Recent diagnosis and need advice. :)

[Ems16]

I have been recently diagnosed osed with fibromyalgia at the age of 23 and was wondering if anyone can offer any advice to me or even just share their story with me?

[Fibrofoggiest]

Hi Ems, and welcome to our very friendly forum 😊😊

Firstly could I suggest that you take a peep at our mother site fmauk.org where you will find a wealth of information .

With regards to anyone's story, you only have to scroll down through a few pages and you will get an idea of some peoples journeys with fibro.

You will also note that there are a fair few "fun" posts which some of us enjoy as we feel that laughter releases feel good endorphins which can help one through difficult times.

I very much look forward to getting to know you better seeing you around the forum, just jump in and everyone will give you as much support and information as they can 😊😊😊😊😊

Foggy x

[TheAuthor]

Hi Ems16

Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find it useful, informative and loads of fun! I can see that our Foggy has given you the link to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information.

I was wondering if you have discussed or are being prescribed suitable pain medication? As this in my opinion is a first. Many sufferers do cope well enough with alternative treatments but I think it is down to the individual.

I am on quite a bit of medication but I also use a TENS Machine for my pain as I find it very useful, and they are quite cheap these days. It may be worth discussing a referral to physiotherapy with your GP if you have not already? I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

[COFFEEPOT222]

hi ems16 please can you let me know how your were diagnosed with fibromyalgia was it just blood test or something else. iv had rheumatoid arthritis for 2 years and 8 months and been treated with cocktail of meds and injectables still feeling like guinepig as nothing seems to be working to great but noticed a few months ago iv been having a lot more pain in different places but no swelling but the pain dont go i cant sleep hardly at all mood swings so bad and cant explain why as im normally a happy optomistic lady not that it makes any difference im 54 years old but after every visit to my rheumatolagist i get a letter with same writen in it as what they send to my gp ( by the way i live in dorset uk ) and they print what has been discused in the appointment with me, but on reading this last letter its got that they suspect i have fibromyalgia this was never discused in the appointment as comes as a shock i eventually got to talk to my gp on the phone about how i get tested for fibromyalgia and she tells me there is no test to find out for sure if someone has it now i am left confused when reading you had been diagnosed with fibromyalgia i really need advice please

[TheAuthor in reply to COFFEEPOT222]

Hi COFFEEPOT222

Fibromyalgia is diagnosed by eliminating other possible illnesses such as Thyroid issues, Multiple Sclerosis, Nerve Damage etc. Once they have done this then you get a diagnosis of Fibromyalgia Syndrome. Ironically enough many Fibro sufferers do suffer with a secondary illness such as Arthritis, and sometimes multiple illnesses to go along side their Fibro.

I was diagnosed a few years ago after constantly suffering a great deal of pain in several parts of my body. I also have Arthritis, Osteoporosis, Migraines, Asthma, COPD and no Coccyx, just to mention a few. After being referred to a private consultant and seeing an Osteopath and a private GP, I was diagnosed with Fibro on top of my other illnesses.

Most members (but by no means all) have been diagnosed by a Rheumatologist who would have performed a series of examinations looking for tender points around the body. This will help confirm their diagnosis.

I want to gneuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken