Hi all,
I've been following the posts on here for a while now and am finding them very helpful.It is so nice to hear from people I can identify with,who really know what its like to live with fibromyalgia and related conditions.I was diagnosed 3.5 years ago,although I suspect I've had it for at least 25 years.I have not been able to work for much of that time firstly due to bipolar 2,and now with the added difficulties that fibro brings.I am feeling so frustrated at the moment.This summer I have developed severe sensitivity to the sun,causing me major fatigue,so have had to stay indoors during the lovely weather.Also,my body feels completely out of sorts.I have had a period after 2 years of nothing(had gynae checks and all is well),I have been overwhelmed by fatigue,often fighting to stay awake,or simply having to lie down there and then whenever possible and sleep,and after years of managing to maintain a reasonable weight,have gained 10 pounds over the last 3 weeks,even though my diet hasn't changed.I have also started to have daily headaches,and my legs and arms have become much weaker in spite of all my efforts to maintain some muscle strength.Have been several times to my GP who has run lots of blood tests for thyroid deficiency,lupus etc but all bloods etc are fine.Has anyone else experienced similar problems? It would be very helpful to hear from anyone who has. Many thanks
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Am I within my rights to ask my employer for help?
Yes to all of the above! I display *all* of the things you have listed there. Trying to maintain a healthy weight is a friggin' nightmare, and after managing to lose 5 stone in one year I find myself eating like a flea to try and keep it off!
It is very frustrating yes, but you may find that this is all "normal" for you.
A strict diet (no caffeine, fizzy drinks and sugar) and as much exercise as I can tolerate help keep me ticking over.
Hope you feel better soon x
I would like to find out more about weight loss I've stopped inhaling Haribo [ with some difficulty] seriously how can we lose weight when we can only move at snails pace all the usual eat less, achievable, and move more advice is a tough one to follow. xx
For me, it really was a case of sucking it up, seriously changing my eating habits and taking a long, hard look at portion sizes. I am lucky in that I can exercise pretty well despite the pain, as long as I factor the fatigue in later in the day. I don't eat any fast food, fizzy drink, sugar, sweets etc, drink copious amounts of water (I have interstitial cystitis issues) and eat tiny portions, little and often.
Of course, for those that stick to an exercise routine for whatever reason, I would recommend being realistic and honest with themselves about what they are eating and the amount, and see if that helps on it's own. Of course, certain medications can cause weight gain, so that's an added issue for some. xx
I've lost just over 5 stone and it's taken 14 months. I used the weight watchers app (you can also do it on the internet) as I knew I wouldn't be up to (or want to) go to meetings. As with EquineArcher it was a case of knowing I had to change my eating habits for life, but I was very surprised at how small my portion sizes had to become. However, sticking to the weight watcher points (and you find out it is just as important to eat enough as it is to not eat too much) meant the weight came off. I'm really proud as, like most of us, I had to do it without any exercise.
All I can say is it was definitely worth it. I have maybe 7 to 14 pounds still to lose, but I know I can do it. The thing that helped me stick to it was the fact that I wanted to be able to live the best life I can with fibro. I felt like I'd lost all control of my life (can't work, can't do household chores, can't go out and enjoy myself, etc) and I decided that the one thing I could take control of was what I put in my mouth. The weight watchers app provided me with an easy way to record my food, which I was able to do even when feeling really tired. I knew it was important to have something to help that wouldn't require too much energy or brain power. While the weight loss has not fixed my fibro (and I knew it wouldn't), I do have less pain in my hips and knees, I don't wheeze any more and I like shopping for clothes again
Not sure if this helps any, but it's another example of someone losing weight if nothing else.
Clearly what I must do I've spent about a year just wallowing [diagnosed 14 years] just wallowing thinking is this it then I found this forum and learned to take each day as it comes.XX
I wallowed myself for a while
I probably started the weight loss plan 2 1/2 years after diagnosis. Try not to give yourself a hard time - it's a difficult condition to come to terms with. With weight loss, I think you have to be 'in the right place' to do it if you know what I mean. I'd been really overweight for about 16 years having been super fit before. Something just clicked for me in May last year. I still love chocolate though 
xx
It is chocolate digestives with me and haribo xx
Mmmmmmm, haribo
xx