I think I am going mad .... - Fibromyalgia Acti...

Fibromyalgia Action UK

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I think I am going mad ....

Deebee17 profile image
14 Replies

Hi everyone. I haven't posted on here for a while but like to drop in and read the posts.

This week has been the 5th anniversary of my diagnosis with Fibro. I was asked if it was something to celebrate and my first thought was 'Hell no!!'. Then somebody pointed out to me that I may be one of the 'lucky' ones. I have been able to carry on working and I have a fairly busy life, which I am aware a lot of the members of this forum haven't been able to. I'm so grateful for that.

The reason for the title of this post is that I think the Tramadol I take has started to cause me problems. For the last few days I have noticed that after I take a 50mg Tramadol my face starts to get numb and tingly. Has anyone else noticed this happening? I hope this isn't a sign of it stopping working for me as I really don't know what else I could try, I have been taking it for about a year, alongside Pregabalin and Amitriptyline. I have also had a flare every day this week and today I feel quite emotional (difficult in an open plan office!!).

Thanks for reading

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Deebee17 profile image
Deebee17
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14 Replies
Kitten-kat23 profile image
Kitten-kat23

I am sorry but I don't have any answers. I do hope someone on here can help and you get some relief.

Lou1062 profile image
Lou1062

I think you should see your GP as any new symptoms need to be checked out, as you have been on these meds for a while they may need adjusting. We are not medically trained and can only advise from our own experience. I hope you get some help soon xx

BlueMermaid3 profile image
BlueMermaid3

Hello Deebee17

It is really very important to get any new symptoms checked out by your GP.

If your face is feeling numb and tingly I would definitely urge you to see your GP as this could be the signs of something quite serious.

It is very tempting to say oh it's just another Fibro thing.

I seem to have been saying all week that so many of us are going through flares and intensified pain and fatigue right now.

Please do get these symptoms checked out. It may not be the Tramadol at all.

Don't forget to let us know how you get on :)

Wishing you less pain and more peace

Lu x

Admin

That is quite a combination of meds to take really, all of these work by affecting brain activity, I really could not cope with anti epileptic drugs ANd an anti depressant together, is your fibro so bad that conventional analgesia like tramadol with paracetamol couldn,t help? Considering you are managing to work on is amazing and just maybe with guidance from your g.p you could ween down and then off the pregab and gabapent, don't do it alone you will get awful withdrawal if you do. good luck

BlueMermaid3 profile image
BlueMermaid3 in reply to

I take anti epilepsy meds and antidepressants. For some of us it's the only way we can continue to keep mobile.

As with all things Fibro related what suits one person would not suit another.

Lu x

in reply to BlueMermaid3

Yes I agree Lu its all trial and error to get a balance, you,ve always had a strong constitution in the year I,ve been reading from your messages and help, fibro most deffinately hits many of us in different ways and responds in different ways to what meds we are tried on. I found myself totally unable to cope with many things I tried.

BlueMermaid3 profile image
BlueMermaid3 in reply to

I do have a strong constitution but am in severe pain constantly.

It really gets me down but I feel if I can help just one person I am not a complete waste of space xx

Don't do yourself down Lu our forum triumphs with you and Ken

Deebee17 profile image
Deebee17

Thank you for your help. I can't get a doctor's appointment until 13th December. I called in to see a chemist and it was suggested that I don't take any Tramadol for a day or two if I can cope with the pain. If the numbness and tingling carries on I need to get an appointment asap.

I'm so glad I posted on here. Thank you again .

BlueMermaid3 profile image
BlueMermaid3 in reply to Deebee17

Be careful that you don't just stop taking it abruptly otherwise you will experience severe withdrawal symptoms.

It is very important that you wean off them very slowly .

Lu xx

Deebee17 profile image
Deebee17 in reply to BlueMermaid3

Yes that has been one of the things I was worried about. Hence I will be in touch with the doctor as soon as I can.

peck profile image
peck

Hello Deebee17 , Sorry your having a bad week.I've never taken Tramadol so I really can't comment on it.I do wish you the best.Peck 🐤

hebden profile image
hebden

I take tramadol 5omg and have not had the symptoms you are getting. It just makes my brain deader than it normally is and makes me sleep. Does your gp surgery do emergency appointments? Numbness, tingling of the face fingers and toes is listed as a side effect but you can't be too careful. Please get it checked out. Gentle hugs Joolz.x

TheAuthor profile image
TheAuthor

Hi Deebee17

I really am so genuinely sorry to read this and as the others say it would be best to get it checked out by your GP just to have other medical conditions ruled out of the equation. I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

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