Me and fm: Hi everyone I have not been... - Fibromyalgia Acti...

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Me and fm

15 Replies

Hi everyone I have not been on for some time as my fiance and I are over he could not cope with my condition so looks like it is just me and fm now

15 Replies
Kitten-kat23 profile image
Kitten-kat23

I am so sorry. Some people just can't understand this condition and run from it. Others seem to understand but just get it wrong, they think they're helping but are making things worse. Then you get the people who do get it, just, and they are few and far between.

The only people who really understand are fellow sufferers.

in reply to Kitten-kat23

Hi kitten-kat23 even my specialist suggested I see someone with fm but I would not know where to start to look

Gentle hugs yve

Robbie138 profile image
Robbie138

Oh Hidden I'm truly sorry for you, please remember we are here 24/7 if you need to talk.

Take care, soft hugs 🤗🤗🤗 for you.

in reply to Robbie138

Thank you Robbie 138 as this is the second time I am starting to feel like a complete rejest

Soft hugs yve

neesey1005 profile image
neesey1005

So so sorry - some people just can't get their head around fibromyalgia- we are very lucky when our OH try and understand - try not to stress - take care of yourself - we are here xxx

in reply to neesey1005

I know just annoying second time it has happened last time was when arthritis started, my specialist suggested I see a male with fm as they get it too but I would not know where to start, I do not get out much the soles of my feet are also painfully

Gentle hugs needed 1005

Simba321 profile image
Simba321

Hi livinginhope

So sorry to hear about that X

I am new on here ,

I have CRPS for 6 years now and I am too worried about my husband leaving me because of this condition !!!!!!!

He works long hrs with no tea on table !!!! No housework done, I show no interest in him as all !!!'

Been married for 37 years

Christine CRPS

in reply to Simba321

Hi Christine CRPS this is the second time this has happened to me, I hope it does not happen to you

Gentle hugs yve

Trikki profile image
Trikki

Hello and welcome back....I think we all feel so sad for you. It is a horrid condition and is so difficult to understand for others who have no idea what it is like.....You are not alone any more....as you know there is always someone here to talk to...Sending gentle hugs xxx

ErosisSore profile image
ErosisSore

Hi livinginhope, so sorry to hear this, hope you are ok. My OH will not believe there is anything wrong with me even though I've been diagnosed and many hospital visits for tests, he will not even read up about my conditions. Every week now we are arguing because he expects me to run around after him doing everything, I know that he works long hours but there is no need to put me down, call me names and treat me like a general slave! Every weekend he says he is leaving and I've now got to the stage of just saying...well go then as you have no support and understanding for me. All the stress just just sends my pain sky high and I shake like a leaf. So much for those who are supposed to love us eh!

Sorry if this sounded a bit much like it's all about me 😐. It's great that we have all these wonderful people to talk to one this forum, I don't know what I would do without them.

Hugs and all the best

Jo x

in reply to ErosisSore

Hi jo a lot of males are like that I was married for 21 years and my ex husband was the same I was also diagnosed with arthritis several years before I left my ex husband and he was thelected same, he had to break into bathroom as I couldon't not move but he still, my ex mother in law cams to the bedroom to see me one day she sat on end of bed and I screamed with the pain she was very understanding and could see I really could not do anything at that point but my ex husband he did not want to see, I was lucky enough to get our 4 children to their teenage years before the arthritis got that bad, I have attended some fm classes and several females have said the same as you and I knew exactly what they were on about

Hugs all the best yve x

rosewine profile image
rosewine

I'm sosorry to read your post. I think it is difficult for anyone who does it have this illness to fully comprehend how is it affects us in body and in mind. To have two men who have behaved this way must be soul destroying.

My hubby won't read up about the illness it as though if he doesn't know all the details he can cope. He has depression and anxiety and is finding seeing someone who used to be the go getter and zoomed everywhere and did everything reduced some days to just lying on the bed or sitting in the chair extremely difficult. He does try his best he is doing my tea afraid it is out of a tin and packet but needs must.

It is actually a brilliant suggestion to find someone with fibeo I wonder whether there are any local support groups or Facebook groups you could join. Don't for one moment blame yourself, we are what we are and if our lived ones won't accept that and live us as we are they aren't worth the time and energy trying to convert them, we have little enough if it to spare. Take care do come on more often even if you just read the posts wnd let us know how you are doing.x

in reply to rosewine

Hi rosewine thank you for your message I feel like a complete reject at mo I do not believe in giving up with anything when I was in my late 20s I landed up in a wheelchair due to arthrites it was not me so fought my way back and as it is the best thing for arthritis kept going I have not used a wheelchair since unfortunately now with the fm it effects my feet bad pain sore etc after standing on my feet for a short period I still will not use a wheelchair and try to walk whenever I can but I don't gethink out much whichope I am not also used to as I turned everything around and had a very busy life, I have otherefore medicall conditions kidneys only working 50% etc etc I will keep continuing to fIghtfield back as that is just who I am I keepisode living in the hope life gets better

Gentle hugs yve

My dexter thank you for your message and happy anniversary

Gentle hugs yve

TheAuthor profile image
TheAuthor

Hi Hidden

I am so genuinely sorry to read this my friend and I sincerely hope that everything works out well for you. I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

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