After having some bad days I'm feeling a little better today, however the brown envelope arrived today. I was awarded standard rate for care but nothing for mobility. I was 1 point off enhanced for care but 0 for mobility. I can't understand it at all. I can't walk that far and if I do I'm tired aching and breathless. If I go to the doctors I'm done for the day. It seems it was based on me getting from the taxi to the pip centre but didn't take account that I then got my husband to pick. E up directly outside and went to bed. I don't go out much as I. Unable to walk around the shops. I can't remember the last time I was able to go and have a good look round. I was even told at the assessment that because I was so bad she didn't want me to stand up to do the physical assessment. When I did originally fill out the form I was able to walk but that was a year ago. I just don't get it and don't know what to do next. Feeling quite down this week.
Pip - brown envelope arrival - Fibromyalgia Acti...
Hi. I feel for you and can imagine how frustrated you are. I hope your mood lifts soon as I know stress and being down can make us feel worse. No one can know what we go through on a daily basis just to function. Sending you warm wishes.
Dear Mummy-G, first, I so happy and glad for you, to experience feeling a little better today after some bad days. That feels wonderful news. I really hope that sustains for you, awhile, if humanly possible.
Next, I genuinely understand your mixed feelings about the PIPS assessment outcome . I empathise very much with your feelings and disappointment .
Next...its good to pause, and to keep calm as possible.., so you can find out the best next steps.
The brown envelope arrived for me too this week - and I'm experiencing something similar in reverse ! (qualifying for standard mobility yet not quite enough points for care).
So, I'm here as a fellow-PIP's claimant, rather than having extra knowledge. I'm happy to share what I do know, so you can build on that?
Here are some steps you we can take, that I have learnt so far. Do take all your time to read these. They aren't so bad, when you look into it.
1. You can ask for a mandatory reconsideration - so the decision maker looks at your case again.
For example, I did that by phoning DWP this morning, and asking for 'recon' They told me that they activated this - and that someone will call in the next 9 weeks. Apparently best to confirm that in writing.
2. You have a choice:
(a) base the recon on your original application - which in your case was before your mobility changed, so I don't think that's the best
(b) or you can write with some extra evidence - either in your own words and/or also including a report from a health professional who knows you?
3. You would need to bear in mind that a reconsideration may result in success of a higher award, yet equally they can re-assess the award 'downwards' - so think first, is it worth going for?
4. I'm conscious that for mobility, it takes a LOT to get it. For example I'm bedbound and need to cling on to the walls of my flat to get to the kitchen - and I'm considered "able to walk 20-50 metres"
5. Further help is available - and worth exploring
(a) For some supportive links from Foggy, The Author and MDaisy , see my recent post called "PIPS process - help to contest a decision...and keeping sane..."
Just scroll down to see them all.
(b) You might want to ask your local Citizen's Advice for support in putting together your response.
(c) Finally, I gather that if a 'recon' doesn't succeed, there is also opportunity to go to appeal, within a month of the 'recon' decision. Again, I don't speak as an expert on this, so best to double-check all of this.
I'm sure there's lots of experience from others here. I really hope this helps and that you feel less alone with it...and that you make the wisest decision for your self.
In addition, I wish you (and other readers here ) some more 'better' days, when we humanly can enjoy them. Take care.
Thank you for this rock rose. Much appreciated. I think I will seek some advice and talk to my GP and Physio. I think I will ask for a recon and hope for the best. I can't see how they can reduce my care but I can't go any lower on mobility. I can't believe that you only get standard. This system is obviously not working. Let me know how you get on.
I've got my pip assessment in 2 weeks and I'm dreading it! I applied not long ago and I've got my assessment quickly - it's only been 9 weeks since I first called
I'm thinking I'll get nothing but I have to try as I struggle to dress, wash, cook and do things for myself.
I hope you find the strength to appeal and the result is positive
I really hope you're assessment goes well. Let me know how you get on. It's pretty much like an interview but I think mine went on too long and not enough time was given to mobility although I thought that was obvious. I even took copies of all additional evidence so that they had everything. Anything extra you gave take with you. I do wish you the best with this but try not to stress. I know it's easy to say but I was relieved when it was over.
Will do! I'm gonna be in a mess by the time I get there - taxi - train - taxi that they have sanctioned for me to use! I'll be at my worst I think so that's sort of good I guess. I think I've given them everything as my assessment had come quick.
I'm gonna be struggling to remember anything and I'll probably just get upset and want to get out of there as soon as I can! I'm thinking I'll mess it up.
My mobility isn't too bad most of the time so I won't get anything for that, most of my problems are in my back and upper body and I really do need help to do things. I've tried all the gadgets which are useless - someone has to help me bathe and put my clothes on most of the time which is crappy. At best I'll get low rate care I think as I know it's tough
I'm trying not to be too negative but it's hard to be positive when someone is assessing your condition that doesn't know you!
I'm so glad I have a pension (not huge but enough, if I'm careful) so I don't have to worry about trying to squeeze money out of the State. I read endless messages here about everyone struggling to get the meagre benefits that they are entitled to. I hope things work out for you as it must add to the whole depressing FMS thing. I can't walk far and I'm in the process of applying for a Blue Badge. Last week I gave in and bought myself a walking stick - I haven't quite mastered its use yet, as it seems to keep going faster than me, but I'll get the hang of it eventually. Like you, I find that a simple outing wipes me out. I went to Tesco yesterday and that was it for the day, totally incapable of doing anything else and this morning I feel like I've been run over by a bus...pretty sure it was a double-decker! I resisting the temptation to have my groceries delivered. Anyway, I'm rambling on. Try to keep smiling, I know it's tough, but try
ring and ask for a call back from the decision maker, they will call you back within 5 days, in the mean time try and get any further evidence from your GP or other professionals, when you call PIP inform them your would like a review on your decsion as you feel that that case has not been properly looked and severly underestimates your
care and mobility problems, also if you can, write a letter describing everything you can an cannot do with your mobility problems go into detail on how far you can alk and how long it takes you, i had the same problem i changed from DLA to PIP had an assessment and was awarded nothing on both, i did the above and was awarded advance for both after a review by the descision maker who did my claim, i also emailed my MP and he wrote to the PIP Team. Good Luck
This is just another [Edited by Admin] attack by this [Edited by Admin] government on disabled people who rely on ESA/DLA/PIP to survive. I've suffered from clinical depression for over two years. I've seen seen by 3 consultant psychiatrists, 12 mental health professionals and my GP. They all have some to same conclusion about the seriousness of my mental health condition. Yet I've had to contend with numerous [Edited by Admin] ATOS assessments which have made my condition worse. I've now been told by my GP that I've a heart condition too. If my pittance of benefit is taxed then I 'll have hardly anything to live on. Do they think it's ethical to punish people simply because they are too ill to work? I can't live of fresh air alone. [Edited by Admin]