rethink fibro: About 18 months there... - Fibromyalgia Acti...

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rethink fibro

rightmerca profile image
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About 18 months there was a study that showed those diagnosed with fibro fit the diagnostic criterium for hypermobility ehlers danlos syndrome here is the diagnostic criterium ednf.org/nosology

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rightmerca
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7 Replies
rightmerca profile image
rightmerca

i mean 75% of those diagnosed with fibro

ukmsmi4 profile image
ukmsmi4

I would be happy to reply if you lock your post.

Margaret. :)

littleeffie profile image
littleeffie

I too would reply if post locked.

Lou1062 profile image
Lou1062

I don't have hypermobility x

Jaja2014 profile image
Jaja2014

Hiya, this is relevant to me as last pain dr said she could t do anything more for me 👎 pushed to see another doctors there. He's referring me to a hypermobility specialist clinic.

I also have PTSD BPD and agoraphobia. Really hoping this specialist clinic can help with my pain!!

TheAuthor profile image
TheAuthor

Thank you so much for sharing this with us all. It is very interesting albeit quite complicated. The only thing (and it made me giggle) is that I do not have smooth skin as they described, I am akin to an old crocodile handbag! Was a good read though.

All my hopes and dreams for you

Ken :)

rightmerca profile image
rightmerca in reply to TheAuthor

not everyone has the symptoms some are not bendy and depends on age as well. its something I think many with fibro should look into and see if they have this genetic condition because there is 50/50 chance of inheritance from one parent in most forms with hypermobility being the most prevalent and the experts feel that 1 in 500 could have some form of it and many before diagnosed with ehlers danlos hypermobility were diagnosed with fibro so many symptoms are the same.

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