Brighton Pride weekender: Yesterday was... - Fibromyalgia Acti...

Fibromyalgia Action UK
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Brighton Pride weekender


Yesterday was Brighton Pride, my wife and I watched the parade and then headed into the park. I always make a beeline for the charity and community stalls and have lots of great conversations, as well as the compulsory buying of junk. After 6 hours at Pride, my body gave up, my wife dragged me up the hill home and I've been asleep most of the time since then, while the rest of Brighton continues to party. I had a great day, but the suffering that follows really puts a dampener on it all. I still can't wait until next year!

12 Replies

Hi smartcarkaz :)

Well done on surviving the time that you did as it is difficult to keep the energy flowing as a fibromite :)

As long as you get some R&R to give yourself the chance to re-charge I think you'll be be fine :)

You look like you enjoyed yourselves too with your lovely big smiles :)

Soft energising healing fluffie hugs for you :)

:) xxxsianxxx :)

P.S. Is it ok to call you Kaz as it's shorter to type?

in reply to Hidden

Hi Sian, Kaz is just fine :)

Fluffie hugs are much appreciated, right back you xx

in reply to smartcarkaz

Thank you :)


Hello Karen,

Glad you've enjoyed your weekend together ! Sorry it took a lot out of you as Fibro sometimes does but your lady wife has looked after you well & I hope your less achey now :)

Looking forward to getting to know you more & chatting more around the community.

Hope you are resting up this evening

Best Wishes

Emma :)

FibroAction Administrator

My son lives in Brighton but as his lease runs out Tuesday he's been trying to move all weekend in Preston park , he's at his near empty flat at moment trying to work out how to get a sofa out that doesn't want to go down the staircase he works at D G . He always enjoys the pride weekend but not this year :( he should of been spending it with his girlfriend he's very cross ,glad you enjoyed it. :)

Hi Karen

I genuinely hope that you and your wife had a wonderful time? I can truly understand how exhausting a long day out really is these days! And while I remember, welcome to the community, and I sincerely hope that you are feeling more rested?

All my hopes and dreams for you and your wife

Ken x

great picture, glad you enjoyed your day.

Hi Smartcarkaz

It looks like you had a great time! I've gotto say I've always wanted to go to the Brighton Pride, but always lived too far to get there. Very jealous lol and hope you're soon feeling better!


Jayne x

I was there! I hired an electric wheelchair and it meant I had a great day all day, and didn't suffer awfully the next day. (I have EDS-H). Maybe that's what you should do next year?

Hi Kaz, great pic, looks like a brilliant day!

It was indeed a great day. I slept until midday today which is something I don't think I've ever done before so hopefully on the road to recovery now.

rowantree - you were there! What was your favourite bit? We may have crossed paths at some point ( I was the one being dragged towards the 'Dogmobile' by my belt hooks just for fun (on the floor may I add) in a moment of 'I'm a perfectly well normal almost 30 year old'. I was sober, it was fun, and I'm recovering nicely at last! xx

Glad you had a good time. I used to live in Brighton. Loved the place!

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