Any doctors that specialised in fibromalgia

[Carolinee71]

Hi, does anyone know of any doctors , that specialised in fibromalgia near me that I can get my amazing GP to refer me too.

I live in Hertfordshire, but near the Essex border in Harlox, Roydon area.

I have been diagnosed with fibro for three years and I have yet to see a doctor that really understands fibro and would be able to look at my pain killers and maybe be able to fine tune them.

The last doctor I saw was a psychiatrist who told me to reduce my fentanyl patch from 37 ( a 12 patch and a 25 mg patch) to 12 mg and take some paracetamol !

Hence after that I broke down completely and was refrerred to our local Crisis Team on Friday. Who have now visited twice and who are bringing there doctor to see me to hopefully change my anti depression meds which I have been on for three years at the same dose. I take escitalopram 20 mg and Quetiapine 150 mg.

I also have just tried fentanyl patches but I didn't get on with them so after a week I gave gone back to MST 50 mg twice aday and Pregabalin 200 mg at night and 100 mg in the morning. I also have ORAMORPH which I take up to four times aday

If anyone can help or know any hospital consultant that might help would be great.

I have now reached the end of the line for me and am now suicidal most of the time.

I am in such pain all of the time, and then for several hours aday the pain is unbearable. I never sleep , I go to bed and fill up pain killers and lots of pillows to support hits of me. Then when I move in my sleep the pain wakes me. I get 2/3 hours a night .

I really don't k now what to do , I am 43 and all I can see is uncontrollable pain for the next 40 odd years and I just can't face it.

please any help would be great

Caroline

[Keeleybee]

Hi Caroline, I'm very sorry to hear what your going through. Maybe your gp could search for specialist or maybe a private doctor that specialises in the fibromyalgia Field?

I understand the feeling of never getting better and there's no light at the end of the tunnel but don't give up fighting.

Hugs Keeley

x x x

[MarkatHMSTC]

Hi Caroline,

I run the Hertfordshire Multiple Sclerosis Therapy Centre in Letchworth. Despite the name we help people with a wide range of conditions, including ME & FM. Through people with FM doing Hyperbaric Oxygen Therapy with us, I stumbled across the following contacts that might be useful for you:

Number One:

Herts/Stevenage Fibromyalgia/ME/MS and Related Illnesses Support Group details at: ukfibromyalgia.com/fm-suppo...

Number Two:

fibromyalgiaforums.org/fibr...

Lists one Dr in Hertfordshire = Dr. Ehsanollah Esfandiari, MD

Number Three:

Hertfordshire CFS/ME service, Maple Therapy Unit, St Albans City Hospital, Waverley Road, St Albans Hertfordshire AL3 5PN Tel: [phone] They don't say FM - but might still be worth a call. Listed at: meassociation.org.uk/nhs-sp...

Who knows, hopefully one of these can help.

Very Best Wishes

Mark

Hertfordshire Multiple Sclerosis Therapy Centre

[EquineArcher77 in reply to MarkatHMSTC]

I can recommend the Self Management course with the team at St Albans Hospital, and they are great - the onus is very much on me to help myself, hence the name of the course, but so far I feel they have been very supportive and understanding.

[TheAuthor]

I am so genuinely and sincerely sorry to read of how you are suffering and struggling and I want to genuinely wish you all the best of luck. Please keep fighting in there and do not give up.

Al my hopes and dreams for you

Ken

[nettybetty]

I cant help much exept to say I understand how you feel xxx do you have a partner, I stay single as feel too ill to have a man around most of the time x

[dillydally1]

you could ask your doctor to refer you to pain clinic. usually a long wait but at least it's a start x

[magicmo in reply to dillydally1]

I have got my first visit to the pain clinic tomorrow, don't really know what to expect. on my first visit

[Hidden]

Hi, I'm so sorry how low you are feeling, but don't give up and don't let it beat you, just pray for a good day soon for a brief respite. Having to cope with constant pain in so many different places is so very hard to cope with, I know what a struggle it is and lately have been seeing a counsellor as I too have been suffering with depression. I did found this helped with how I cope, but was lucky as the Counsellor was a lovely lady I liked (seen one previously, but she was not my kind of person and I did not fully open up to her, so not very helpful!). My point is, that you could try to ask your GP to refer you for some counselling, its easy to get so low which I know from experience can bring us down into a very dark and low mood and wanting to give up! Also realise that you are not alone and we are all here to talk to, so take care and I hope you feel a little brighter soon.