Hi Everyone

Hi, I have been suffering for coming up to ten years now, 6 years with a diagnosis finally, with this and other conditions; and its finally got to me.

I started to hate talking about it any more because I just feel like people think I am making it up because pain is just something you can not see (other than on my face); my wife is amazing about it, but just wish there was someone who I could talk to who know how it feels; hence finding here.

Does anyone else have trouble with doctors? mine treats me like a junkie, then threatens me with 'its our choice to give you a prescription' when I try to explain how bad it had got; I don't think he gets that saying that is like a threat of torture......

I also have some questions if anyone has looked in to the condition being anything to do with head injuries, I have had numerous from very young to late 20's with playing and competing in various sports, and I have got it in my head that they are what's making me pick up pain.

Do other have other conditions like I do that seem to compound the problem, arthritis, cracked discs, knees that need replacing?

I just feel like a tired wreak, that cant sleep and just don't want to see like I am moaning or want sympathy, I just want it to stop now, I have had enough.............

6 Replies

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  • Unfortunately it's not going to stop till they find a cure. There are things that you can do to help. First find a doctor that you trust and will listen to you. Just make sure he knows about fibro. On mother site you can get forms sent to said doctor that might help them understand a little more about fibro. Second try to start figuring out your own body. Learn what your "triggers" are. What makes it worse and what helps. Third meds can only do so much. Find out what helps. Tens or Ems units, warm baths, gentle massage, stretches , gentle exercise... things along that line. Others here I am sure can and will help. A good support system is a necessity with fibro. This site is great we try to support each other. We try to keep our spirits up and bring others up too. Good luck and welcome to the site!!

  • the first positive thing I have heard since the start :), will look in to all you said. Tens works really well for me, but I have let it slide and stopped using it. will get it out tonight, one foot forward and all that, thank you

  • I just posted a picture that might help you understand what you are dealing with.

  • Hi there

    Welcome to our lovely forum :) It is filled with kind compassionate caring people and we all try our best to support each other.

    My GP is very similar to yours. Although one day she is nice and others she is horrible. When I see her I wonder whether it is going to be Dr Nice today! lol

    I had an appointment with her recently and she has come across a Physiotherapist who specialises in Fibro. She asked me if I would like to see her. My answer was a resounding YES!

    I have no idea what you have already tried so I am just going to list a couple of things. Please forgive me if you know about these things already.

    Your GP can refer you for Cognitive Behavioural Therapy, Pain Management Clinic, to see a Rheumatologist if you haven't already seen one, Hydrotherapy (dependant upon where you live and if it is available).

    Swimming is one of the best things you can do. Even just being in the water and moving around helps as of course we are all weightless in water.

    I don't want to overload you, so I will leave it there. If you would like to ask me anything please do ask. I have had Fibro, CFS, HMS, depression, anxiety and more for over 30 years, so I definitely have the t shirt :)

    Here's hoping some of this helps.

    All the very best

    PP xx

  • Just like to say welcome to the forum. The others have given marvellous advice so have very little to add. I to have several other health conditions the main ones being osteo and IBS. The pain clinic may be able to offer some acupuncture. I find the electro acupuncture with Pregablin has really!ly helped some of my neuropathic pain. The one that was really helping was the hydrotherapy but it is limited to just 6 sessions in our area.x.

  • Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find the forum useful, informative and loads of fun! I have pasted you a link to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information: fmauk.org/

    As rosewine says, the other respondents have given you some wonderful advice so I will just genuinely wish you all the best of luck.

    Al my hopes and dreams for you

    Ken

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