Yorkshire area

Hey, not been on here for a long time!

Really really beginning to struggle even more then I have been struggling before, I work full time in Lloyds bank, exhaused, in pain & just fed up of being ill constantly. Repeatedly breaking down in tears at work it's just becoming way too much 😢

Don't get much treatment for my fibro as I do just get fobbed off by all the Drs in my surgery due to me only being 22 I don't get any help at all.

Anyone in the Yorkshire (west if possible) know of any good Drs nearby and how I would go about getting an appointment and also any possible support groups in the local area.

Thank you

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  • Hi

    Sorry I cannot help with your query regarding doctors but the FMA UK site has an information booklet which can be sent to your doctor. This may help them become more aware of Fibro and how it affects everyone differently. Before I was diagnosed I wrote a long list of aches and pains I had, how I felt emotionally and how it impacted on my work and home life. The doctor gave me a diagnosis as a last resort - they couldn't find anything else.

    I sympathise with you being so young, it may be worth while talking to the HR department about changes that could be made to help you keep working. It's so hard to accept its either work or your health which has to take priority, unfortunately I have never found the elusive happy medium.

    Good luck with finding a GP and hopefully someone on this wonderful forum can help you x

  • Thank you very much I've tried so many Drs and ended up walking out in tears when I'm told there's nothing they can do I just have to 'deal with it' it's so disheartening knowing this is it, this is how my life will be from now on.

    Hate the thought of not working but it's getting too much, I can't not work due to bills but I'm sick of breaking down at work 😢

    It

  • Sorry to hear your really suffering I have a 15 year old daughter with fibro and me she's really struggling too I live in London so I don't know of any gp,s in your area hope someone can help you good luck👍

  • Thank you, I know exactly how your daughter feels, mine started when I was 11 and was diagnosed when I was 15. So hard it is. Heart goes out to her.

  • Thank you for your reply yes my daughter had been suffering for years and got diagnosed last year

  • It is such a horrible cruel illness we all have and I hate what it has done to me and everyone else. There are always days you can and days you can't cope but keep going anyway.

    Have you tried applying for PIP as this is paid even if you are working and it may provide a bit of relief if you could then cut down your hours at work. If you have an understanding boss talk to them about Fibro and how it affects you as there could be something they could do to help at work.

  • I have looked into pip but with my anxiety I never get past the booklet stage as I am scared of the assessment part.

  • The assessment is a worry but if you are honest with them and tell them your worst possible day, they will understand. If you don't try you won't know . Good luck xx

  • Yeah thank you I need to try and stress less I worry too much. Being ignored by my Drs makes me worry more as I just think I'm going to get the same treatment everywhere I go.

  • Hi Kayshasmith1

    I am so genuinely sorry to read of how you are suffering and struggling as a result of your Fibro and I sincerely hope that you can find some resolution and relief to these issues.

    I have pasted for you below the FMA UK cache on support groups / contacts. So I sincerely hope that you can find a suitable group for yourself:

    fmauk.org/contactsmenu/supp...

    If you are looking for a Fibro friendly GP, it may prove beneficial to ask at a support group as they will all have (presumably) done the circuit with doctors and know the good ones, the indifferent ones and the ones to avoid!

    I want to genuinely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • I'm from West Yorkshire and I've not met a doctor or consultant as yet who is interested in Fibro- why don't you go on the sick for a couple of weeks rest up a while see if you can recharge your batteries it seems like your having a melt down and frazzled. Xxx

  • I though about maybe going on sick to get myself together but it feels like id be letting it win and letting the people at work down due to us being under staffed. I think I might have to though need to remember my health comes first. Thank you

  • It does where abouts in Yorkshire are you? I would ask your doctor for a referral to a specialist get as many tests assessments as possible.

    People at work will survive.

    Your health will suffer if you don't listen to your body x

  • West Yorkshire :)

    I'm at Drs on Monday so will ask them there its just so disheartening walking out of Drs so many times in tears when they refuse to listen

  • Where abouts in West Yorkshire he's the south West Yorkshire NHS Service.

    The reason I'm asking is I have been living with these illness's ten years and the only person who's taken me seriously is the physiotherapy department at st George's centre in Leeds

    These guys work alongside consultants

    hey can refer you for tests such as X-rays MRI and other specialist services such as counsellors....

    They are everyday people who seem very knowledgeable they treat you with respect and take your pain and anxiety seriously they are transparent and share information that they share with your doctor. There are these centres all over Yorkshire this is south west. If your not there look MSK physiotherapy ... Where ever you live xxx

    Barnsley therapy services are part of South West Yorkshire Partnership NHS Foundation Trust

    South West Yorkshire Partnership NHS Foundation Trust

    Barnsley Therapy Services

    Musculoskeletal outpatient physiotherapy

    Our team treats both acute and chronic musculoskeletal conditions such as back and neck pain, sports injuries, post surgery rehabilitation and conditions related to work or posture.

    All physiotherapists are members of the Health Professions Council. They use up to date evidence based therapy to ensure you get the highest standards of quality care.

    We can offer help and treatment for the following complaints:

    Neck pain

    headache

    Whiplash

    Shoulder problems

    Muscle tension

    Tennis and Golfers

    Elbow

    Back pain and Sciatica

    Arm, wrist and hand problems

    Repetitive strain injury

    Thigh and groin pain

    Leg and knee problems

    Sports injuries

    Ankle and foot problems

    What is physiotherapy?

    The aim of physiotherapy is to restore your normal function. This includes ensuring full range of movement and strength, reducing pain, assisting in the self management of chronic conditions and preventing recurrence.

