pain when touched

[justmai]

Do you a get pain when your touched I am asking this because I don't.

don't get me wrong I am in severe pain most of the time in my back legs and elbows sometimes feel like screaming the place down. But never get pain simply by tsomeone touching me.

[Regnofibro1]

At times I do. It just depends on the day! I think I have every symptom at some point but not for sure. Today I feel out of it sorry.

[caninecrazy]

yes, I too have been experiencing this. for the last 3 days my right forearm is incredibly painful at the slightest touch. had it on my upper arm last month. I assumed it is fibro/lupus. I will read other replies with interest. hugs x

[BaffledKaffy]

Certainly, justmai, we don't have to experience all the symptoms of Fibro to be diagnosed as having it, if that prompts your question.

I don't personally have that issue either ... but it's not to say it won't appear tomorrow, next week, or next month for either one of us. This disease (I know, I KNOW, everyone ~ it's "syndrome") is absolutely horrible no matter how many (or how few) of the symptoms we exhibit. And I'd hope it's never a requirement to have all the symptoms listed for Fibro before they'll diagnose it ~ OMGosh ...

[clare_hart in reply to BaffledKaffy]

PS, Off-topic.

FM needs to be defined as a disease so that it will be taken seriously. In February of this year, that was done, but from what I have found out in my limited way, the word hasn't gotten out. It's been a topic here before, but IMHO, bears repeating.

It's been named SEID, Systemic Exertion Intolerance Disease (yeah, it's a mouthful, but it was the best they could think of to encompass a diagnosis)

Here's a link you may find interesting

rcbm.net/behavioral-medicin...

I've printed out some of the articles and links for the next doctor that sneers (no matter how sublty) at my fibromyalgia.

[maggi999 in reply to clare_hart]

Just a little point Clare.

The attached article refers to Chronic Fatigue Syndrome, not Fibromyalgia and my understanding is that they are different syndromes, although there is some overlap.

[clare_hart in reply to maggi999]

I understand and should have been more clear. CFS/ME are discussed with this quote from one article:

"It’s the disease that dare not speak its name without tripping over one of its other names. Call it what you will – chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME) or its latest, Institute of Medicine-sanctioned designation, systemic exertion intolerance disease (SEID). It’s very real, affecting between 1 million and 4 million people in the United States alone . . . "

[BlueMermaid3 in reply to BaffledKaffy]

Hi bk. The only reason I personally stress syndrome is to try to explain that it is not just one symptom, that's all 😊

Illness, condition, disease who cares - it's horrid xx

[stumpedok in reply to BlueMermaid3]

Recently I have started referring to my "Fibro illness " as I've found that people understand the word "illness" better than they do "syndrome ".....not technically correct but in getting others to understand it I'm finding this shift in terminology helps....bit like the shift from the terminology of 'chronic fatigue syndrome 'to 'ME'....given that everyone seemed to think they knew what 'fatigue' meant not appreciating that this 'fatigue 'was nothing like the tiredness experienced by a healthy person!

Sometimes the language we use can make a big difference. ..and is much more than just playing with words or 'splitting hairs'.....I'm all for anything that helps no matter how seemingly small!

[BlueMermaid3 in reply to stumpedok]

Wholly agree with you 😊. I meant I say syndrome on the forum when explaining an answer to something.

In person I just say I have Fibromyalgia.

As you say, whatever works - I'm all for it too 😊 xx

[BaffledKaffy in reply to BlueMermaid3]

Me, too ... I was hoping to be a bit *light-hearted* 😉 when I first said what I did (saying "I know, blah blah Disease vs. Syndrome).

I'm with you ~ If anyone presses me in a conversation, I usually just say I have Fibromyalgia when referring to my problems and then add whatever else might specifically be affecting me at the time, such as a horrid migraine, severe back pain, etc.😥

It doesn't matter to me the reference/name, I just want docs to know and recognize it.

[BlueMermaid3 in reply to BaffledKaffy]

Absolutely! It completely confounds me that some doctors do not recognise this illness. How can you be formally diagnosed with something that doesn't exist 😳

It's completely beyond me 😁

[justmai]

I was told I had fibrosis 7 years ago but most of my symptoms don't fit yet they still insist that's what it is

just recently found out that most of my tendons and muscles are on the wrong place as are some of my organs but they don't seem to want investigate that and why that could be and if that's why I am in so much pain

[justmai in reply to justmai]

That was meant to say fibromyalgia not fibrosis, stupid predictive text on mobile phones lol, I don't think I have fibro, my go doesn't think I have fibro, but that's what I was Dix with,

But it all started with a problem with my right leg and blurred vision a few months after having a gallbladder operation and severe infection shortly after my then fiancé was killed in an accident,

All I know is that each year it seems to have progressed to the point I am nearly bedridden now, I am 47 and have no life and I want it back.

[TheAuthor]

It depends where I am touched? I am very pain sensitive on my wrists and forearms especially. I want to genuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

[josieb]

I get very sensitive, especially on my back. It's hell if one of kids wants a cuddle. It's taken years to learn not to grimace and unfortunately they've learnt to check before spontaneous cuddles. But people who don't know me can touch me as they squeeze past in queues etc and can leave me in pain for hours. Very gentle hugs x

[MariLiz]

Sometimes yes, it can be very painful, although I have found going for a massage is helpful. It seems to relax everything and leave me pain free for a few days. I always get the best night's sleep after a massage. MariLiz