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Fibromyalgia Research

TheAuthor profile image
33 Replies

Hi guys, I have been asked to place this post relating to Fibro research for anybody who would like to participate:

Hello,

My name is Hannah and I’m currently doing a PhD looking at the role of emotional suppression in medically unexplained disorders. I’m currently looking for people with fibromyalgia from the UK to take part in a brief online questionnaire study. This will involve participants anonymously answering some questions about how their fibromyalgia affects their life, what they think about their emotions and how they respond to certain emotions and who they go to for support. This research will help us better understand factors that can help or hinder living with fibromyalgia and may influence how treatments and psychological support are provided in the future.

I would be really grateful if you could please share the link to my research (below) on your website or through social media in the hopes that some of your followers may like to take part.

surveygizmo.com/s3/1787370/...

Many thanks and kind regards,

Hannah Bowers

PhD Student

Psychology

Royal Holloway University of London

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TheAuthor
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33 Replies
lou60 profile image
lou60

Done x

TheAuthor profile image
TheAuthor in reply to lou60

Thanks x

I did this one some time back.

sue xx

TheAuthor profile image
TheAuthor in reply to

So did I x

smartcarkaz profile image
smartcarkaz

Done x

TheAuthor profile image
TheAuthor in reply to smartcarkaz

Thanks x

Did it a while back :)

TheAuthor profile image
TheAuthor in reply to

So did I x

pjmain profile image
pjmain

I just did it, very difficult to answer some as length of questions was long, I have to admit I was reading question and had to re-read as didn't understand them....This fog has alot to answer for.. :(

TheAuthor profile image
TheAuthor in reply to pjmain

Thanks for staying with it x

joed profile image
joed

completed eventually nearly gave up half way through bit taxing on the brain and repetative but all done

TheAuthor profile image
TheAuthor in reply to joed

Thanks for staying with it x

nikkijane17 profile image
nikkijane17

All done!

TheAuthor profile image
TheAuthor in reply to nikkijane17

Thanks x

missymoomoo profile image
missymoomoo

done

TheAuthor profile image
TheAuthor in reply to missymoomoo

Thanks x

sue32 profile image
sue32

Done!!

TheAuthor profile image
TheAuthor in reply to sue32

Thanks x

marialang1 profile image
marialang1

done

TheAuthor profile image
TheAuthor in reply to marialang1

Thanks x

phlebo123 profile image
phlebo123

Hi Ken,

I completed this a while back also, but if you have any communication with Hannah maybe you could let her know that she may find that some people with fibromyalgia will struggle to complete it because some of the questions are very long (I had to read some of them several times before I could grasp what they meant) and I often lost my train of thought.

She may find that some people will "give up" or answer some of the questions incorrectly due to the fibrofog . It was also rather long to answer at one sitting, so maybe she should reduce the number of questions, as some of them appeared to me to be asking the same thing but in a different ways.

Hope she appreciates my feedback!

TheAuthor profile image
TheAuthor in reply to phlebo123

Thanks, I pass a message along x

B2WC profile image
B2WC

Hi Ken,

I have similar question a few days ago, and have filled the questionnaires for it, so won't fill it again other wise it might jeopardize the survey.

TheAuthor profile image
TheAuthor in reply to B2WC

Thanks, please do not worry x

Ktatmolehole profile image
Ktatmolehole

Done. Would love to know her findings and conclusions.

TheAuthor profile image
TheAuthor in reply to Ktatmolehole

Thanks, I will pass a message along x

Julie63 profile image
Julie63

Done.

TheAuthor profile image
TheAuthor in reply to Julie63

Thanks x

Angel2 profile image
Angel2

Late but done :-)

Angel2 profile image
Angel2

Done x

TheAuthor profile image
TheAuthor in reply to Angel2

Thanks x

Hi folks, I have just joined this site and this is the first thing I have done. It repeated itself a bit but I stuck with it . I have been diagnosed with fibro for about 7 years and I also have 3 breaks in my back and neck which I have now been told they have given up on :-( . Despite several spinal surgeries and untold other treatments I am now looking at my symptoms getting worse until I am permanently in a wheelchair , I am 37 and I am married with a great husband and a teen son who has took it really well. Any helpfull advice would be gratefully taken .

TheAuthor profile image
TheAuthor in reply to Fluffypinkmonster

Hi Fluffypinkmonster

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FibroAction which hosts loads of useful Fibro information ranging from medications, benefits and groups, so I hope that you find it useful:

FibroAction Website:

fibroaction.org

I genuinely look forward to seeing you around the forum.

All my hopes and dreams for you

Ken x

PS. Thank you for undertaking the survey!

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