    What do we treat?

    acute and chronic back and neck pain

    sciatica/lumbago

    whiplash

    joint pain and stiffness

    tennis elbow

    ligament and tendon injuries

    post joint surgery

    acute joint and muscle injuries

    plantar fasciitis

    osteoarthritis

    rheumatoid arthritis

    tendinitis

    frozen shoulder

    overuse injuries

    fibromyalgia

    What will happen?

    At your first appointment the physiotherapist will carry out a detailed assessment. This will include questions about your condition, its history and how it affects you. You will also be asked about any other medical problems and any medication you are taking.

    Your physiotherapist will then complete a physical examination of the ‘problem area’ (this may require you to undress), so they can clearly see any swelling, loss of movement, muscle spasm etc. In some cases the physiotherapist may need to feel the area in order to identify any stiffness, swelling or signs of inflammation. This may not always take place on your first appointment.

    The physiotherapist will discuss their findings with you and will encourage you to be involved in decisions regarding your treatment options. You will always be given some advice and/or exercises for you to continue at home to help with your condition. To ensure you get the most out of your physiotherapy it is important that you complete the exercises given and follow any advice.

    If necessary your physiotherapist may refer you on to continue your treatment at either our gym sessions or in the hydrotherapy pool.

    How can I get referred to the service?

    There are a variety of ways you can be referred to our service:

    Your GP or other health professional can refer you to our service. Your GP will have access to our appointments through the Choose and Book system.

    Consultants, GPs and other professionals can refer by letter or referral form.

    You can also refer yourself to our service, simply by giving us a call on 01226 433318

    Attending your first appointment

    Please bring a list of your current medication

    Please bring a pair of shorts or vest to your appointment as appropriate

    Please inform us as soon as possible if you prefer either a male or female physiotherapist

    If you require an interpreter we will need a weeks notice to arrange this

    You may wish to bring a chaperone for your initial assessment

    If possible please avoid bringing small children to your appointments. Treatment areas may not be suitable for children.

    If you cannot attend your appointment

    If you are unable to attend your appointment please contact us as soon as possible on 01226 433225 and we will offer you a new appointment.

    If you do not attend your first appointment without letting us know then you will be discharged and we will need a new referral before we can see you again.

    3

    If you cancel or do not attend a follow-up appointment it is your responsibility to contact us within two weeks of the missed appointment to arrange a new one, after which time you will be discharged.

    Letting us know if you are going to miss an appointment as soon as possible makes the best use of NHS resources and gives us the opportunity to offer your appointment to another person, so we appreciate your co-operation.

    Contact us

    For all enquiries and appointments please contact 01226 433225.

    Our clinics take place at a variety of locations which are shown below, along with postcodes:

    Cudworth Clinic – S72 8SU

    The Darton Centre – S75 5NB

    Hoyland Leisure Centre – S74 9EH

    Mount VernonHospital – S70 4DP

    Penistone Clinic – S36 6DY

    Thurnscoe Clinic – S63 0LT

    The above information is also available in a leaflet. To download a copy please click the following link Barnsley Therapy – Musculoskeletal Physiotherapy

    © 2015 South West Yorkshire Partnership NHS Foundation Trust

  • Thank you very much I can get to Leeds so gunna look into this when I get home from work xx

  • I'm sure whatever, they will support you and listen to you.🎈

  • There maybe one in your area 🎈

  • No what u r going through ask your doctors to refer you for cbt as your docs r not supportive cognitive behaviour therapy, I have found it very helpfull , I wish u well. All so ask for occupational therapy at your work they r there to help you and have your work station looked at to see what can b put in place to support u ie light touch keybord mouse writing slop chair with gel arms this will help with shoulders a lamp for reading hope this give u a few ideas good luck angela

  • Ive just read your post and as a sufferer of aged 46 at my pip assessment today my assessor was a lovely nurse who completely understood fibro and my last assessor was a physio who also got it so I wonder why do and only some doctors not understand but i have finally accepted there is nothing to cure it's only to manage to which there's never a full symptom free day. I really feel for you for being so young and having to endure this vile disease as I've only been diagnosed 3 yrs ago so I have lived a bit of life never the less not working I miss not just the money the social side of it especially. Just don't give up there are doctors physio etc who do understand have you got a fibro pain management course in your area I got a lot out of that as other sufferers there and you do get a lot out of it hearing how others try to manage it. Don't give up try diff doctor see how you get on and take care of yourself sleep when you can as your job sounds demanding and exhausting take care. X

  • I tried looking for pain management courses etc but they are all when I'm at work as I'm out 12 hours a day 5 or 6 days a week it's hard to fit anything like that in. Tried nearly every dr in my little surgery so not sure where to go next.

  • You may have to be referred to a specialist then 🎈

  • Just thinking about you how are you! Did you get anywhere with msk or docs or are you still working? Hope your feeling as well as poss x

  • Sorry I've not had any internet.

    I am still working however I have been moved to a closer branch so my travelling time is cut in half only half an hour each way now.

    I'm still doing full time and still struggling.

    The Drs have referred me to muscular skeletal specialist who I saw on Wednesday and he just said he's referring me to a rheumatologist and he apologised that nothing had been done to help me before his words where it's an adult service they provide so it's difficult when someone under 18 comes which is why I basically got fobbed off last time however now I'm 22 there's more options.

    So I'm just waiting for that appointment now.

    Still considering putting in for pip but with stress & anxiety levels at the moment not sure if I dare give myself anything else to worry about even though know I'm the long run it might help.

    How are you? :)

    Xxx

  • Hi love how are you doing ok? It's been a while I've got my pip if you need any help it's hard to get if your still working though I hope your getting the treatment you deserve love xxx

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