Hey I'm hoping someone can help as I get none from doctors. Firstly so you know, I have endometriosis and PCOS and have been to and from doctors some have said I have fibro some say no, I see an acupuncturist and even she said yes. I've been told there is no test is this right? How do I get diagnosed then? I often have pain sometime all over body, painful to touch me and and sometimes like now, pain goes so deep feel like it's down to bone kind of feeling. I'm constant tired and the problem is where I have endometriosis they just say that the conditions bounces off of each other. I get so much pain in pelvis and down leg and always have back pain, again some doctors put this down to endometriosis so is hard to tell. I just want to know from someone who can say whether this is common fibromyalgia or not. I don't know what else to do. Currently off work with Basitis which I was told can be linked to fibro?
Thanks for any advice !!
Hi I was diagnosed with fibro first then everything else came into play , reactive arthritis, sjorgrens , poss lupus ,tummy issues (still being investigated) bladder problems They are talking endometriosis now , I have problems with glands , eyes , ears . The list is endless , but my many issue is fibro . My trigger was septaciuma 5 years ago.
There are test for for fibro , have you seen a rhumatolgist,if not ask for referral .
Also ask for a pain and fatigue clinic , also if your having issues with getting help to live a normal life ask for a social services visit , also disability advocate .
your still working make sure you get copy's of every meeting with your employers
Do everything by the book , our Ken will be about in a bit , he will give you all the official stuff about fibro , but from one suffer to another , be kind and gentle with yourself , pace yourself don't over do it , try not to stress , keep a diary , and be kind and gentle with your self , don't push yourself , don't let anyone tell you to exercise listen to your body your the one with this ,and nobody understands you body better than you , if it' feel like it's hurting its not your imagination , don't be bullied into doing to much now .