Hi, it's been a while since I have posted on here but belong to the most awesome support group on f.b. We need to sell tickets to our event to raise awareness of this awful, life changing condition. It promises to be a great evening with entertainment and best of all, the chance to spend some time with people who 'know'. But partners, friends, colleagues,family are all very welcome too.
Hopefully you will be able to follow this link onto the fb page which will tell you all about it.