FibroHelp

I was diagnosed with fibromyalgia in Jan 2017. I honestly believe I had it as a child "8". I remember hurting sooo bad in my legs. Not all the time but, once or twice a year. It seem as if the older I got the worse the pain level got. Now im 37 and my pain is 100. I had to stop working due to pain level and sometimes feeling as if I'm loosing my mind! IWhen have just about lost interest in anything but sitting in the house. My doctor odered me rollator, which is a walker with wheels and a set. When I go into stores I have to ride a scooter. Once walking , I looked at myself trough a window and I walked as is my legs were too heavy for me. Any suggestions?

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  • Hi LaTanya1 welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

    It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

    So young to have Fibro and i too remember having terrible pains & cramps in my legs at around 10 or 11. I don't quite understand what you mean by your legs being to heavy ! Do you mean, your body to heavy for your legs maybe ?

    Please do go look at the mother site where you will find all the information you need and lots of useful links on Fibro and I look forward to chatting to you on the forum.

    fmauk.org

    Peace, luv n light

    Jan ☺

    PS. I advise you to lock your post to keep info safe from internet. Pls. follow this link to simple instructions .You will get more replies on a locked post too.

    healthunlocked.com/fibromya...

  • As Janet28 says it is going to be suffering so much. I too remember having mysterious aching legs event the age of 4 or 5 and Mom thought I was just putting it on as she thought I didn't want to go to school.

    Have you had a referral to Pain Management? Sometimes alternative therapies such as hydrotherapy and acupuncture can help especially when medication has had little effect. I asked to be referred to a physio a few years back and he gave me a series of exercises to do. Some of them made the pain worse and he told me to drop those but others certainly helped with my walking ability. He referred me also for hydro and acupuncture. Certainly worth a try.

    I used my PIP award to pay for regular acupuncture with a Chinese Medicine/Acupuncturist and he seems to know more bout fibro than any medical person I have spoken to.

    Do still try to do gentle exercises even when you do the feel like it as unfortunately the less you do the worse you can get. Alot if people on the forum take their mind off their pain by taking up hobbies as if you can immerse yourself in something else it gives a bit if respite.x

  • Woah, I'm only 17 but, when I was younger I had leg problems too. Even now the majority of my pain is in my knees. I had osgood-shlatter's from practicing martial arts, but the leg pain never went away and I had that pain a few spotty times before I even started taekwondo. This is really interesting that so many people have had similar experiences.

  • Hi, I can see that you have been given some wonderful replies and I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken

  • I have heavy legs, the rheumatologist said it was a neurological problem. In my case, the neurologist said it is a central nervous system issue where too many nervous impulse get through. He described it as a software problem not a hardware issue. So the brain not reading correctly, but nothing physically is wrong.

    It comes under the heading of Functional Disorders. Migraine is one of them - it happens, but nothing shows up in tests. You might find this website helpful:

    neurosymptoms.org

    I walk with crutches and use a power chair when I go out. I exercise everyday for at least 20 mins and keep myself as active as I can. I've just accepted it as one of those things, like my fibro and try and make the most of life. I've had fibro for at least 37 years and possibly much longer. It's got a lot worse in the last 3 or 4 years.

    Hope this helps, but keep in mind that the reason your legs are heavy could be entirely different. x

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