for people with an iPad.

There is a plus to not working as you can pace yourself and physically it makes life not such a struggle. I too was in that situation so have experience of it.x

Aelin profile image
Aelin in reply to rosewine

Thanks Rosewine. I've not worked since September but she's willing to take me back even part time if I'm well enough in the next year.

Just need to sort out esa now 😱

rosewine profile image
rosewine in reply to Aelin

That would be great. You might find after a really good rest and the right meds and treatments you may be able to do it. I had such a delay in getting a Pain Management appointment that the charity that I worked for had to finish me. Realistically as I had to have a brain like a razor to do my job with the medication I would have struggled plus sitting in an office chair would have been a no no as hard chairs are my nemisis. Take care hope you get in ok with ESA.x

Aelin profile image
Aelin in reply to rosewine

Thanks Rosewine. I'm settling and gradually increasing my pregablin and waiting for a pain clinic appointment.

I work as a care assistant with nursing or dementia patients. Full time it's 12 hour shifts on your feet physically and mentally demanding for up to three days in a row. So I'm thinking part time. Maybe twilight shift as the work is easier

rosewine profile image
rosewine in reply to Aelin

Strangely the Twilight might suit as many of us have difficulty sleeping at night as our body clocks are all over the place. I have often joked with the OH that I could do the night shift.x

Aelin profile image
Aelin in reply to rosewine

It might however I would get home at 11pm and be up for kids for school, then leave again at 4pm. It would be a long day especially if I'm doing a few in a row.

rosewine profile image
rosewine in reply to Aelin

Yes I see what you mean you will have to have a really good think about that.x

Aelin profile image
Aelin in reply to rosewine

Thanks x. For know I'm going to relax and recover (hopefully).

TheAuthor profile image
TheAuthor

Hi my friend, I am truly delighted that you now have the HU app. I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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