Reply from a petition: I answered a... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Reply from a petition

Dusky profile image
6 Replies

I answered a petition and have just had a reply

uk-mg42.mail.yahoo.com/neo/...

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Dusky profile image
Dusky
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6 Replies
bluebell99 profile image
bluebell99

Hello

What was the petition about and the reply you received? I am sorry, I don't have a yahoo account so I cannot read anything.

Kay

Dusky profile image
Dusky in reply to bluebell99

Hi bluebell, i've copied it for you x

.”.

The Government has responded to the petition you signed – “Get Hyperbaric Oxygen Therapy on the NHS for Fibromyalgia sufferers.”.

Government responded:

NHS England commissions high quality specialised pain services, delivered to agreed specification, for people with fibromyalgia whose pain cannot be controlled through routine NHS care.

NHS England commissions specialised pain services for patients whose pain cannot be controlled through routine NHS care where the usual approaches have failed. National commissioning means patients can access a high quality service, delivered to agreed specification, wherever they live.

Although there is no cure for fibromyalgia, some treatments can ease symptoms and support improved quality of life for patients. The treatments offered will depend on the severity of a patient’s condition, but may include: pharmacological pain relief; physiotherapy; dietary and exercise advice; counselling or cognitive behavioural therapy; and self-management programmes which aim to give patients the skills and confidence to manage their conditions more effectively. There are also a number of NHS Trusts that offer specialist fibromyalgia clinics, such as the Royal National Hospital for Rheumatic Diseases in Bath, which patients can access on referral from the clinician responsible for their care.

In April 2013, NHS England published a clinical commissioning policy for hyperbaric oxygen therapy (HBOT) which sets out that HBOT will only be commissioned for the following indications: decompression illness; gas embolism; acute carbon monoxide poisoning. This policy is currently under review. NHS England will only commission those treatments or interventions that have published evidence of efficacy and improved outcome. For this reason HBOT is not offered for patients presenting with conditions other than those listed in the published policy. Patients with other conditions who are seeking HBOT would need to make an Individual Funding Request (IFR) and demonstrate clinical exceptionality. Both the HBOT policy and guidance on the IFR process can be found at the following links:

england.nhs.uk/commissionin...

Department of Health

Click this link to view the response online:

petition.parliament.uk/peti...

The Petitions Committee will take a look at this petition and its response. They can press the government for action and gather evidence. If this petition reaches 100,000 signatures, the Committee will consider it for a debate.

The Committee is made up of 11 MPs, from political parties in government and in opposition. It is entirely independent of the Government. Find out more about the Committee: petition.parliament.uk/help...

Thanks,

The Petitions team

UK Government and Parliament

annacruachan profile image
annacruachan in reply to Dusky

Hey Dusky . What good news. Thank you so much for sharing it. xx

Dusky profile image
Dusky in reply to annacruachan

Your very welcome annacruachan

bluebell99 profile image
bluebell99 in reply to Dusky

Thank you for that, it sounds interesting, anything to help fibro sufferers conquer their pain.

X

TheAuthor profile image
TheAuthor

That is really great my friend, thank you so much :)

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