Hi just joined my fibo got me up agai... - Fibromyalgia Acti...

Fibromyalgia Action UK

53,904 members63,238 posts

Hi just joined my fibo got me up again so early 4.30 am 😠😠😠😠

Bks72 profile image

Good very early morning just found this site. So I thought I could have a good morn and hopefully nobody morn back at me as that's all I ever get. As I quest I'm not the only one who feels the same that other people who don't suffer this horrible illness FIBROMYALGIA, it's a killer well for me it is the chronic  pain head to toe 24 /27 and no sleep and foggy head. ....... hope everyone have a very chilled Sunday. Miss so fed up already 😢😢😢😢😢😢😢

13 Replies

Welcome, sorry your feeling so bad , I agree it's a killer. When you post you need to lock it to Community, that way it locks your post to the forum, and not everyone on Internet can see it. You can edit it with the little down cursor, and you will get a lot more replies. Take care.

Bks72 profile image
Bks72 in reply to Blue52

Arr thank you so much xx

Hi welcome to a great site as you see someone's always here.Sorry for your pain and sleep issues I know that's common.Wish you luck.      Peck.😊 PS

Good morning, I went to bed at 4am so I didn't miss you by much lol. The fybro page is quiet active so there is always someone to chat to and even when you are at your lowest there is normally something going on to help cheer you up x

Goodmorni g andhang in there. Its rough being up all nite. Try Valium 4 the muscle aches and it definitely helps you sleep thru most of the nite. At least for me. Have a blesses day Lisa

So sorry to hear that your not feeling to good today I know how you feel and its not something you can explain to someone who doesn't know how you feel I was bad yesterday yet feel a bit better today so hold on tight and hopefully you will be feeling better soon keep warm and rest as much as possible  sending hugs xxx

Bks72 profile image
Bks72 in reply to Nikki70

Arr that you so much. U have a good day take care. Xxx

Hi Bks72

Welcome to the forum 😊 You have found a group of the most incredibly kind, compassionate, caring people that I have ever met. 

Since I've been a member of the forum I have made some wonderful life long friends.

It is preferable if you can lock your posts. The reason for this is that unlocked posts are open to the whole Internet whereas locked posts stay within our forum.  On the top right corner of your screen you'll find Step by Step Instructions on how to lock posts. It is under Pinned Posts which are all written in blue. If you need any help, please let me know. You will tend to get more replies to locked posts.  

Please could you also have a quick read through our HealthUnlocked Guidelines. The most important ones are that we are asked to refrain from discussing politics or religion as these are very emotive subjects. 

We also ask that photos of minors (children and babies) are not posted on the forum.  Swearing of any kind at all is not tolerated as it can cause offence to other members.

You may find it interesting to have a look at our mother site, where you will find lots of information regarding Fibro  fmauk.orrg

I very much hope that you enjoy the forum and I look forward to chatting with you again.

Lu x 

Volunteer Administrator 

hi and welcome, I've had two sleepless nights but collapsed in a heap and slept today, my legs feel like I've run a marathon though are very sore and twitchy. I know getting up and moving around a bit will help, so I will potter a bit. As Lisa mentioned I have been prescribed Diazipam for Restless Leg Syndrome. It is addictive but very effective, as a bonus it helps relax my neck and shoulders which are my main tension point.

The lack of sleep is a big one, I take Ambien a sleeper but sometimes that does nothing! Last resort is ear plugs and chilled out music, it's become a nightly routine for me and I feel helps.

All the best


Just to say welcome.  You will find quite a few of us are still awake at 4, I being one of them but I try not to come on the computer but lie there listening to some relaxing music.  Insomnia seems to go hand in hand with fibro for many of us.  Yes the pain is made worse by not sleeping as you don't tend to gete any relief from it. 

I agree it is very difficult for those not suffering from the illness to understand as we try to shrug it off and many look quite well but the way they feel is the opposite.  Look forward to your future posts.x

Hi Bks72

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I am so genuinely sorry to read that you are suffering and struggling so much and I want to sincerely wish you all the best of luck. Please take care of yourself.

All my hopes and dreams for you


Glad you found site and good morning if your up I got a 2am start today may try and get a nap in before my girl gets me up sometime between 6-9 lol hope you r managing a restful night hunny it's always nice to know your not alone xxxxxxxx

Hi there

I'm so sorry you are having so much pain at the moment!! You go ahead and moan as much as you need...we all do! It's one of the reasons we are here for one another, if you want to rant,shout,scream,moan, bite the postman[only joking on bite the postman]!!!!! But go ahead and be assured there will alway be someone here ready to listen and to send love and hugs through ore ciber community.

Just keep posting as much as you feel the need to..I quickly realised there is not one person on this site that will judge!!! THEY JUST SPREAD ARMS ACROSS CIBER SPACE TO MAKE ME FEEL BETTER!

Hope it works for you to,and I do hope you can get some rest from pain

Just remember ..you are never alone

Gucci girl x

You may also like...