Typical! The sun is shining, it's a b... - Fibromyalgia Acti...

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Typical! The sun is shining, it's a beautiful day and I feel like I've been dragged through a hedge by a truck.

huggs2109 profile image
31 Replies

I am looking out the windows mourning the days when I would have been walking for miles and miles in this beautiful weather. Really need to take stock of what I will be able to achieve now. Fibro has developed rapidly over the past year and my stamina has very quickly deteriorated.

Really thought the better weather coming in would give me a boost but feeling very low today.

Any advice anyone xx

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huggs2109 profile image
huggs2109
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31 Replies

I can understand what you mean, I have found that the walks I use to love are now too difficult. I now go for shorter walks at a slower pace. If that is not possible why not just take a chair and sit outside and enjoy the nice weather or if you have a garden just spend some time pottering.

I hope you can find a way to enjoy what you can do and not stress too much over what you can't :)

fenbadger profile image
fenbadger in reply to

Yup. Pacing. Accept things will be slower. I'm withdrawing slowly from some of my previous activities and enjoying what's left, trying not to think of what I've lost. :)

in reply to fenbadger

I find it easier yo give that advice than to take it sometimes, but I am learning :)

fenbadger profile image
fenbadger in reply to

I wont tell anyone :P

in reply to fenbadger

I will thank you for that, although I helped plant 3 holly sprigs and 3 willows today and then watched OH plant 2 of my fruit trees. Wasn't I a very good girl :D

fenbadger profile image
fenbadger in reply to

Only watched? I can think of

* left a bit. That's not deep enough*

:P :P

in reply to fenbadger

I did get him to move it about 3 times before I decided it was in the right place hehe you have to get these things right, poor trees have been uprooted once don't want that to happen again :)

fenbadger profile image
fenbadger in reply to

You only get one go at getting it right :)

in reply to fenbadger

Lucky for him it is a case of 2 down, 5 to go and then we can start on my fruit bushes :)

fenbadger profile image
fenbadger in reply to

And after the fruit bushes?

My daughter became the proud owner of a garden last year. I think I've been nominated as advisor/gardener - probably with the emphasis on the latter :P

in reply to fenbadger

We do have a whole garden to do but baby steps :)

Is that not what daddies are for :p

fenbadger profile image
fenbadger in reply to

Um, suppose.

Baby steps is appropriate. Grand daughter is 3 in May :)

in reply to fenbadger

Hehe mine is 3 in June :)

fenbadger profile image
fenbadger in reply to

Lets have a get together of little screamy things :P :P

in reply to fenbadger

The second one is one in July so we can put all the screamy things together. We might need ear plugs, or just join in :)

fenbadger profile image
fenbadger in reply to

Lets have a contest :P :P

in reply to fenbadger

See who sticks the noise the longest....your on :p

fenbadger profile image
fenbadger in reply to

I'll not be betting on Badger :P

in reply to fenbadger

When mine were small hubby came in time with my fingers in my ears singing lalalala to drown out the noise if mine whining and a washing machine on full spin :D so we could be evens

fenbadger profile image
fenbadger in reply to

fink it time for bye byes and dream of ickle fings.

Goodnight.

in reply to fenbadger

Hope you had a good night, missed you last message :)

fenbadger profile image
fenbadger in reply to

Not too bad thanks. Only up 6 times.

How about you?

You realise we've hijacked someone else's post again? Oops. :P

in reply to fenbadger

Apologies for that :( we do that a lot you know. Slept well thankfully I just hate waking up to ribs that feel like they have used as a xylophone :D

fenbadger profile image
fenbadger in reply to

Or a back that someone's stood on.

I SUPPOSE I'll have to apologise for us - again

*Crosses arms huff wise :P *

in reply to fenbadger

Ha ha. I gave apologised so you had better :)

rosewine profile image
rosewine

I sometimes think that the start of the lighter nights and better weather bring it home to us what we are missing. When it is dark and dismal all we want to do is curl up and relax but when it is light and bright we think we should be out there doing something.

I am like you and many others i am sure who used to walk for hours, I used to joke that I was amazed my dogs legs weren't 5 inches shorter as we walked for so long together.

It is very difficult to adjust to this new life but unfortunately adjusting is what we have to do. As tiredalot says we now have to take enjoyment in small things. I bought some plants today and instead of putting them all in in one go I had to take the perching stool and slowly plant them. Instead of putting them all over the garden as i would have done before safe in the knowledge I could walk around admiring them any time it was sunny instead I planted them in three containers right near the patio windows so I can look out on them whenever I need a lift regardless of how I feel.

We can still get enjoyment from life but sometimes it has to be just in a different way. I am still like you learning to live with my limitations but slowly getting there.x

TheAuthor profile image
TheAuthor

I am so sorry to read that you are feeling this way, and I genuinely hope that you start to feel better soon.

All my hopes and dreams for you

Ken

Poppy-poppy profile image
Poppy-poppy

hi, I'm the same I used to mountain walk with my two dogs Louis (golden retriever) and Ruben(Gordon setter) but now have to sit and watch my husband go by himself and stay at home it's terrible. I used to play badminton 3 times a week, swim, keep fit and Zumba . I was very active because we used to bike as well and go every other weekend away in our tourer but at Zumba one night with my daughter I just could not do it and was completely drained and couldn't go on and that was the end of my activities now I walk with a rollalator and am in pain most of the day. I mourn for what I've lost. I cannot stand noise and grandchildren don't understand that nana cannt do what I used to but I hate the thought that they will only remember me as nana that is always poorly with her feet up and shawl around her legs, they are only 2 boys 8 and 2 girls 5. Daughter mourns as well because she says we ought to be going shopping and going to shows now children in school but it's impossible. I can only manage two shops and cannot sit with legs down for long. but I'm still alive and it's becoming warmer. Sorry to rant.

Sesame profile image
Sesame

Hi Huggs, as everyone says, I know where you are coming from when you talk about the limitations. I went to a beautiful garden centre yesterday and for coffee with two friends after. there were a bunch of young girls setting up the bar area for an 18th birthday and I asked my friends if they would be able for a party that night. One said yes absolutely and the other, with RA said no. I just wanted my bed!

I used to be the first on the dance floor and dance all night long, and it's not just age that's done this.

I'm on LDN a year now and it has helped substantially. I sleep better and the pain is much better. Hard to measure that as it's so variable anyway and like childbirth, you forget the worst.

there's a lot of information on the LDN Research Trust page on FB or their website. best to you.

huggs2109 profile image
huggs2109

Thank you everyone for your lovely comments. First thing i done yesterday was spoke to husband about how i was feeling. He was very reasuring and advised me to take a day of relaxation, so i could gather my thoughts. I had a long bath and reminded myself that I still have a lot to be thankful for. My husband and I are going to take our son out for a long drive today and we will find somewhere nice we can all walk without it feeling like anyone is missing out.

Thanks again everyone.

Luv n huggs

nettybetty profile image
nettybetty

yes I totally get everything you say x that's how I feel x

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