Please help me out with this

I received HEPATITIS B VACCINE on my left shoulder almost four years ago; back then I was a regular at GYM- used to lift 100kg without much unease; used to do treadmill walking without getting exhausted; no persistent pain anywhere in the body. Post vaccination, I started experiencing various ACHES AND PAIN - started with left shoulder pain spontaneously (just the left not the right) making me unable to lift even half the weights i.e. 50kg (used to lift 100kg earlier). Thereafter series of unexplained pain started; my toes began to hurt while walking - sometimes left and sometimes right. The pain isn’t there at rest. I am sure it is not

due to shoes, as the pain occurs irrespective of the type of shoes I wear. Following the vaccination, there is also perceivable significant LOSS IN STAMINA; I experience breathlessness in the initial phase of walking on the treadmill - earlier I used to walk on treadmill for quite some time with ease. There is persistent feeling of fatigue; exhaustion which does not alleviate with rest.

There is presence of persistent dry cough which cannot be accounted for. Also, to add on, there is a constant pain that I experience in my LEFT UPPER ABDOMEN in a specific area while I am seated. Hence I feel very uncomfortable whenever I am sitting on a chair or a couch, or in the bus. The pain I perceive is connected to posture and a change in the same eliminates it; which makes me feel that it is muscular in origin. There is absolutely no abdominal pain when I am standing or lying down. No pain medicines have helped so far. I am sure the cause does not lie in the digestive tract i.e. stomach, small intestines or large intestines as I don’t have any indigestion problem... my appetite is just fine, I eat well and at proper times.

To summarise my agony- I was absolutely alright and pain free 4-years ago; before I received the HEPATITIS B VACCINE, used to work out regularly. But now, I am left debilitated, feel tired all the time.

Here are a few citations on the ADVERSE EFFECTS POST HEPATITIS B VACCINATION (all from authentic

sources of medical literature):

ncbi.nlm.nih.gov/pubmed/254...

ncbi.nlm.nih.gov/pubmed/222...

Question 1) If my GP doctor diagnoses me with Chronic Fatigue Syndrome, is it still worth seeing a Specialist such as a Rheumatologist or Orthopedic Surgeon? If not, why don't you think a Rheumatologist or Orthopaedic surgeon would help?

Question 2) Should I see a Neurologist as well as one ofthe Specialists above?

11 Replies

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  • Hello and welcome to our friendly fibro forum where you can get support, advice and help.

    Have you visited our Mother Site fmauk.org ? Here you will find a wealth of information and links to help you understand this condition further.

    I am sorry but you haven't told me if your doctor is treating you already for fibro? How did you get your diagnosis? The links you posted have recognised that Hep B vaccines can cause Fibro or CFS, particularly those susceptible to autoimmune conditions. Have you seen any rheumatologist so far?

    CFS and Fibro are constantly confused with each other and with ME and can cause symptoms which mimic autoimmune conditions too.

    I feel I would ask for a referral to a rheumatologist as he can dismiss the conditions which you are not suffering from like Lupus and Polymyalgia. Fibro tends to be the diagnosis when all available tests for other conditions, (blood, xrays, mri etc) are ruled out.

    I wish you luck, it may be a bit of a long road ahead.

    I do hope you told your GP the probable cause and completed a Yellow Card which informs the manufacturers of the link between the vaccine and your illness.

    Kay

  • I've been diagnosed with CFS and not Fibromyalgia yet as I haven't seen a Specialist yet.

  • Hi

    I know off several people who had Hepatise B inoculation due to their job including myself

    I went on to develop CFS which has now been diagnosed as PMR and Thyroid disorder

    Others Fibro and ME my GP tells me ME has now changed to CFS but I don't know if this is true

    Rose

  • This is the first forum where I found where others know people who experienced adverse effects as a result of Hepatitis B vaccine. Which Specialist do you recommend I see, Neurologist or Rheumatologist or both? Which Specialists did you see as you are someone who's been there and done that.

  • I would see a Rheumatologist first to eliminate all the other conditions. If necessary he will refer you on to a Neurologist.

    It may be that once it has been confirmed you have fibro you will get referred back to your GP who will continue your treatment with medication, referral to Pain Clinic and/or physio.

    X

  • Yeah see a Neurologist to see if I'm suffering a neurological problem or Rheumatologist to see if I'm suffering from a musculoskeletal disorder

  • Thank you so much for posting this. I had no idea there was a link between CFS, Fibro and the Hep B Vaccine which I had an adverse reaction to at the time, I remember it knocking me out for several months. Ever since then I won't have any vaccines! I hope you get the help you need. Hugs x

  • Hi FatViking

    Welcome to the forum and it is wonderful to make your acquaintance. Personally (and from personal experience) I would always go and see a specialist if the opportunity arises as they may feel differently to a GP.

    My wife use to be such an active and physically able person until she developed backache one day. This went on for years until I went with her to see her GP and the physio together and told them they must be wrong with their diagnosis or their treatment must be wrong? As she was not recovering after years of treatment and it was not good enough. I came out with vague threats about going to the GMC etc and they sent her to see a Neurologist who diagnosed Multiple Sclerosis after she underwent an MRI.

    I want to sincerely wish you all the best of luck, and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken

  • If I go to see my GP for a referral to see a neurologist, how should I convince him?

  • What did you say?

  • I have sent you a private message my friend