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Fibromyalgia Action UK
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Disability/social security

My fibro has gotten so bad b/c it has gone untreated for 10 yrs dr's always trying to do or not know a diagnosis that I haven't been able to even make it to work (which I work at a very simple job in my opinion). Anyone had success w/ disability or social security or tips of home jobs or what you all do for extra money and help when u can barely get out of bed?

12 Replies

Hi jruthpark,

I am not clear as to whether you have been diagnosed with FM. If you have not been diagnosed, you may want to see a doctor able to clearly assess/diagnose.

A disability claim rests heavily upon diagnoses and the statements/assessments of your physicians.

The Social Security Administration has more information about requirements for filing disability claims.

It is possible to win a disability determination based upon FM.

This link gives specific information: socialsecurity.gov/OP_Home/...

Hope this offers at least some of the info you are seeking. :)



the link above is for the US I believe. Processes and rules are very different in other countries, but in principle it helps with social benefits if you have a diagnosis. Occupational health measures, if available, can be arranged based on symptoms.


Hi, yes, the link is for the U.S. I may have wrongly assumed the question was being asked from the U.S. "Social Security" is a term I usually hear re: U.S. benefits.

Please forgive the error if I had made the wrong assumption. :) KT_Rose

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No, you mad the right one I am trying to look into the US, and I don't even think I can handle the three days a week of work right now I'm at such a bad point with it. Or what people do for extra income from home when they can't leave.

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I hope the information helps. I don't have answers for the home income question. Sorry. You are wise to look into your options. :) KT_Rose


Can a Rheumatologist give you a letter stating whether you have it or not? I am still awaiting an appointment but I am 100% sure that I have Fibro. I know that some people state that it can take a long time to get diagnosed?


Doesn't matter how easy or hard your job is it is the effort of getting up and out that is tiring and then trying to do anything. I have another friend who makes cards at home but there may be some saturation in that area and she won a grant to help with initial costs.

Do you still mean that your fibro is not being treated? There is no cure only pain management and possibly a pill to try and alter how your brain perceives pain. It is very difficult to diagnose as there is no simple test for it.


Right now I'm only treating naturally next month I'll speak to my rheumatologist again for other options. Today I go to my family physician because yes, I'm having a hard time making it even to my three days a week of work I cut down to I just don't think I can do it, so I wondered what others did.


i was fortunate in working for the nhs they had more of an obligation to make adaptation, i initially went to 3 day working but 12hr shifts, this worked for me because it cut down the early rises, washing, and getting too and from work, i also started using a mobility scooter at work which helped for the longer distances. I also applied, and got a blue badge on the basis that anything that could be cut down outside work that would help. I know there was another lady at work who did it differently and only worked a maximum of 2 days together.

On my days of i slept.

it was hard getting the last adaptation and several times they tried to get rid of me, even to a "member of the public" reported me for being spaced out on morphine in charge of a scooter. Now heck how would anyone else know that.

Anyway eventually it was the pain in my hands that stopped me, i cant physically wash and dress every day eventually the pain becomes to great and it has been that which stopped me in my tracks


Glad you are seeing your doctor. :) KT_Rose


I am impressed with the information shared in the Fibroaction Fibromyalgia A-Z guide. Very comprehensive. If you'd like to take a look at it, you will find it under "Pinned Posts" in upper right of the forum's front page. :) KT_Rose


I can see that you have been given some wonderful advice so I will just wish you all the best of luck.

Good luck



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