Fibromyalgia Action UK


Good morning! I have no had a Fibromyalgia flare up for quite awhile that has lasted 5 days. I am in the Midwest and temperature drastically changing. I do suffer more in the cold and dampness. I have been down since Wednesday. I get up and force myself to go to work because I don't want to inconvenience the staff. I was diagnosed with a bacterial infection Wednesday in my inter lining of small intestine and pelvis area. I a month or so shy of 40 and each year I am getting worse. I want to sleep all the time due to exhausted feeling and the pain all over. I am afraid to even question the doctor on disability because I don't want to look like the woman trying to play the system...however I hurt so bad. I also suffer from severe anxiety and Raynaud's Syndrome which gets worse every year as well. My poor fingers and toes turn ghost white and hurt to bend in 60 degree weather...hate to think of what they will be like when we hit colder days and snow. It doesn't matter if I wear the best mittens or gloves out there...I have tried them all and nothing helps. I live in fear I could lose fingers and toes due to very poor circulation. I need advice!!! Is it insane to be down in bed for 5 days without others thinking I am totally depressed because that's not the issue...I hurt!

3 Replies

Hi, sorry to hear you are not feeling well & had an infection, I can only relate to your Fibromyalgia & if you feel the need to rest in bed for a few days then you do that without feeling guilty, it doesn't mean youre depressed but I'm sure you are feeling rather down at the minute which is understandable.

Whilst you're not feeling well you shouldn't be working you've got to be kind to yourself.

Sorry I can't offer much advice but I am sending much love & hugs your way & hope you start to feel better soon xxxx


Hey sweetheart sorry to hear ur feeling so much pain. No way should u feel guilty about working and the time ur taking off. People should feel guilty having u there when ur feeling like this. We all need to listen to our bodies and rest when we can't take it anymore. I applaud u for working through this. I just gave up my job after working for 2 years for the first time in my life! I couldn't do it anymore as the mornings were horrific and I needed to just stop and heal for a little while. Because I can't not work I lined myself up another job that starts in 6 weeks so I have a resting period which I need right now to be able to fight again. U will fight again too but work needs to work around u. Not the other way round. U rest and pamper ur self because u deserve it xxx

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Hi tsheehan13

I am so sorry to read that you are feeling so poorly with your Fibro and I genuinely hope that you can find some resolution and relief to your pain and fatigue. I can understand that you do not want to let anybody at work down, but you have to put yourself first on certain occasions, especially if you are feeling so poorly.

I want to wish you all the best of luck.

All my hopes and dreams for you

Ken x

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