Just a big Thank you! x: Thank you for... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,438 members66,487 posts

Just a big Thank you! x

christina842 profile image
7 Replies

Thank you for letting me join this group, I didn't know there was such a thing and I don't know anyone with this disease, or maybe I do but we have not talked about it. I felt a bit embarrassed about having it, like I was making it up or something? I don't know why, it is very real! I am really grateful to be able to share and read. Thank you!

Written by
christina842 profile image
christina842
To view profiles and participate in discussions please or .
7 Replies
Marielena2 profile image
Marielena2

Well good morning Hun.and welcome. Yes, I felt that way too,before I was diagnosed, and a relief to be able to say" yes! It is real" 😊 Yes, It,s lovely to be able to share and often get reassurance too. Hope you have a good day.x

neesey1005 profile image
neesey1005

I don't feel embarrassed about this awful illness now - but I know what you mean - I now tell everyone that is interested- I explain how I feel , what it is and treatments and how it has affected my life and family - shout it out from the roof tops the more people that know about it the more they will believe in what we have and the more we will be understood and helped. - hopefully - hope you have a pain free day x

phlebo123 profile image
phlebo123

Hello and welcome!

I always find it difficult to talk to others about fibromyalgia, with it being "invisible" and me looking "normal" on the outside.

It makes me feel like I am making it all up... not sure how anyone could make up the extensive list of symptoms that we experience! :)

When anyone asks how are you doing? I usually reply I am doing ok, because I find it too difficult to try and explain what I really feel like.

If you are interested in meeting other people, then you may find there is a local support group in your area... if you look on the website fmauk.org there is a section which details support groups, there is also lots of other useful information on this website which you may find helpful.

Welcome to this group... xxx

peck profile image
peck

That's very sweet!!I must say it's good to have you here! ! Have a lovely evening.Peck🐤

Bambamsnan profile image
Bambamsnan

We are all in the same boat as they say

Carol ☺

Matrix profile image
Matrix

Hi yah , welcome it's not in your head it's a real illness and it hurts . Good you found us and don't let anyone tell you it's all in your head . They are lovely people on here and always ready to help.xx

TheAuthor profile image
TheAuthor

Thank you for helping make this forum so special my friend. It is our privilege to have you a part of us.

All my hopes and dreams for you

Ken

You may also like...

First day of duloxotine and a big thanks x

Just a big thanks to you guys and your advice and support really made me feel more positive I...

Just wanted to say thank you.

at a time. So thank you again this site wonderful. Keep up the good work. Many thanks again. Melissa

BIG BIG THANK

strong sleeping tablets for tonight. Just like thank you of all adive and support .big hugs and...

Big thank you I got an apology from my doctor

we have got things sorted and I will be staying on with him as I feel he now understands I don't...

A Great Big THANK YOU to all of you who have:

FACEBOOK etc, but quite a few have. As said before on here, I myself have 5 nasty autoimmune...